{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T14:49:24Z","timestamp":1791557364155,"version":"4.3.4"},"reference-count":70,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T00:00:00Z","timestamp":1790899200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000051","name":"National Human Genome Research Institute","doi-asserted-by":"publisher","award":["R56HG014415"],"award-info":[{"award-number":["R56HG014415"]}],"id":[{"id":"10.13039\/100000051","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Med Decis Making"],"abstract":"<jats:sec>\n                    <jats:title>Introduction:<\/jats:title>\n                    <jats:p>Prenatal genetic screening and diagnostic tests (PS&amp;D) are a core component of the delivery of high-quality, evidence-based prenatal care. There is a paucity of evidence on how to structure decision-making processes that are responsive to rapid advances in prenatal genetics, perinatology, and neonatology, which complicate such decisions. We sought to explore patients\u2019 decision-making preferences as a pathway to support medical decisions about the informed use of prenatal genetic testing, which requires more than standardized counseling and underscores the importance of PS&amp;D.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>We conducted a qualitative preference study of pregnant and postpartum patients to characterize experiences with PS&amp;D. In-depth semi-structured interviews were conducted to explore decision-making needs and preferences regarding PS&amp;D. Demographics, reproductive history, and PS&amp;D use data were collected from the electronic medical record. Thematic analysis was used to identify leading themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      Most participants were \u226535\u2009y of age (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      \u2009=\u200948\/61; 78.7%) and had a prior pregnancy (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      \u2009=\u200942\/61; 68.9%). The analysis identified 2 superordinate themes related to patients\u2019 preferred decision-making approach needed to set the stage to make an informed choice about PS&amp;D: 1) a comprehensive approach in which the full scope of pretest and posttest options are outlined before using or declining PS&amp;D or 2) a step-by-step approach with pacing of information acquisition and decision-making in response to individual options.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Our findings suggest that supporting prenatal genetic testing decisions requires more than standardized counseling and underscores the importance of understanding patients\u2019 preferences for decision making and information delivery. These preferences should be considered alongside factors such as reproductive history and maternal age, which may further shape how testing options and outcomes are understood. Together, these findings reinforce the need for a more individualized approach to counseling in an increasingly complex prenatal testing landscape.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/0272989x261487434","type":"journal-article","created":{"date-parts":[[2026,10,3]],"date-time":"2026-10-03T05:55:12Z","timestamp":1791006912000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["A Conceptual Roadmap toward Informed Prenatal Genetic Screening and Diagnostic Testing: A Qualitative Study"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-2788-4611","authenticated-orcid":false,"given":"Miller S.","family":"Finkelstein","sequence":"first","affiliation":[{"name":"Women\u2019s and Children\u2019s Institute, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3082-5535","authenticated-orcid":false,"given":"John F. P.","family":"Bridges","sequence":"additional","affiliation":[{"name":"Department of Biomedical Informatics, College of Medicine, Ohio State University Wexner Medical Center, Columbus, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2811-1330","authenticated-orcid":false,"given":"Norah L.","family":"Crossnohere","sequence":"additional","affiliation":[{"name":"Division of General Internal Medicine, Department of Internal Medicine, Ohio State University Wexner Medical Center, Columbus, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3035-5104","authenticated-orcid":false,"given":"Christina","family":"Collart","sequence":"additional","affiliation":[{"name":"Women\u2019s and Children\u2019s Institute, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-2080-5757","authenticated-orcid":false,"given":"Lenicia","family":"Jenkins","sequence":"additional","affiliation":[{"name":"Women\u2019s and Children\u2019s Institute, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susannah","family":"Rose","sequence":"additional","affiliation":[{"name":"Department of Biomedical Informatics &amp; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6136-9256","authenticated-orcid":false,"given":"Megan","family":"Allyse","sequence":"additional","affiliation":[{"name":"Department of Bioethics, Case Western Reserve University School of Medicine, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6631-828X","authenticated-orcid":false,"given":"Marsha","family":"Michie","sequence":"additional","affiliation":[{"name":"Department of Bioethics, Case Western Reserve University School of Medicine, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2063-1876","authenticated-orcid":false,"given":"Michael B.","family":"Rothberg","sequence":"additional","affiliation":[{"name":"Center for Value-Based Care Research, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique","family":"Katsuki","sequence":"additional","affiliation":[{"name":"Women\u2019s and Children\u2019s Institute, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marissa","family":"Coleridge","sequence":"additional","affiliation":[{"name":"Center for Personalized Genetic Healthcare, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruth M.","family":"Farrell","sequence":"additional","affiliation":[{"name":"Women\u2019s and Children\u2019s Institute, Cleveland Clinic, Cleveland, OH, USA"},{"name":"Center for Personalized Genetic Healthcare, Cleveland Clinic, Cleveland, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,10,2]]},"reference":[{"issue":"76","key":"e_1_3_4_2_2","first-page":"168","article-title":"Clinical management guidelines for obstetrician\u2013gynecologists","volume":"133","author":"American College of Obstetricians and Gynecologists","year":"2003","unstructured":"American College of Obstetricians and Gynecologists. 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