{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T18:19:40Z","timestamp":1777918780506,"version":"3.51.4"},"reference-count":23,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[1996,1,1]],"date-time":"1996-01-01T00:00:00Z","timestamp":820454400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[1996,1]]},"abstract":"<jats:p>\n                    Many medical professionals feel that a choice of long-term ventilatory support leads to a life of hopeless desperation. We compared the sociodemographic, physical and psychological status of 18 amyotrophic lateral sclerosis\/motor neurone disease (ALS\/MND) patients on ventilatory support for 1 to 120 months with that of 126 nonventilatory-supported ALS\/MND patients. Patients filled out a comprehensive data form and completed ten psychological tests. A composite psychological status score was computed, representing a continuum from psychological distress to psychological well-being. Mann-Whitney and \u03c7\n                    <jats:sup>2<\/jats:sup>\n                    tests were used to compare the two groups. There were no significant differences in sociodemographic makeup, depression, hopelessness, overall quality of life or psychological well-being. However, ventilatory-supported patients had a more internal health locus of control. Many patients on ventilatory support were able to live high quality lives. When ventilatory support is an option, we suggest that medical professionals be supportive of the patient's choices and recognise that a decision for ventilatory support is probably the best predictor of an acceptable quality of life on a ventilator.\n                  <\/jats:p>","DOI":"10.1177\/026921639601000106","type":"journal-article","created":{"date-parts":[[2007,11,26]],"date-time":"2007-11-26T20:02:59Z","timestamp":1196107379000},"page":"35-41","source":"Crossref","is-referenced-by-count":43,"title":["Evaluation of the psychological status of ventilatory-supported patients with ALS\/MND"],"prefix":"10.1177","volume":"10","author":[{"given":"Evelvn R.","family":"McDonald","sequence":"first","affiliation":[{"name":"The New Road Map Foundation. Seattle, Washington"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Al","family":"Hillel","sequence":"additional","affiliation":[{"name":"Department of Otolarynology. Universitv of Washinaton. Seattle. Washinaton"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sue A.","family":"Wiedenfeld","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Behavioral Medicine, University of Washington, Seattle, Washington"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[1996,1,1]]},"reference":[{"key":"atypb1","doi-asserted-by":"publisher","DOI":"10.1002\/hed.2880110110"},{"key":"atypb2","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.43.2.438"},{"key":"atypb3","doi-asserted-by":"publisher","DOI":"10.1002\/ana.410120104"},{"key":"atypb4","doi-asserted-by":"publisher","DOI":"10.1097\/00002060-199404000-00012"},{"key":"atypb5","doi-asserted-by":"publisher","DOI":"10.1016\/S0025-6196(12)61577-8"},{"key":"atypb6","unstructured":"Gilgoff IS End stage Duchenne patients: choosing between respirator and natural death . In: Charash LI, Wolf SG, Kutscher AH, Lovelace RE, Hale MS eds. Psychosocial aspects of muscular dystrophy and allied diseases . Springfield, IL: Charles C Thomas , 1983: 301-07."},{"issue":"6","key":"atypb7","first-page":"16","volume":"4","author":"Frace RM","year":"1982","journal-title":"Today's OR Nurse"},{"issue":"2","key":"atypb8","first-page":"52","volume":"15","author":"Gries ML","year":"1988","journal-title":"Focus on Critical Care"},{"issue":"7","key":"atypb9","first-page":"651s","volume":"2","author":"Fischer DA","year":"1989","journal-title":"Eur Respir J"},{"issue":"6","key":"atypb10","first-page":"343","volume":"72","author":"Bach JR","year":"1993","journal-title":"Am J Phys Med Rehabil"},{"key":"atypb11","doi-asserted-by":"publisher","DOI":"10.1001\/archneur.1994.00540130027010"},{"key":"atypb12","unstructured":"McDonald ER Psychosocial-spiritual overview. In: Mitsumoto H, Norris FH, eds. Amyotrophic lateral sclerosis: a comprehensive guide to management. New York, NY: Demos Publications, 1994: 205-27."},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1159\/000110176"},{"key":"atypb14","doi-asserted-by":"publisher","DOI":"10.1037\/h0037562"},{"key":"atypb15","unstructured":"Beck AT, Rush AJ, Shaw BF, Emery G. Cognitive therapy of depression. New York, NY: Guilford Press, 1979: 425."},{"key":"atypb16","unstructured":"Spielberger CD, Johnson EH, Russell SF, Crane RJ, Jacobs GA, Worden TJ The experience and expression of anger: construction and validation of an anger expression scale. In: Chesney MA, Rosenman RH eds. Anger and hostility in cardiovascular and behavioral disorders. New York, NY: McGraw-Hill International Book Co, 1985: 5-30."},{"key":"atypb17","doi-asserted-by":"publisher","DOI":"10.2307\/2136404"},{"key":"atypb18","doi-asserted-by":"publisher","DOI":"10.1002\/1097-4679(197901)35:1<85::AID-JCLP2270350110>3.0.CO;2-R"},{"key":"atypb19","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006X.44.4.580"},{"key":"atypb20","doi-asserted-by":"publisher","DOI":"10.1037\/0022-3514.39.3.472"},{"key":"atypb21","doi-asserted-by":"publisher","DOI":"10.1177\/0265407587044007"},{"key":"atypb22","doi-asserted-by":"publisher","DOI":"10.1007\/BF00845124"},{"key":"atypb23","first-page":"11","author":"Norris FH","year":"1992","journal-title":"Bulletin"}],"container-title":["Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/026921639601000106","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/026921639601000106","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:46:03Z","timestamp":1777661163000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/026921639601000106"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[1996,1]]},"references-count":23,"journal-issue":{"issue":"1","published-print":{"date-parts":[[1996,1]]}},"alternative-id":["10.1177\/026921639601000106"],"URL":"https:\/\/doi.org\/10.1177\/026921639601000106","relation":{},"ISSN":["0269-2163","1477-030X"],"issn-type":[{"value":"0269-2163","type":"print"},{"value":"1477-030X","type":"electronic"}],"subject":[],"published":{"date-parts":[[1996,1]]}}}