{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T21:26:50Z","timestamp":1781299610013,"version":"3.54.1"},"reference-count":30,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2023,5,2]],"date-time":"2023-05-02T00:00:00Z","timestamp":1682985600000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"School of Healthcare PhD Studentship, University of Leeds"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2023,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Young men with Duchenne Muscular Dystrophy benefit from palliative care that supports their psychosocial needs. Acknowledging the sub-cultures they engage with can support their wellbeing. Anecdotal reports suggest video gaming is a sub-culture engaged with by young men with Duchenne Muscular Dystrophy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To explore the lived experience of video gaming from the perspective of young men with Duchenne Muscular Dystrophy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Interpretative Phenomenological Analysis approach involving in-depth interviews using a topic guide that focused on social media broadly, with reference to video gaming. Sequential interviewing was undertaken to support participation regarding fatigue and tiredness, symptoms of Duchenne Muscular Dystrophy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/participants:<\/jats:title>\n                    <jats:p>Participants were purposefully recruited from a hospice in the North of England. Twitter was used to support recruitment. Eight young men with Duchenne Muscular Dystrophy were recruited to the study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Five themes were developed; \u2018gamer as a shared and accepted identity\u2019, \u2018an existential and bodily escapism\u2019, \u2018introspection through video gaming\u2019, \u2018video gaming as a release\u2019 and \u2018when life gives you few choices-video game\u2019. Motivations for engagement with video gaming are diverse and reflective of the situated perspectives of young men with Duchenne Muscular Dystrophy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>An awareness of the popular sub-cultures that young men with Duchenne Muscular Dystrophy engage with is key to building a therapeutic alliance, establishing rapport and recognising personhood in interactions between professionals and persons in palliative care settings. This study highlights the value of video gaming, offering professionals valuable insight into its placement in the daily lives of young men with Duchenne Muscular Dystrophy.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163231172246","type":"journal-article","created":{"date-parts":[[2023,5,2]],"date-time":"2023-05-02T08:38:06Z","timestamp":1683016686000},"page":"1016-1024","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":14,"title":["\u2018It is easier to not allow them to see your disability straight away, to see you as a person\u2019: An Interpretative Phenomenological Analysis of video gaming from the perspectives of men with Duchenne Muscular Dystrophy"],"prefix":"10.1177","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0293-2456","authenticated-orcid":false,"given":"George","family":"Peat","sequence":"first","affiliation":[{"name":"School of Healthcare, University of Leeds, Leeds, UK"},{"name":"Health Sciences Department, Martin House Research Centre, University of York, York, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9104-1999","authenticated-orcid":false,"given":"Alison","family":"Rodriguez","sequence":"additional","affiliation":[{"name":"School of Healthcare, University of Leeds, Leeds, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanna","family":"Smith","sequence":"additional","affiliation":[{"name":"School of Healthcare, University of Leeds, Leeds, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2023,5,2]]},"reference":[{"key":"bibr1-02692163231172246","unstructured":"Nthite M. Meet three differently-abled gamers defying the odds, https:\/\/www.redbull.com\/za-en\/gaming-with-muscular-dystrophy (2011, accessed 15 March 2022)."},{"key":"bibr2-02692163231172246","unstructured":"Parent Project Muscular Dystrophy. Daily living resources. Video gaming, https:\/\/www.parentprojectmd.org\/care\/for-families\/community-resource-center\/daily-life-resources\/video-gaming\/ (2022, accessed 15 March 2022)."},{"key":"bibr3-02692163231172246","unstructured":"Miller H. Expressing myself on YouTube with a disability. Muscular Dystrophy News Today. https:\/\/musculardystrophynews.com\/2019\/06\/17\/expression-youtube-disability-communication\/ (2019, accessed 15 March 2022)."},{"key":"bibr4-02692163231172246","unstructured":"Schaubert V. My disabled son\u2019s amazing gaming life in the World of Warcraft. BBC News. https:\/\/www.bbc.co.uk\/news\/disability-47064773 (2019, accessed 10 December 2020)."},{"key":"bibr5-02692163231172246","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(18)30026-7"},{"key":"bibr6-02692163231172246","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.13096"},{"key":"bibr7-02692163231172246","doi-asserted-by":"publisher","DOI":"10.1177\/2043610616671062"},{"key":"bibr8-02692163231172246","doi-asserted-by":"publisher","DOI":"10.1002\/ana.23528"},{"key":"bibr9-02692163231172246","doi-asserted-by":"publisher","DOI":"10.3233\/JND-140053"},{"key":"bibr10-02692163231172246","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2018-001646"},{"key":"bibr11-02692163231172246","first-page":"1","volume-title":"Proceedings of the 15th international conference on computers and accessibility","author":"Porter JR"},{"key":"bibr12-02692163231172246","doi-asserted-by":"publisher","DOI":"10.1080\/13676261.2017.1313969"},{"key":"bibr13-02692163231172246","unstructured":"Beeston J, Power C, Cairns P, et al. 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