{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T09:27:14Z","timestamp":1786958834182,"version":"build-2736575974"},"reference-count":53,"publisher":"SAGE Publications","issue":"8","license":[{"start":{"date-parts":[[2026,5,21]],"date-time":"2026-05-21T00:00:00Z","timestamp":1779321600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Dutch Healthcare Support Fund","award":["PROM-18"],"award-info":[{"award-number":["PROM-18"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>High-quality palliative care is an international human right. Despite reduced life expectancy, people with severe mental illness face major disparities in access and quality.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>This study explored requirements for good palliative care for people with severe mental illness as perceived by stakeholders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>This Group Concept Mapping study used a mixed-methods participatory design with two phases: (1) an online brainstorming period (25\u2009days), in which participants could respond several times to the focus prompt about good palliative care for patients with severe mental illness, and (2) individual sorting and rating of statements, followed by data analysis using multidimensional scaling and hierarchical cluster analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/Participants:<\/jats:title>\n                    <jats:p>This study included 163 broadly defined stakeholders involved in severe mental illness care in the Netherlands, predominantly healthcare professionals, including client representatives and relatives.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Based on 98 unique statements derived from 515 responses, a concept map of seven clusters emerged: \u201cSelfcare for healthcare professionals,\u201d \u201cExpertise,\u201d \u201cCommunication in advance care planning (highest rated cluster),\u201d \u201cCare chain,\u201d \u201cOrganization and policy making,\u201d \u201cAdvance care planning\u201d and \u201cPatient centred care.\u201d Statement 66, \u201cCentralize the patient,\u201d was considered most important.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Good palliative care for people with severe mental illness is challenged by complexity, stigma and varied stakeholder demands. As basic requirements are often unmet in mental health care, individuals with severe mental illness are at increased risk of being deprived of their rights to receive quality palliative care. This study underscores the need to extend care recommendations and improve professional training, focusing on self-care and interdisciplinary education.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163261446791","type":"journal-article","created":{"date-parts":[[2026,5,22]],"date-time":"2026-05-22T06:43:28Z","timestamp":1779432208000},"page":"1094-1104","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Good palliative care for people with severe mental illnesses: A Group Concept Mapping study"],"prefix":"10.1177","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0009-0004-3298-1437","authenticated-orcid":false,"given":"Jojanneke","family":"Briek","sequence":"first","affiliation":[{"name":"Mental Health Center GGz Centraal, Amersfoort, The Netherlands"},{"name":"Department of Psychiatry, University Medical Center Groningen, University of Groningen, The Netherlands"},{"name":"BuurtzorgT, Dedemsvaart, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ajsha","family":"Shabani","sequence":"additional","affiliation":[{"name":"Mental Health Center GGz Centraal, Amersfoort, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Radboud M.","family":"Marijnissen","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, University Medical Center Groningen, University of Groningen, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heidi","family":"de Kam","sequence":"additional","affiliation":[{"name":"Mental Health Center GGz Centraal, Amersfoort, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard C.","family":"Oude Voshaar","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, University Medical Center Groningen, University of Groningen, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Didi","family":"Rhebergen","sequence":"additional","affiliation":[{"name":"Mental Health Center GGz Centraal, Amersfoort, The Netherlands"},{"name":"Psychiatry, Amsterdam UMC, VU University Medical Center, Amsterdam Public Health Research Institute, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,5,21]]},"reference":[{"key":"e_1_3_3_2_2","volume-title":"Kwaliteitskader palliatieve zorg Nederland","author":"IKNL\/Palliactief","year":"2017","unstructured":"IKNL\/Palliactief. Kwaliteitskader palliatieve zorg Nederland. IKNL\/Palliactief; 2017."},{"key":"e_1_3_3_3_2","unstructured":"NICE. End of life care for adults: service delivery. National Institute for Health and Care Excellence (NICE) 2019 okt. (NICE guideline)."},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2012.0394"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2007.02.022"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2009.03.003"},{"issue":"6","key":"e_1_3_3_7_2","article-title":"Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers","volume":"2013","author":"Gomes B","year":"2013","unstructured":"Gomes B, Calanzani N, Curiale V, et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013; 2013(6): CD007760.","journal-title":"Cochrane Database Syst Rev"},{"issue":"3","key":"e_1_3_3_8_2","first-page":"99","article-title":"A review of the trials which examine early integration of outpatient and home palliative care for patients with serious illnesses","volume":"4","author":"Davis MP","year":"2015","unstructured":"Davis MP, Temel JS, Balboni T, et al. A review of the trials which examine early integration of outpatient and home palliative care for