{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,3]],"date-time":"2026-05-03T10:31:25Z","timestamp":1777804285366,"version":"3.51.4"},"reference-count":43,"publisher":"SAGE Publications","issue":"11","license":[{"start":{"date-parts":[[2018,7,24]],"date-time":"2018-07-24T00:00:00Z","timestamp":1532390400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Child Neurol"],"published-print":{"date-parts":[[2018,10]]},"abstract":"<jats:p>Children and adolescents with cerebral palsy often receive botulinum toxin A (BoNT-A) to manage hypertonia. This qualitative study aimed to describe and categorize BoNT-A effects that parents observed using the WHO\u2019s International Classification of Functioning, Disability and Health (ICF) framework. An interpretive description methodology was used; semi-structured interviews were conducted with 15 parents of nonambulatory young people with cerebral palsy (mean age 10.2 years, SD 3.9, 7 males) who received BoNT-A. Parents reported BoNT-A effects on each ICF category. Through interpretive description, an overall theme emerged: \u201cfinding the right path to do what is best.\u201d Five subthemes included (1) Parents\u2019 hopes, (2) Parents\u2019 goals for their child, (3) Parents\u2019 learning what works, (4) Parents\u2019 reflections, and (5) Parents\u2019 destination. This study provides insights into parents\u2019 journeys of how they learned about BoNT-A effects in their child, which helped them to identify goals for future treatment.<\/jats:p>","DOI":"10.1177\/0883073818786567","type":"journal-article","created":{"date-parts":[[2018,7,24]],"date-time":"2018-07-24T07:39:09Z","timestamp":1532417949000},"page":"724-733","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":10,"title":["Effects of Botulinum Toxin Treatment in Nonambulatory Children and Adolescents With Cerebral Palsy: Understanding Parents\u2019 Perspectives"],"prefix":"10.1177","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7165-6678","authenticated-orcid":false,"given":"Linda","family":"Nguyen","sequence":"first","affiliation":[{"name":"CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Briano","family":"Di Rezze","sequence":"additional","affiliation":[{"name":"CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ronit","family":"Mesterman","sequence":"additional","affiliation":[{"name":"CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Rosenbaum","sequence":"additional","affiliation":[{"name":"CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jan Willem","family":"Gorter","sequence":"additional","affiliation":[{"name":"CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2018,7,24]]},"reference":[{"issue":"109","key":"bibr1-0883073818786567","first-page":"8","volume":"109","author":"Rosenbaum P","year":"2007","journal-title":"Dev Med Child Neurol Suppl"},{"key":"bibr2-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1136\/adc.66.2.204"},{"key":"bibr3-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1080\/09638280500158422"},{"key":"bibr4-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1016\/j.clp.2006.03.011"},{"key":"bibr5-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2008.03089.x"},{"key":"bibr6-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1017\/S0012162206001162"},{"key":"bibr7-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2011.03996.x"},{"key":"bibr8-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1017\/S0012162201000445"},{"key":"bibr9-0883073818786567","doi-asserted-by":"publisher","DOI":"10.2165\/00128072-200305010-00002"},{"key":"bibr10-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2431-12-120"},{"key":"bibr11-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1007\/s00702-008-0175-8"},{"key":"bibr12-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2012.04438.x"},{"key":"bibr13-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2010.03127.x"},{"key":"bibr14-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2010.03126.x"},{"key":"bibr15-0883073818786567","volume-title":"International Classification of Functioning, Disability and Health (ICF)","author":"World Health Organization","year":"2001"},{"key":"bibr16-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2007-0016"},{"key":"bibr17-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1016\/j.nurx.2006.01.008"},{"key":"bibr18-0883073818786567","doi-asserted-by":"publisher","DOI":"10.3109\/17518429709167364"},{"key":"bibr19-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1007\/s11832-010-0246-x"},{"key":"bibr20-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2006.10.017"},{"key":"bibr21-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-017-0974-x"},{"key":"bibr22-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1177\/160940690400300101"},{"issue":"2","key":"bibr23-0883073818786567","first-page":"306","volume":"27","author":"Folger R","year":"2017","journal-title":"Hum Resour Dev Rev"},{"key":"bibr24-0883073818786567","first-page":"157","volume-title":"Qualitative Data Analysis: Practical Strategies","author":"Bazeley P","year":"2013"},{"key":"bibr25-0883073818786567","first-page":"35","volume-title":"Handling Qualitative Data: A Practical Guide","author":"Richards L","year":"2015"},{"key":"bibr26-0883073818786567","first-page":"25","volume-title":"Interpretive Description","author":"Thorne S","year":"2016"},{"key":"bibr27-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315588501"},{"key":"bibr28-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1177\/104973202129120476"},{"key":"bibr29-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1177\/0883073812471430"},{"key":"bibr30-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2006.115055"},{"key":"bibr31-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12350"},{"key":"bibr32-0883073818786567","doi-asserted-by":"publisher","DOI":"10.7748\/paed.20.8.20.s22"},{"key":"bibr33-0883073818786567","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2016.1161841"},{"key":"bibr34-0883073818786567","doi-asserted-by":"publisher","DOI":"10.3109\/01942638.2011.631100"},{"key":"bibr35-0883073818786567","doi-asserted-by":"publisher","DOI":"10.2182\/cjot.06.10"},{"key":"bibr36-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1016\/j.paed.2016.04.012"},{"key":"bibr37-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1080\/J006v18n01_01"},{"key":"bibr38-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2011.04068.x"},{"key":"bibr39-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12097"},{"key":"bibr40-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1177\/000841749005700207"},{"key":"bibr41-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1007\/BF01530764"},{"key":"bibr42-0883073818786567","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2007.00550.x"},{"key":"bibr43-0883073818786567","doi-asserted-by":"publisher","DOI":"10.5014\/ajot.60.2.204"}],"container-title":["Journal of Child Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0883073818786567","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/0883073818786567","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0883073818786567","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T20:39:34Z","timestamp":1777495174000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0883073818786567"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,7,24]]},"references-count":43,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2018,10]]}},"alternative-id":["10.1177\/0883073818786567"],"URL":"https:\/\/doi.org\/10.1177\/0883073818786567","relation":{},"ISSN":["0883-0738","1708-8283"],"issn-type":[{"value":"0883-0738","type":"print"},{"value":"1708-8283","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,7,24]]}}}