{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,30]],"date-time":"2026-08-30T12:14:16Z","timestamp":1788092056047,"version":"build-2803163510"},"reference-count":38,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,8,26]],"date-time":"2026-08-26T00:00:00Z","timestamp":1787702400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,26]],"date-time":"2026-08-26T00:00:00Z","timestamp":1787702400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Advance care planning is a core component of Palliative Care, yet how it is organized and used in practice remains variably described.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To map how advance care planning is put into practice within Perinatal\/Neonatal Palliative Care and identify contextual enablers and barriers across settings and stakeholder groups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>\n                      Scoping review registered on the Open Science Framework (\n                      <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"https:\/\/osf.io\/c3mkx\/overview\">https:\/\/osf.io\/c3mkx\/overview<\/jats:ext-link>\n                      ; May 2, 2025).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Data sources:<\/jats:title>\n                    <jats:p>MEDLINE, Web of Science, and Scopus (2014\u20132024). Participants included parents\/legal guardians, healthcare professionals, and infant\/dyad record-based data eligible for Perinatal\/Neonatal Palliative Care; Concept covered delivery, content, timing, documentation, and barriers\/enablers; Context was perinatal\/neonatal settings in any country. PRISMA-Scoping Review guidelines were followed; Joanna Briggs Institute critical appraisal tools were used. Data were synthesized narratively.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Ten studies were included, mostly from Europe. Advance care planning was consistently associated\u2014descriptively\u2014with clearer communication and more structured end-of-life decision-making, with sustained emphasis on infant comfort\/symptom management. Where birth\/comfort plans were standardized and accessible, documentation\/implementation improved; a before\u2013after analysis also reported gains in multidisciplinary communication, documentation of parents\u2019 views, clarity of end-of-life status, and use of comfort-oriented regimens. Parents\/families highlighted validation, preparedness, agency, and memory-making. Professional\/service-level factors underscored training, templates, early referral, and parallel planning. Concordance and validated parent-reported measures were rarely quantified.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Within Perinatal\/Neonatal Palliative Care, advance care planning organizes communication\/decisions while supporting infant comfort with standardized, shared plans. Practice should prioritize structured conversations, embedded documentation, early referral, and training; research should prospectively evaluate standardized pathways, measure parent-centered outcomes and concordance, and strengthen neonatal pharmacology.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163261478449","type":"journal-article","created":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T05:20:58Z","timestamp":1787808058000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Before birth and beyond: Advance care planning in perinatal and neonatal palliative care \u2013 A scoping review"],"prefix":"10.1177","author":[{"given":"Maria Beatriz","family":"Mariano-Menezes","sequence":"first","affiliation":[{"name":"Center for Palliative Medicine, Faculty of Medicine, University of Lisbon, Lisboa, Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4665-585X","authenticated-orcid":false,"given":"Paulo","family":"Reis-Pina","sequence":"additional","affiliation":[{"name":"Center for Palliative Medicine, Faculty of Medicine, University of Lisbon, Lisboa, Portugal"},{"name":"Acute Palliative Care Inpatient Unit, Local Health Unit of Santa Maria, Lisboa, Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,8,26]]},"reference":[{"key":"e_1_3_2_2_2","doi-asserted-by":"crossref","unstructured":"Moresco B Moore D. 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