patients with serious illnesses. Ann Palliat Med 2015; 4(3): 99\u2013121.","journal-title":"Ann Palliat Med"},{"key":"e_1_3_3_9_2","article-title":"Palliative care in illnesses other than cancer","volume":"370","author":"Maetens A.","year":"2020","unstructured":"Maetens A. Palliative care in illnesses other than cancer. BMJ 2020; 370: m2528.","journal-title":"BMJ"},{"key":"e_1_3_3_10_2","article-title":"Association between palliative care and healthcare outcomes among adults with terminal non-cancer illness: population based matched cohort study","volume":"370","author":"Quinn KL","year":"2020","unstructured":"Quinn KL, Stukel T, Stall NM, et al. Association between palliative care and healthcare outcomes among adults with terminal non-cancer illness: population based matched cohort study. BMJ 2020; 370: m2257.","journal-title":"BMJ"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-019-2078-7"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.28431"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.psym.2020.02.002"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291721002257"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1002\/wps.20128"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.eurpsy.2017.02.487"},{"key":"e_1_3_3_17_2","volume-title":"Quickscan Palliatieve Terminale Zorg in de Geestelijke Gezondheidszorg","author":"Veerbeek M.","year":"2009","unstructured":"Veerbeek M. Quickscan Palliatieve Terminale Zorg in de Geestelijke Gezondheidszorg. Trimbos-instituut, 2009."},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00406-020-01186-z"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2019.12.003"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-021-89726-y"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.111.092718"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1176\/ps.62.1.pss6201_0061"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnu.2013.05.003"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0265726"},{"key":"e_1_3_3_25_2","unstructured":"SONCOS. SONCOS NORMERINGRAPPORT 2 [Internet]. Stichting oncologische samenwerking 2014 https:\/\/www.soncos.org\/wp-content\/uploads\/2018\/08\/Normering-Rapport-SONCOS-Februari-2014.pdf (accessed 9 January 2025)."},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2023.1094038"},{"key":"e_1_3_3_27_2","volume-title":"Concept mapping for planning and evaluation","author":"Mary K","year":"2007","unstructured":"Mary K, William T. Concept mapping for planning and evaluation. Sage Publications, Inc, 2007, Vol. 50."},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1016\/0149-7189(89)90016-5"},{"key":"e_1_3_3_29_2","volume-title":"groupwisdom","author":"groupwisdom\u2122","year":"2022","unstructured":"groupwisdom\u2122. groupwisdom\u2122. Concept Systems, 2022."},{"key":"e_1_3_3_30_2","unstructured":"METC Isala klinieken Zwolle. Reference number 230302. 2024."},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.evalprogplan.2016.08.010"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610220000915"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-024-01381-y"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1136\/spcare-2023-004742"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2022.11086"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.29353"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.2024.3"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951522000980"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320956825"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.106.023960"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","DOI":"10.1177\/23821205231223321"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10728-008-0102-z"},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.1002\/pon.6138"},{"key":"e_1_3_3_44_2","doi-asserted-by":"publisher","DOI":"10.1177\/1078390316629960"},{"key":"e_1_3_3_45_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951519000087"},{"key":"e_1_3_3_46_2","doi-asserted-by":"publisher","DOI":"10.1177\/10499091211010722"},{"key":"e_1_3_3_47_2","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2019.25.9.444"},{"key":"e_1_3_3_48_2","volume-title":"Hannigan B, Edwards D, Anstey S, et al","author":"Hannigan B","year":"2022","unstructured":"Hannigan B, Edwards D, Anstey S, et al. Hannigan B, Edwards D, Anstey S, et al. NIHR Journals Library, 2022."},{"issue":"2","key":"e_1_3_3_49_2","first-page":"134","article-title":"Cancer screening, prevention, and treatment in people with mental illness","volume":"66","author":"Weinstein LC","year":"2016","unstructured":"Weinstein LC, Stefancic A, Cunningham AT, et al. Cancer screening, prevention, and treatment in people with mental illness. CA Cancer J Clin 2016; 66(2): 134\u2013151.","journal-title":"CA Cancer J Clin"},{"key":"e_1_3_3_50_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2013.284985"},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-018-0309-1"},{"key":"e_1_3_3_52_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951516000365"},{"key":"e_1_3_3_53_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.psym.2011.08.002"},{"key":"e_1_3_3_54_2","doi-asserted-by":"publisher","DOI":"10.1136\/spcare-2023-004684"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692163261446791","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/02692163261446791","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/02692163261446791","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T08:49:24Z","timestamp":1786956564000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/02692163261446791"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,21]]},"references-count":53,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1177\/02692163261446791"],"URL":"https:\/\/doi.org\/10.1177\/02692163261446791","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,21]]}}}