{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T19:03:38Z","timestamp":1789671818914,"version":"4.0.1"},"reference-count":20,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T00:00:00Z","timestamp":1789430400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T00:00:00Z","timestamp":1789430400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100010049","name":"kingston university","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat Med"],"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Communication challenges are key barriers for people with intellectual disabilities in accessing palliative care. However, no studies to date have closely analysed the communication between people with intellectual disabilities and palliative care staff.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To assess feasibility and acceptability of conducting a Conversation Analysis study with people with intellectual disabilities and hospice staff.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>A small-scale Conversation Analysis pilot study was conducted. Hospice consultations between people with intellectual disabilities and staff were recorded, transcribed, and analysed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/Participants:<\/jats:title>\n                    <jats:p>Three consultations with three people with intellectual disabilities, one paid carer, three hospice nurses, and one welfare officer were video-recorded in a UK hospice between April and May 2025.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Study procedures were deemed feasible and acceptable, enabling data collection. Most hospice patients with intellectual disabilities lacked capacity to consent and\/or received in-home hospice care. This hindered recruitment due to data collection being restricted to hospice premises, and the Research Ethics Committee disallowing people who lack capacity to participate. Pain assessment was identified as a phenomenon of interest. Analysis showed an assessment involving multiple questions aimed at assessing frequency, severity, and management of the person\u2019s pain. The analysis displayed communicative challenges around brief patient answers with limited elaboration and how these were navigated by staff.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The Conversation Analysis pilot study was deemed feasible and acceptable. Analyses of pain assessments provided in-depth detail of the communication challenges and strategies employed to navigate them. This type of study and evidence can inform future communication and assessment guidelines.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/02692163261482008","type":"journal-article","created":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T11:44:03Z","timestamp":1789472643000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Exploring communication between people with intellectual disabilities and hospice staff: A conversation analysis pilot study"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9620-0290","authenticated-orcid":false,"given":"Andrea","family":"Bruun","sequence":"first","affiliation":[{"name":"Department of Public Health, Children\u2019s, Learning Disability and Mental Health Nursing, Kingston University London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7288-9529","authenticated-orcid":false,"given":"Irene","family":"Tuffrey-Wijne","sequence":"additional","affiliation":[{"name":"Department of Public Health, Children\u2019s, Learning Disability and Mental Health Nursing, Kingston University London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,9,15]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"crossref","unstructured":"Tuffrey-Wijne I McLaughlin D Curfs L et al. Defining consensus norms for palliative care of people with intellectual disabilities in Europe using Delphi methods: a white paper from the European Association of Palliative Care (EAPC). Palliat Med 2015; 30: 446\u2013455. https:\/\/doi.org\/10.1177\/0269216315600993","DOI":"10.1177\/0269216315600993"},{"key":"e_1_3_3_3_2","doi-asserted-by":"crossref","unstructured":"Adam E Sleeman KE Brearley S et al. The palliative care needs of adults with intellectual disabilities and their access to palliative care services: a systematic review. Palliat Med 2020; 34: 1006\u20131018. https:\/\/doi.org\/10.1177\/0269216320932774","DOI":"10.1177\/0269216320932774"},{"key":"e_1_3_3_4_2","doi-asserted-by":"crossref","unstructured":"Tuffrey-Wijne I Hogg J Curfs L. End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources. J Appl Res Intellect Disabil 2007; 20: 331\u2013344. https:\/\/doi.org\/10.1111\/j.1468-3148.2006.00350.x","DOI":"10.1111\/j.1468-3148.2006.00350.x"},{"key":"e_1_3_3_5_2","doi-asserted-by":"crossref","unstructured":"Ryan K Guerin S Dodd P et al. Communication contexts about illness death and dying for people with intellectual disabilities and life-limiting illness. Palliat Support Care 2011; 9: 201\u2013208. https:\/\/doi.org\/10.1017\/S1478951511000137","DOI":"10.1017\/S1478951511000137"},{"key":"e_1_3_3_6_2","doi-asserted-by":"crossref","unstructured":"Foo B Wiese M Curryer B et al. Specialist palliative care staff\u2019s varying experiences of talking with people with intellectual disability about their dying and death: a thematic analysis of in-depth interviews. Palliat Med 2021; 35: 738\u2013749. https:\/\/doi.org\/10.1177\/0269216321998207","DOI":"10.1177\/0269216321998207"},{"key":"e_1_3_3_7_2","doi-asserted-by":"crossref","unstructured":"Parry R. Communication in palliative care and about end of life: a state-of-the-art literature review of conversation-analytic research in healthcare. Res Lang Soc Interact 2024; 57: 127\u2013148. https:\/\/doi.org\/10.1080\/08351813.2024.2305048","DOI":"10.1080\/08351813.2024.2305048"},{"key":"e_1_3_3_8_2","doi-asserted-by":"crossref","unstructured":"Wu Y Zhang X. Examining conversation analysis in palliative care: a systematic review. Health Commun. Epub ahead of print 9 November 2024. https:\/\/doi.org\/10.1080\/10410236.2023.2301202.","DOI":"10.1080\/10410236.2023.2301202"},{"key":"e_1_3_3_9_2","doi-asserted-by":"crossref","unstructured":"Dooley J Webb J. \u201cAtypical interactions\u201d in healthcare: a state-of-the-art literature review of conversation-analytic research with reflections on equity diversity and inclusion. Res Lang Soc Interact 2024; 57: 109\u2013126. https:\/\/doi.org\/10.1080\/08351813.2024.2305038","DOI":"10.1080\/08351813.2024.2305047"},{"key":"e_1_3_3_10_2","doi-asserted-by":"crossref","unstructured":"Chinn D Bruun A Worrall D et al. Communicative dilemmas for practitioners in service encounters with people with intellectual disabilities: insights from a systematic review of conversation analytic research. J Appl Res Intellect Disabil 2026; 39: e70239. https:\/\/doi.org\/10.1111\/jar.70239","DOI":"10.1111\/jar.70239"},{"key":"e_1_3_3_11_2","doi-asserted-by":"crossref","unstructured":"Bruun A Tuffrey-Wijne I. Palliative care communication between patients with intellectual disabilities and hospice staff: a conversation analysis pilot study protocol. 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