{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,2]],"date-time":"2026-11-02T15:43:12Z","timestamp":1793634192352,"version":"4.5.1"},"reference-count":46,"publisher":"SAGE Publications","issue":"8","license":[{"start":{"date-parts":[[2025,7,25]],"date-time":"2025-07-25T00:00:00Z","timestamp":1753401600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,7,25]],"date-time":"2025-07-25T00:00:00Z","timestamp":1753401600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Health Research Board (HRB) Ireland","award":["APA-2022-016"],"award-info":[{"award-number":["APA-2022-016"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Emotional and psychosocial support is vital for children with life-limiting or life-threatening conditions and their families. Memory-making interventions, which create lasting memories, are gaining recognition, yet a comprehensive synthesis of their efficacy and scope is lacking.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To systematically review and synthesize evidence on memory-making interventions for children and young people aged 0\u201319\u2009years with life-threatening or life-limiting conditions and their families in paediatric palliative and bereavement contexts.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>A systematic review conducted in accordance with Joanna Briggs Institute guidance for mixed-methods reviews and reported using PRISMA guidelines. Narrative synthesis was used to identify key themes related to the effectiveness, implementation and family experiences of these interventions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Data sources:<\/jats:title>\n                    <jats:p>PubMed, EMBASE, CINAHL, PsycINFO, Web of Science, Cochrane Library and Scopus.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Eleven articles met the inclusion criteria, identifying three categories of memory-making interventions: storytelling-based, art-based legacy and physical keepsake creations. While statistical significance was limited, studies suggested small to moderate psychosocial benefits. Narrative synthesis identified four key themes: emotional expression and comfort; family connection and communication; memory preservation and personalization; and grieving support and continued bonds. Digital storytelling was the most common intervention. Families emphasized the need for personalized and culturally sensitive approaches to improve engagement and relevance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Memory-making interventions provide valuable emotional and psychosocial benefits for children and young people and their families in paediatric palliative and bereavement contexts. Tailored, well-supported interventions can strengthen resilience and well-being. Addressing challenges like technological barriers and cultural sensitivities may optimize these interventions and improve care quality.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163251353006","type":"journal-article","created":{"date-parts":[[2025,7,25]],"date-time":"2025-07-25T12:03:21Z","timestamp":1753445001000},"page":"871-883","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":8,"title":["Memory-making interventions for children with life-threatening or life-limiting conditions and their families: A systematic review of evidence and implications for practice"],"prefix":"10.1177","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2333-5044","authenticated-orcid":false,"given":"Razieh","family":"Safarifard","sequence":"first","affiliation":[{"name":"School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Glasnevin Campus, Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gemma","family":"Kiernan","sequence":"additional","affiliation":[{"name":"School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Glasnevin Campus, Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yvonne","family":"Corcoran","sequence":"additional","affiliation":[{"name":"School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Glasnevin Campus, Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eileen","family":"Courtney","sequence":"additional","affiliation":[{"name":"School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Glasnevin Campus, Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Mitchell","sequence":"additional","affiliation":[{"name":"Head of Partnerships, Barretstown Children\u2019s Charity, Barretstown Castle, Ballymore Eustace, Co Kildare, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Terrah","family":"Akard","sequence":"additional","affiliation":[{"name":"School of Nursing, Vanderbilt University, Nashville, TN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4396-5462","authenticated-orcid":false,"given":"Veronica","family":"Lambert","sequence":"additional","affiliation":[{"name":"School of Nursing, Psychotherapy and Community Health, Faculty of Science and Health, Dublin City University, Glasnevin Campus, Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,7,25]]},"reference":[{"key":"e_1_3_2_2_2","doi-asserted-by":"publisher","DOI":"10.1177\/10499091211047838"},{"key":"e_1_3_2_3_2","unstructured":"National Institute for Health and Care Excellence. 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