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SMA affects not only children but entire families. SMA parents experience overall poorer mental health compared with parents of children without disabilities, impacting caregiving. However, their experiences and needs remain understudied. This study aimed to identify parent needs and recommendations for a parenting program. Semistructured interviews were conducted with 32 parents and analyzed using thematic analysis. Themes revolved around parent needs including respite care, greater access to the SMA community, own mental health, and education for health care professionals. Parents expressed interest in a parenting program that covered appropriate consequences, guidance on increasing child autonomy, SMA treatment information, and advice on preparing children for school. 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