{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,9]],"date-time":"2026-07-09T10:20:08Z","timestamp":1783592408378,"version":"3.55.0"},"reference-count":58,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T00:00:00Z","timestamp":1777939200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T00:00:00Z","timestamp":1777939200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"RCN Foundation","award":["This work was supported by the RCN Foundation Prof"],"award-info":[{"award-number":["This work was supported by the RCN Foundation Prof"]}]},{"DOI":"10.13039\/501100024749","name":"National Institute for Health Research Applied Research Collaboration East of England","doi-asserted-by":"publisher","award":["BB is supported by the NIHR Applied Research Colla"],"award-info":[{"award-number":["BB is supported by the NIHR Applied Research Colla"]}],"id":[{"id":"10.13039\/501100024749","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010269","name":"Wellcome Trust","doi-asserted-by":"publisher","award":["225577\/Z\/22\/ZSB"],"award-info":[{"award-number":["225577\/Z\/22\/ZSB"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Injectable anticipatory medications are routinely prescribed ahead of need in many countries to help manage distressing end-of-life symptoms. However, little is known about the lived experience of patients and informal caregivers as they navigate their prescription, supply and use.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To explore and map patient journeys in navigating anticipatory medication care, and to identify healthcare interactions with the greatest potential for enhancing patient and informal caregiver experiences of care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Qualitative secondary analysis of longitudinal interview data using framework analysis and patient journey mapping techniques.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/participants:<\/jats:title>\n                    <jats:p>\n                      Adults (18+) prescribed anticipatory medications (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      \u2009=\u20096), informal caregivers (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      \u2009=\u20099) and health care professionals involved in their care (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      \u2009=\u20095).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Visually mapping journeys highlighted that patients and informal caregivers\u2019 experiences of anticipatory medication processes varied greatly and were influenced by the context of care.\u2009All participants appreciated access to injectable medications for future symptom control. However, journeys repeatedly highlighted suboptimal information exchange between patients, informal caregivers and healthcare professionals, regarding their purpose and threshold for use. Navigating unfamiliar and complex end-of-life medication support systems was more challenging when patients lived alone or experienced communication difficulties.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Patient and informal caregiver experiences of timely symptom control could be improved by healthcare professionals having open and ongoing conversations about the role of anticipatory medications. Simplified and well-signposted routes for accessing healthcare professional advice and medication input are needed. Using journey mapping offers a novel way to visually illustrate different patient and informal caregivers lived experience and can be adapted for researching experiences of various care pathways.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163261437596","type":"journal-article","created":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T05:47:31Z","timestamp":1778046451000},"page":"1034-1046","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Mapping patient journeys: Exploring patient and informal carer experiences of injectable anticipatory medication care in the community to identify opportunities for practice improvements"],"prefix":"10.1177","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8037-2685","authenticated-orcid":false,"given":"Rosanna","family":"Fennessy","sequence":"first","affiliation":[{"name":"Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Artemis","family":"Paterson","sequence":"additional","affiliation":[{"name":"Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0362-4711","authenticated-orcid":false,"given":"James","family":"Ward","sequence":"additional","affiliation":[{"name":"Department of Engineering, University of Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8018-7706","authenticated-orcid":false,"given":"P. John","family":"Clarkson","sequence":"additional","affiliation":[{"name":"Department of Engineering, University of Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6772-2620","authenticated-orcid":false,"given":"Ben","family":"Bowers","sequence":"additional","affiliation":[{"name":"Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, UK"},{"name":"Department of Engineering, University of Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,5,5]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231152523"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1136\/spcare-2022-004080"},{"key":"e_1_3_3_4_2","unstructured":"Johansson T Pask S Goodrich J et al. Time to care: Findings from a nationally representative survey of experiences at the end of life in England and Wales. Marie Curie https:\/\/www.mariecurie.org.uk\/globalassets\/media\/documents\/policy\/beol-reports-2024\/beol-2024-time-to-care-report.pdf (September 2024 accessed 6 November 2024)."},{"key":"e_1_3_3_5_2","volume-title":"Care of dying adults in the last days of life","author":"National Institute for Health and Care Excellence (NICE)","year":"2015","unstructured":"National Institute for Health and Care Excellence (NICE). Care of dying adults in the last days of life. NICE, 2015."},{"key":"e_1_3_3_6_2","unstructured":"Safer Care Victoria. Anticipatory medicines statewide guidance for Victoria. 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