{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,6]],"date-time":"2026-06-06T16:07:38Z","timestamp":1780762058747,"version":"3.54.1"},"reference-count":41,"publisher":"SAGE Publications","issue":"8","license":[{"start":{"date-parts":[[2025,7,28]],"date-time":"2025-07-28T00:00:00Z","timestamp":1753660800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,7,28]],"date-time":"2025-07-28T00:00:00Z","timestamp":1753660800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100005635","name":"Funda\u00e7\u00e3o Calouste Gulbenkian","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005635","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001871","name":"Funda\u00e7\u00e3o para a Ci\u00eancia e a Tecnologia","doi-asserted-by":"publisher","award":["SFRH\/BD\/136331\/2018"],"award-info":[{"award-number":["SFRH\/BD\/136331\/2018"]}],"id":[{"id":"10.13039\/501100001871","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Provision of bereavement care is not standard practice in palliative care, meaning routinely collected data to understand support quality at a service level is scarce. Survey research can fill this gap.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To pilot and refine a survey and the survey method to measure the quality and variations in bereavement support at a service level.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Cognitive interview study. In analysis we used a combination of reparative and descriptive cognitive interview approaches to ascertain measurement errors and any participation distress.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/participants:<\/jats:title>\n                    <jats:p>People bereaved due to cancer (13\u201319\u2009months post death) were consecutively recruited via a hospital-based palliative care service.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Twenty bereaved people participated (parental bereavement 8\/20, partner 7\/20, sibling 3\/20, adult child 2\/20); median age 59 (range 28\u201376), 6 men. Cancer deaths occurred 16\u201319\u2009months before the interview. Identified measurement errors, mostly related to comprehension, were fixed. We refined the definition of bereavement support in the context of the survey and reordered the sections to reduce emotional burden and improve time completion. Participating in the survey was considered distressing yet personally valuable, relevant and important for improving bereavement support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>We developed, piloted and refined a survey to assess quality and variations in bereavement support which can be used by palliative care services in clinical practice for quality improvement. Survey participation, while potentially distressing, was acceptable to and valued by bereaved people.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163251353012","type":"journal-article","created":{"date-parts":[[2025,7,28]],"date-time":"2025-07-28T18:30:23Z","timestamp":1753727423000},"page":"884-896","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Surveying the quality of bereavement support within a service setting: A pilot study using cognitive interviewing with bereaved people"],"prefix":"10.1177","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3749-7183","authenticated-orcid":false,"given":"Maja","family":"Furlan de Brito","sequence":"first","affiliation":[{"name":"Faculty of Medicine, University of Coimbra, Coimbra, Portugal"},{"name":"Centre for Innovative Biomedicine and Biotechnology (CIBB), University of Coimbra, Coimbra, Portugal"},{"name":"King\u2019s College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5747-2699","authenticated-orcid":false,"given":"Lucy E","family":"Selman","sequence":"additional","affiliation":[{"name":"Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexandra","family":"Coelho","sequence":"additional","affiliation":[{"name":"PSYLAB, Instituto de Sa\u00fade Ambiental (ISAMB), Faculty of Medicine, University of Lisbon, Lisbon, Portugal"},{"name":"ISPA \u2013 University Institute, APPsyCi - Applied Psychology Research Center Capabilities &amp; Inclusion, Lisbon, Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8149-1806","authenticated-orcid":false,"given":"Barbara","family":"Gomes","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Coimbra, Coimbra, Portugal"},{"name":"Centre for Innovative Biomedicine and Biotechnology (CIBB), University of Coimbra, Coimbra, Portugal"},{"name":"King\u2019s College London, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,7,28]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2468-2667(24)00030-6"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211043000"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-023-01135-2"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-017-0183-2"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1177\/0969733017695656"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-007-0342-8"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1176\/ps.62.10.pss6210_1225"},{"key":"e_1_3_3_9_2","volume-title":"Quantitative health research: issues and methods","author":"Drennan J","year":"2013","unstructured":"Drennan J, Drennan J. Using cognitive interviewing in health care research. In: Curtis E, Drennan J (eds) Quantitative health research: issues and methods. Maidenhead: Open University Press, 2013, pp.2013."},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781412983655"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1108\/QAE-06-2017-0034"},{"key":"e_1_3_3_12_2","volume-title":"Cognitive aspects of survey design: building a bridge between disciplines","author":"Tourangeau R","year":"1994","unstructured":"Tourangeau R. Cognitive aspects of survey design: building a bridge between disciplines. Washington: National Academy Press, 1994."},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1002\/0471654728.ch4"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-013-1848-x"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1177\/160940691301200101"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.2307\/j.ctt1xp3vbc.13"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1002\/ceas.12114"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1093\/poq\/nfm006"},{"key":"e_1_3_3_19_2","volume-title":"Analysis of the cognitive interview in questionnaire design","author":"Willis G","year":"2015","unstructured":"Willis G. Analysis of the cognitive interview in questionnaire design. Oxford: Oxford University Press, 2015."},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1177\/1073191112436671"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1540-4560.1988.tb02084.x"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221074540"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0121101"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1753-6405.2012.00825.x"},{"key":"e_1_3_3_25_2","volume-title":"Guidance on cancer services: improving supportive and palliative care for adults with cancer. The manual","author":"National Institute for Clinical Excellence","year":"2004","unstructured":"National Institute for Clinical Excellence. Guidance on cancer services: improving supportive and palliative care for adults with cancer. The manual. London: National Institute for Clinical Excellence, 2004."},{"key":"e_1_3_3_26_2","volume-title":"Adult bereavement care pyramid: a national framework","author":"The Irish Hospice Foundation","year":"2021","unstructured":"The Irish Hospice Foundation. Adult bereavement care pyramid: a national framework. Dublin: The Irish Hospice Foundation, 2021."},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1000121"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.20344\/amp.1422"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2407-10-400"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/41.5.652"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1002\/wps.20823"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049909118812025"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2006.0108"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1080\/00365590510031273"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2005.01.370"},{"key":"e_1_3_3_36_2","volume-title":"Survey research methods","author":"Fowler FJ","year":"2014","unstructured":"Fowler FJ. Survey research methods. Thousand Oaks, CA: Sage Publications, 2014."},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.1080\/13645570902767918"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.comppsych.2022.152351"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.2989\/17280583.2016.1210154"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.1191\/0269216306pm1098oa"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","DOI":"10.1080\/07481180701537220"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2017-017959"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692163251353012","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/02692163251353012","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692163251353012","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:37:39Z","timestamp":1777660659000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/02692163251353012"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,28]]},"references-count":41,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["10.1177\/02692163251353012"],"URL":"https:\/\/doi.org\/10.1177\/02692163251353012","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,28]]}}}