{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,11]],"date-time":"2026-11-11T23:31:33Z","timestamp":1794439893230,"version":"4.9.1"},"reference-count":75,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2026,1,7]],"date-time":"2026-01-07T00:00:00Z","timestamp":1767744000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,1,7]],"date-time":"2026-01-07T00:00:00Z","timestamp":1767744000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Newcastle Biomedical Research Centre"},{"name":"National Institute for Health and Care Research","award":["NIHR301677"],"award-info":[{"award-number":["NIHR301677"]}],"id":[{"id":"https:\/\/ror.org\/0187kwz08","id-type":"ROR","asserted-by":"crossref"}]},{"name":"National Institute for Health and Care Research","award":["301677"],"award-info":[{"award-number":["301677"]}],"id":[{"id":"https:\/\/ror.org\/0187kwz08","id-type":"ROR","asserted-by":"crossref"}]},{"name":"The Michael J Fox Foundation for Parkinson\u2019s Research","award":["100000864-MJFF-022736"],"award-info":[{"award-number":["100000864-MJFF-022736"]}],"id":[{"id":"https:\/\/ror.org\/03arq3225","id-type":"ROR","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Geriatr Psychiatry Neurol"],"published-print":{"date-parts":[[2026,11]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Mobility impairments in Parkinson\u2019s disease (PD) significantly impact individuals\u2019 physical health, independence, and psychosocial wellbeing. In this review, mobility loss is used to refer to altered or impaired mobility (eg, reduced gait, balance difficulties, freezing of gait), rather than a complete loss of mobility. These changes affect daily functioning and quality of life. Carers also experience significant burden as they manage mobility issues. Understanding the implications of mobility loss in PD is essential for improving support for both people with PD and carers. This review explores impact of mobility loss on perceived independence and psychosocial wellbeing in people with PD and carers, providing deeper insight into the broader emotional and social consequences of the condition.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A systematic search of six health databases (Medline, Embase, PsycInfo, CINAHL, Scopus, Web of Science) was conducted using key terms related to mobility loss, independence, and psychosocial wellbeing in PD. Studies were included if they employed qualitative methods to explore experiences of mobility from people with PD and\/or carers. The methodological quality of studies was assessed using the NICE qualitative checklist, and reporting adhered to PRISMA guidelines. A meta-ethnographic approach was used to extract key themes and construct a comprehensive understanding of the findings.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Five key themes emerged: the struggle for independence and associated self-esteem, navigating personal relationships, perceived stigmatisation and social isolation, resilience and adaptation, and impact of mobility on carer wellbeing.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Findings highlight the need for comprehensive support systems that address the challenges of mobility loss in PD. Wearable technology presents a promising solution for personalised interventions. Future research should explore diverse populations of people with PD and include formal carers to develop a more holistic perspective of mobility-related challenges in PD caregiving.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/08919887251414664","type":"journal-article","created":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T06:57:03Z","timestamp":1767855423000},"page":"683-699","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Impact of Mobility Loss on Independence and Psychosocial Wellbeing in People With Parkinson\u2019s Disease and Carers: A Meta-Ethnography"],"prefix":"10.1177","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0009-0006-1800-7042","authenticated-orcid":false,"given":"Megan","family":"Hanrahan","sequence":"first","affiliation":[{"name":"Newcastle University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cameron","family":"Wilson","sequence":"additional","affiliation":[{"name":"University