{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T03:15:55Z","timestamp":1782962155240,"version":"3.54.5"},"reference-count":55,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2023,12,6]],"date-time":"2023-12-06T00:00:00Z","timestamp":1701820800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010661","name":"Horizon 2020 Framework Programme","doi-asserted-by":"publisher","award":["825785"],"award-info":[{"award-number":["825785"]}],"id":[{"id":"10.13039\/100010661","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>People with Parkinson\u2019s disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>The aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve palliative care for people with Parkinson\u2019s disease and their caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>A systematic review method was adopted to determine the strength of evidence, supported by feedback from an expert panel, to generate the \u2018do\u2019, \u2018do not do\u2019 and \u2018do not know\u2019 recommendations for palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Data sources:<\/jats:title>\n                    <jats:p>Searches were conducted via OVID to access CINAHL, MEDLINE, EMBASE and the Cochrane Library from 01\/01\/2006 to 31\/05\/2021. An additional search was conducted in December 2022. The search was limited to articles that included empirical studies of approaches to enabling palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>A total of 62 studies met inclusion criteria. There is evidence that education about palliative care and movement disorders is essential. palliative care should be multi-disciplinary, individualised and coordinated. Proactive involvement and support of caregivers throughout the illness is recommended. Limited data provide referral indicators for palliative care integration. Discussions about advance care planning should be held early.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Consideration of palliative care integration based on symptom burden and personal preferences, coordination and continuity of care are needed to maintain the quality of life of people with Parkinson\u2019s disease and their caregivers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163231214408","type":"journal-article","created":{"date-parts":[[2023,12,6]],"date-time":"2023-12-06T06:12:27Z","timestamp":1701843147000},"page":"57-68","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":18,"title":["A systematic practice review: Providing palliative care for people with Parkinson\u2019s disease and their caregivers"],"prefix":"10.1177","volume":"38","author":[{"given":"Michela","family":"Garon","sequence":"first","affiliation":[{"name":"Parkinson and Movement Disorders Unit, Study Center for Neurodegeneration (CESNE), Department of Neuroscience, University of Padua, Via Giustiniani 2, 35128, Padua, Italy"},{"name":"Padua Neuroscience Center (PNC), University of Padua, 35131, Padua, Italy"},{"name":"Parkinson\u2019s Disease and Movement Disorders Unit, Center for Rare Neurological Diseases (ERN-RND), Department of Neurosciences, University of Padova, Padova, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christiane","family":"Weck","sequence":"additional","affiliation":[{"name":"Institute of Palliative Care, Paracelsus Medical University, Salzburg, Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristina","family":"Rosqvist","sequence":"additional","affiliation":[{"name":"Division of Neurology, Department of Clinical Sciences Lund, Lund University, Lund, Sweden"},{"name":"Department of Neurology, Rehabilitation Medicine, Memory and Geriatrics, Skane University Hospital, Lund, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Per","family":"Odin","sequence":"additional","affiliation":[{"name":"Division of Neurology, Department of Clinical Sciences Lund, Lund University, Lund, Sweden"},{"name":"Department of Neurology, Rehabilitation Medicine, Memory and Geriatrics, Skane University Hospital, Lund, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anette","family":"Schrag","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences, UCL Queen Square Institute of Neurology, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"\u00dclle","family":"Krikmann","sequence":"additional","affiliation":[{"name":"Department of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu, Tartu, Estonia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David J","family":"Pedrosa","sequence":"additional","affiliation":[{"name":"Philipps University Marburg, Marburg, Germany"},{"name":"Center for Mind, Brain and Behavior, Marburg, German"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angelo","family":"Antonini","sequence":"additional","affiliation":[{"name":"Parkinson and Movement Disorders Unit, Study Center for Neurodegeneration (CESNE), Department of Neuroscience, University of Padua, Via Giustiniani 2, 35128, Padua, Italy"},{"name":"Padua Neuroscience Center (PNC), University of Padua, 35131, Padua, Italy"},{"name":"Parkinson\u2019s Disease and Movement Disorders Unit, Center for Rare Neurological Diseases (ERN-RND), Department of Neurosciences, University of Padova, Padova, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Lorenzl","sequence":"additional","affiliation":[{"name":"Institute of Palliative Care, Paracelsus Medical University, Salzburg, Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4113-8957","authenticated-orcid":false,"given":"Sandra","family":"Martins Pereira","sequence":"additional","affiliation":[{"name":"Ethics and Sustainability Research Area: Palliative Care Research, CEGE: Research Centre in Management and Economics, Cat\u00f3lica Porto Business School, Universidade Cat\u00f3lica Portuguesa, Porto, Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1341-3248","authenticated-orcid":false,"given":"Piret","family":"Paal","sequence":"additional","affiliation":[{"name":"Institute of Palliative Care, Paracelsus Medical University, Salzburg, Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2023,12,6]]},"reference":[{"key":"bibr1-02692163231214408","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000000674"},{"key":"bibr2-02692163231214408","unstructured":"WHO. 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