{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,7]],"date-time":"2026-08-07T21:46:54Z","timestamp":1786139214271,"version":"build-2736575974"},"reference-count":19,"publisher":"SAGE Publications","issue":"9","license":[{"start":{"date-parts":[[2025,11,17]],"date-time":"2025-11-17T00:00:00Z","timestamp":1763337600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,11,17]],"date-time":"2025-11-17T00:00:00Z","timestamp":1763337600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100015348","name":"Cambia Health Foundation","doi-asserted-by":"publisher","award":["Sojourns Scholar Leadership award to Jung Kwak"],"award-info":[{"award-number":["Sojourns Scholar Leadership award to Jung Kwak"]}],"id":[{"id":"10.13039\/100015348","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Appl Gerontol"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:p>Palliative care needs of hospitalized persons living with dementia (PLWD) and their family caregivers remain poorly understood. This mixed-methods study explored caregivers\u2019 perspectives on challenges and support needs when hospitalized PLWD received specialist palliative care consultations. Thirty-two caregivers were recruited from two hospitals; 18 completed interviews and surveys, and 14 completed surveys only. Participants were racially and ethnically diverse (19% Black or African American, 34% Latino or Hispanic). Most identified as women (65%) and adult children (56%). Commonly reported challenges included managing health issues (59%), emotional distress (56%), and decision-making (47%). Thematic analysis of interviews revealed three themes: the value of palliative care in navigating end-of-life uncertainty in dementia, uncoordinated and reactive care during hospitalization, and lack of guidance for post-hospital transitions. While caregivers valued palliative care for emotional and decision-making support, findings underscore the need for earlier integration and improved coordination across hospital teams to better support families.<\/jats:p>","DOI":"10.1177\/07334648251389300","type":"journal-article","created":{"date-parts":[[2025,11,17]],"date-time":"2025-11-17T17:29:10Z","timestamp":1763400550000},"page":"1696-1702","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Family Caregivers\u2019 Perspectives on Challenges and Support Needs in Hospital-Based Palliative Care for Persons Living With Dementia"],"prefix":"10.1177","volume":"45","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0635-5457","authenticated-orcid":false,"given":"Jung","family":"Kwak","sequence":"first","affiliation":[{"name":"The University of Texas at Austin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8839-7617","authenticated-orcid":false,"given":"Anita","family":"Chary","sequence":"additional","affiliation":[{"name":"Center for Innovations in Quality"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Stayer","sequence":"additional","affiliation":[{"name":"Dell Medical School at the University of Texas at Austin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kwaku Duah","family":"Oppong","sequence":"additional","affiliation":[{"name":"The University of Texas at Austin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-0518-2706","authenticated-orcid":false,"given":"Sumin","family":"Yoon","sequence":"additional","affiliation":[{"name":"Center for Innovations in Quality"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Snehal","family":"Patel","sequence":"additional","affiliation":[{"name":"Dell Medical School at the University of Texas at Austin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth A.","family":"Kvale","sequence":"additional","affiliation":[{"name":"Geriatrics and Palliative Care, Baylor College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,11,17]]},"reference":[{"key":"e_1_3_8_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2018.09.008"},{"key":"e_1_3_8_3_1","unstructured":"Alzheimer\u2019s Association. (2024). 2024 Alzheimer\u2019s disease facts and figures. https:\/\/www.alz.org\/getmedia\/76e51bb6-c003-4d84-8019-e0779d8c4e8d\/alzheimers-facts-and-figures.pdf"},{"key":"e_1_3_8_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049909120966585"},{"key":"e_1_3_8_5_1","unstructured":"Center to Advance Palliative Care. (2022). Growth of palliative care in U.S. hospitals: 2022 snapshot (2000\u20132020). https:\/\/www.capc.org\/documents\/download\/1031"},{"key":"e_1_3_8_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2022.11.001"},{"key":"e_1_3_8_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.16712"},{"key":"e_1_3_8_8_1","volume-title":"Qualitative inquiry and research design: Choosing among five approaches","author":"Creswell J. W.","year":"2018","unstructured":"Creswell J. W., Poth C. N. (2018). Qualitative inquiry and research design: Choosing among five approaches (4th ed.). Sage Publications.","edition":"4"},{"key":"e_1_3_8_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.16458"},{"key":"e_1_3_8_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2018.10.494"},{"key":"e_1_3_8_11_1","doi-asserted-by":"publisher","DOI":"10.11124\/jbisrir-2011-151"},{"key":"e_1_3_8_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12073"},{"key":"e_1_3_8_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.17070"},{"key":"e_1_3_8_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163241234579"},{"key":"e_1_3_8_15_1","volume-title":"Center to advance palliative care and national palliative care research center","author":"Rogers M.","year":"2017","unstructured":"Rogers M., Dumanovsky T. (2017). How we work: Trends and insights in hospital palliative care. Center to advance palliative care and national palliative care research center. https:\/\/www.capc.org\/documents\/download\/400"},{"key":"e_1_3_8_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.16521"},{"key":"e_1_3_8_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_3_8_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216313493685"},{"key":"e_1_3_8_19_1","doi-asserted-by":"publisher","DOI":"10.1007\/s13311-021-01171-x"},{"key":"e_1_3_8_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/10499091241252685"}],"container-title":["Journal of Applied Gerontology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/07334648251389300","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/07334648251389300","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/07334648251389300","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,7]],"date-time":"2026-08-07T21:18:37Z","timestamp":1786137517000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/07334648251389300"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,11,17]]},"references-count":19,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1177\/07334648251389300"],"URL":"https:\/\/doi.org\/10.1177\/07334648251389300","relation":{},"ISSN":["0733-4648","1552-4523"],"issn-type":[{"value":"0733-4648","type":"print"},{"value":"1552-4523","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,11,17]]}}}