of Cambridge"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lynn","family":"Rochester","sequence":"additional","affiliation":[{"name":"Newcastle University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alison","family":"Keogh","sequence":"additional","affiliation":[{"name":"Trinity College Dublin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R\u00edona","family":"Mc Ardle","sequence":"additional","affiliation":[{"name":"Newcastle University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"Brittain","sequence":"additional","affiliation":[{"name":"Newcastle University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,1,7]]},"reference":[{"key":"e_1_3_5_2_2","doi-asserted-by":"publisher","DOI":"10.1007\/s12603-015-0589-6"},{"key":"e_1_3_5_3_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1532-5415.2005.53372.x"},{"key":"e_1_3_5_4_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0269615"},{"key":"e_1_3_5_5_2","unstructured":"World Health Organization (WHO). Decade of Healthy Ageing: Baseline Report. https:\/\/file:\/\/\/H:\/Downloads\/9789240017900-eng\/20; 2020.1."},{"key":"e_1_3_5_6_2","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2022.996903"},{"key":"e_1_3_5_7_2","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afac233"},{"key":"e_1_3_5_8_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2013.276566"},{"key":"e_1_3_5_9_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2008.02380.x"},{"key":"e_1_3_5_10_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10654-010-9506-9"},{"key":"e_1_3_5_11_2","doi-asserted-by":"publisher","DOI":"10.1111\/cns.13549"},{"key":"e_1_3_5_12_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-015-0299-0"},{"key":"e_1_3_5_13_2","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2023.1183289"},{"key":"e_1_3_5_14_2","doi-asserted-by":"publisher","DOI":"10.3389\/fnagi.2022.935841"},{"key":"e_1_3_5_15_2","doi-asserted-by":"publisher","DOI":"10.3389\/fnagi.2024.1399285"},{"key":"e_1_3_5_16_2","volume-title":"Parkinson\u2019s Disease Information Page","author":"National Institute of Neurological Disorders and Stroke","year":"2024","unstructured":"National Institute of Neurological Disorders and Stroke. Parkinson\u2019s Disease Information Page. National Institutes of Health; 2024. Retrieved from. https:\/\/www.ninds.nih.gov\/health-information\/disorders\/parkinsons-disease"},{"key":"e_1_3_5_17_2","unstructured":"Parkinson\u2019s Foundation. Understanding Parkinson\u2019s. n.d. Retrieved from. https:\/\/www.parkinson.org\/Understanding-Parkinsons"},{"key":"e_1_3_5_18_2","doi-asserted-by":"publisher","DOI":"10.3390\/s22030871"},{"key":"e_1_3_5_19_2","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare10071305"},{"key":"e_1_3_5_20_2","doi-asserted-by":"publisher","DOI":"10.1002\/gps.5870"},{"key":"e_1_3_5_21_2","doi-asserted-by":"publisher","DOI":"10.2147\/PROM.S160843"},{"key":"e_1_3_5_22_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2014.10.013"},{"key":"e_1_3_5_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/0891988717720302"},{"key":"e_1_3_5_24_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnss.2020.07.012"},{"key":"e_1_3_5_25_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2007.06.003"},{"issue":"1","key":"e_1_3_5_26_2","first-page":"7203259","article-title":"Stigma experienced by Parkinson\u2019s disease patients: a descriptive review of qualitative studies","volume":"2017","author":"Maffoni M","year":"2017","unstructured":"Maffoni M, Giardini A, Pierobon A, Ferrazzoli D, Frazzitta G. Stigma experienced by Parkinson\u2019s disease patients: a descriptive review of qualitative studies. Parkinsons Dis. 2017;2017(1):7203259.","journal-title":"Parkinsons Dis"},{"issue":"1","key":"e_1_3_5_27_2","first-page":"613592","article-title":"The experience of Parkinson\u2019s disease: a systematic review and meta\u2010ethnography","volume":"2014","author":"Soundy A","year":"2014","unstructured":"Soundy A, Stubbs B, Roskell C. The experience of Parkinson\u2019s disease: a systematic review and meta\u2010ethnography. Sci World J. 2014;2014(1):613592.","journal-title":"Sci World J"},{"key":"e_1_3_5_28_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-202299"},{"key":"e_1_3_5_29_2","doi-asserted-by":"publisher","DOI":"10.1002\/mdc3.14063"},{"key":"e_1_3_5_30_2","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-023-00439-0"},{"key":"e_1_3_5_31_2","unstructured":"Department of Health. The expert patient: A new approach to chronic disease management for the 21st Century. 