{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T18:12:29Z","timestamp":1777918349987,"version":"3.51.4"},"reference-count":17,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2024,9,27]],"date-time":"2024-09-27T00:00:00Z","timestamp":1727395200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010269","name":"wellcome trust","doi-asserted-by":"publisher","award":["203132\/Z\/16\/Z"],"award-info":[{"award-number":["203132\/Z\/16\/Z"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010269","name":"wellcome trust","doi-asserted-by":"publisher","award":["224744\/Z\/21\/Z"],"award-info":[{"award-number":["224744\/Z\/21\/Z"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000267","name":"arts and humanities research council","doi-asserted-by":"publisher","award":["AH\/W005077\/1"],"award-info":[{"award-number":["AH\/W005077\/1"]}],"id":[{"id":"10.13039\/501100000267","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2024,12]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Perinatal palliative care can offer compassionate support to families following diagnosis of a life-limiting illness, to enable them to make valued choices and the most of the time that they have with their newborn. However, home birth is usually only offered in low-risk pregnancies.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Case:<\/jats:title>\n                    <jats:p>A couple who received an antenatal diagnosis of hypoplastic left heart syndrome and who had made a plan to provide palliative care to their baby after birth requested the option of a home birth.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Possible courses of action:<\/jats:title>\n                    <jats:p>Recommend birth at hospital or explore the possibility of a home birth with perinatal palliative care support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Formulation of a plan:<\/jats:title>\n                    <jats:p>Multidisciplinary discussion and collaboration enabled a plan for home birth to be made which anticipated potential complications.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Outcome:<\/jats:title>\n                    <jats:p>The baby was born at home and died on day 5 of life receiving outreach nursing, paediatric and palliative care support and buccal and oral opioids for symptom management. We include reflections from the family on the importance of this experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Lessons:<\/jats:title>\n                    <jats:p>We provide a list of potential criteria for considering home birth in the setting of perinatal palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>View:<\/jats:title>\n                    <jats:p>Facilitating a home birth in the setting of perinatal palliative care is an option that can be hugely valued by families, but this service may be practically difficult to deliver in many contexts. Further research is needed to understand the preferences of women and families receiving perinatal palliative care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163241280374","type":"journal-article","created":{"date-parts":[[2024,9,28]],"date-time":"2024-09-28T01:46:33Z","timestamp":1727487993000},"page":"1194-1198","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Facilitating home birth in perinatal palliative care: A case report"],"prefix":"10.1177","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9039-5207","authenticated-orcid":false,"given":"Sophie","family":"Bertaud","sequence":"first","affiliation":[{"name":"Oxford Uehiro Centre for Practical Ethics, Faculty of Philosophy, University of Oxford, Oxford, UK"},{"name":"Louis Dundas Centre for Children\u2019s Palliative Care, Great Ormond Street Hospital for Children, London, UK"},{"name":"Ethox Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rachel","family":"Kirven","sequence":"additional","affiliation":[{"name":"Independent contributor, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas","family":"Kirven","sequence":"additional","affiliation":[{"name":"Independent contributor, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emily","family":"Harrop","sequence":"additional","affiliation":[{"name":"Helen & Douglas House, Oxford, UK"},{"name":"John Radcliffe Hospital, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amanda","family":"Crudgington","sequence":"additional","affiliation":[{"name":"Florence Park Midwives Team, Maternity Department, John Radcliffe Hospital, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dominic","family":"Wilkinson","sequence":"additional","affiliation":[{"name":"Oxford Uehiro Centre for Practical Ethics, Faculty of Philosophy, University of Oxford, Oxford, UK"},{"name":"John Radcliffe Hospital, Oxford, UK"},{"name":"Murdoch Children\u2019s Research Institute, Melbourne, VIC, Australia"},{"name":"Centre for Biomedical Ethics, National University of Singapore Yong Loo Lin School of Medicine, Singapore, Singapore"},{"name":"Department of Paediatrics, School of Clinical Sciences, Faculty of Medicine Nursing and Health Sciences, Monash University, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2024,9,27]]},"reference":[{"key":"bibr1-02692163241280374","doi-asserted-by":"publisher","DOI":"10.3390\/children10030482"},{"key":"bibr2-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231203852"},{"key":"bibr3-02692163241280374","doi-asserted-by":"publisher","DOI":"10.3389\/fped.2023.1217209"},{"key":"bibr4-02692163241280374","unstructured":"NICE. Clinical guideline [NG61]: end of life care for infants, children and young people with life-limiting conditions: planning and management, https:\/\/www.nice.org.uk\/guidance\/ng61\/resources\/end-of-life-care-for-infants-children-and-young-people-with-lifelimiting-conditions-planning-and-management-pdf-1837568722885 (2016, accessed 10 January 2024)."},{"key":"bibr5-02692163241280374","unstructured":"Office for National Statistics. Birth characteristics in England and Wales: 2021, https:\/\/www.ons.gov.uk\/peoplepopulationandcommunity\/birthsdeathsandmarriages\/livebirths\/bulletins\/birthcharacteristicsinenglandandwales\/latest (2023, accessed 14 September 2023)."},{"key":"bibr6-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1186\/s13643-021-01837-9"},{"key":"bibr7-02692163241280374","unstructured":"NICE. Clinical guideline [CG190]: intrapartum care for healthy women and babies. https:\/\/www.nice.org.uk\/guidance\/cg190\/resources\/intrapartum-care-for-healthy-women-and-babies-pdf-35109866447557 (2022, accessed 14 September 2023)."},{"key":"bibr8-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2013-0575"},{"key":"bibr9-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1542\/peds.147.3MA6.533a"},{"key":"bibr10-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1093\/ejcts\/ezaa188"},{"key":"bibr11-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1016\/j.clp.2014.08.004"},{"key":"bibr12-02692163241280374","volume":"343","author":"Group B","year":"2011","journal-title":"BMJ"},{"key":"bibr13-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1111\/1471-0528.13283"},{"key":"bibr14-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1086\/JCE2015261027"},{"issue":"3","key":"bibr15-02692163241280374","first-page":"114","volume":"102","author":"Sidgwick P","year":"2017","journal-title":"Arch Dis Child"},{"key":"bibr16-02692163241280374","unstructured":"All Party Parliamentary Groups (APPGs) on Baby Loss and Maternity. Safe staffing: the impact of staffing shortages in maternity and neonatal care, https:\/\/www.sands.org.uk\/sites\/default\/files\/Staffing%20shortages%20-%20APPG%20report,%20Oct%2022%20(final).pdf (2022, accessed 14 September 2023)."},{"key":"bibr17-02692163241280374","doi-asserted-by":"publisher","DOI":"10.1111\/jnu.12866"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692163241280374","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/02692163241280374","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692163241280374","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:36:46Z","timestamp":1777660606000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/02692163241280374"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,9,27]]},"references-count":17,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2024,12]]}},"alternative-id":["10.1177\/02692163241280374"],"URL":"https:\/\/doi.org\/10.1177\/02692163241280374","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,9,27]]}}}