2001. https:\/\/www.shfnf.co.uk\/wp-content\/uploads\/2014\/11\/DoH-expert-patient1.pdf."},{"key":"e_1_3_5_32_2","article-title":"Towards a new partnership between disabled people and health and care services: getting out voices heard","author":"Fenney D","year":"2022","unstructured":"Fenney D, Hadi F, Wellings D, Lennon E. Towards a new partnership between disabled people and health and care services: getting out voices heard. The King\u2019s Fund. 2022. https:\/\/www.kingsfund.org.uk\/publications\/partnership-disabled-people-health-care-services","journal-title":"The King\u2019s Fund"},{"key":"e_1_3_5_33_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11019-019-09896-5"},{"key":"e_1_3_5_34_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-202299"},{"key":"e_1_3_5_35_2","doi-asserted-by":"publisher","DOI":"10.1155\/2014\/613592"},{"issue":"6","key":"e_1_3_5_36_2","first-page":"527","article-title":"Living with Parkinson\u2019s disease: perceptions of illness and adjustment","volume":"15","author":"McKinlay A","year":"2018","unstructured":"McKinlay A, Grace RC, Dalrymple-Alford JC, Roger D. Living with Parkinson\u2019s disease: perceptions of illness and adjustment. Neuropsychology, Development, and Cognition. Section B, Aging, Neuropsychology and Cognition. 2018;15(6):527-545.","journal-title":"Neuropsychology, Development, and Cognition. Section B, Aging, Neuropsychology and Cognition"},{"issue":"6","key":"e_1_3_5_37_2","first-page":"722","article-title":"Psychosocial impacts of Parkinson\u2019s disease on individuals and caregivers","volume":"40","author":"Moore S","year":"2021","unstructured":"Moore S, Ali S, Sanderson J. Psychosocial impacts of Parkinson\u2019s disease on individuals and caregivers. Age Ageing. 2021;40(6):722-727.","journal-title":"Age Ageing"},{"issue":"9","key":"e_1_3_5_38_2","first-page":"1315","article-title":"Caregiver burden in Parkinson\u2019s disease","volume":"20","author":"Martinez-Martin P","year":"2015","unstructured":"Martinez-Martin P, Forjaz MJ, Frades-Payo B, et al. Caregiver burden in Parkinson\u2019s disease. Mov Disord. 2015;20(9):1315-1321.","journal-title":"Mov Disord"},{"issue":"5","key":"e_1_3_5_39_2","first-page":"509","article-title":"Caring for caregivers of people with Parkinson\u2019s disease: a systematic review of interventions","volume":"7","author":"Tan SB","year":"2020","unstructured":"Tan SB, Williams AF, Morris ME. Caring for caregivers of people with Parkinson\u2019s disease: a systematic review of interventions. Mov Disord Clin Pract. 2020;7(5):509-517.","journal-title":"Mov Disord Clin Pract"},{"key":"e_1_3_5_40_2","doi-asserted-by":"publisher","DOI":"10.1177\/08919887231195219"},{"key":"e_1_3_5_41_2","doi-asserted-by":"publisher","DOI":"10.1177\/0891988717720302"},{"key":"e_1_3_5_42_2","first-page":"1","article-title":"The subjective experience of family caregivers of people living with Parkinson\u2019s disease: a meta-ethnography of qualitative literature","volume":"34","author":"Chen Y","year":"2022","unstructured":"Chen Y, Zhou W, Hou L, Zhang X, Wang Q, GuYang JH. The subjective experience of family caregivers of people living with Parkinson\u2019s disease: a meta-ethnography of qualitative literature. Aging Clin Exp Res. 2022;34:1-12.","journal-title":"Aging Clin Exp Res"},{"key":"e_1_3_5_43_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijsu.2021.105906"},{"key":"e_1_3_5_44_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12874-018-0600-0"},{"key":"e_1_3_5_45_2","doi-asserted-by":"publisher","DOI":"10.1258\/135581902320432732"},{"key":"e_1_3_5_46_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781412985000"},{"key":"e_1_3_5_47_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-020-06049-w"},{"key":"e_1_3_5_48_2","unstructured":"National Institute for Health and Care Excellence. Quality appraisal checklist: qualitative studies. [accessed 2024 Mar 8]. Available from:https:\/\/www.nice.org.uk\/process\/pmg4\/chapter\/appendix-h-quality-appraisal-checklist-qualitative-studies"},{"key":"e_1_3_5_49_2","doi-asserted-by":"publisher","DOI":"10.1258\/1355819052801804"},{"key":"e_1_3_5_50_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0276588"},{"key":"e_1_3_5_51_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12883-020-01632-4"},{"key":"e_1_3_5_52_2","doi-asserted-by":"publisher","DOI":"10.1093\/ptj\/pzz117"},{"issue":"1","key":"e_1_3_5_53_2","first-page":"4598651","article-title":"The impact of living with Parkinson\u2019s disease: balancing within a web of needs and demands","volume":"2018","author":"Sj\u00f6dahl Hammarlund C","year":"2018","unstructured":"Sj\u00f6dahl Hammarlund C, Westergren A, \u00c5str\u00f6m I, Edberg AK, Hagell P. The impact of living with Parkinson\u2019s disease: balancing within a web of needs and demands. Parkinsons Dis. 2018;2018(1):4598651.","journal-title":"Parkinsons Dis"},{"key":"e_1_3_5_54_2","doi-asserted-by":"publisher","DOI":"10.1080\/11038128.2016.1234643"},{"key":"e_1_3_5_55_2","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2002.02245.x"},{"key":"e_1_3_5_56_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638280400000195"},{"key":"e_1_3_5_57_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2021.1955983"},{"key":"e_1_3_5_58_2","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2022.2047187"},{"key":"e_1_3_5_59_2","doi-asserted-by":"publisher","DOI":"10.1002\/mds.22106"},{"key":"e_1_3_5_60_2","doi-asserted-by":"publisher","DOI":"10.1177\/0891988714538696"},{"key":"e_1_3_5_61_2","doi-asserted-by":"publisher","DOI":"10.3390\/s22030871"},{"key":"e_1_3_5_62_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-212612"},{"key":"e_1_3_5_63_2","doi-asserted-by":"publisher","DOI":"10.1177\/1074840717745669"},{"key":"e_1_3_5_64_2","doi-asserted-by":"publisher","DOI":"10.1126\/science.847460"},{"key":"e_1_3_5_65_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-240137"},{"key":"e_1_3_5_66_2","unstructured":"National Institute for Health and Care Excellence. Parkinson\u2019s disease in adults (NICE guideline NG71). 2022. https:\/\/www.nice.org.uk\/guidance\/ng71\/resources\/parkinsons-disease-in-adults-pdf-1837629189061"},{"key":"e_1_3_5_67_2","unstructured":"National Institute for Health and Care Excellence. Dementia: assessment management and support for people living with dementia and their carers. 2018. https:\/\/www.nice.org.uk\/guidance\/ng97"},{"key":"e_1_3_5_68_2","doi-asserted-by":"publisher","DOI":"10.1002\/mds.26718"},{"key":"e_1_3_5_69_2","doi-asserted-by":"publisher","DOI":"10.1159\/000512513"},{"key":"e_1_3_5_70_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12883-020-02017-1"},{"key":"e_1_3_5_71_2","doi-asserted-by":"publisher","DOI":"10.1080\/14737167.2024.2410245"},{"key":"e_1_3_5_72_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216310385604"},{"key":"e_1_3_5_73_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpain.2023.1125914"},{"key":"e_1_3_5_74_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-94-017-8857-1_8"},{"key":"e_1_3_5_75_2","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006X.64.1.121"},{"key":"e_1_3_5_76_2","doi-asserted-by":"publisher","DOI":"10.3390\/nursrep14010033"}],"container-title":["Journal of Geriatric Psychiatry and Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/08919887251414664","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/08919887251414664","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/08919887251414664","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T06:35:20Z","timestamp":1792218920000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/08919887251414664"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,7]]},"references-count":75,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2026,11]]}},"alternative-id":["10.1177\/08919887251414664"],"URL":"https:\/\/doi.org\/10.1177\/08919887251414664","relation":{},"ISSN":["0891-9887","1552-5708"],"issn-type":[{"value":"0891-9887","type":"print"},{"value":"1552-5708","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,7]]}}}