{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,7]],"date-time":"2026-11-07T07:52:15Z","timestamp":1794037935668,"version":"4.8.0"},"reference-count":38,"publisher":"SAGE Publications","issue":"13","license":[{"start":{"date-parts":[[2024,9,17]],"date-time":"2024-09-17T00:00:00Z","timestamp":1726531200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100007949","name":"Swedish Rheumatism Association","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100007949","id-type":"DOI","asserted-by":"crossref"}]},{"name":"King Gustav V\u2019s 80th Year Foundation"},{"name":"ALF regional agreement on medical training and clinical research between Stockholm County Council and the Karolinska Institutet"},{"DOI":"10.13039\/501100013963","name":"Swedish Society of Nursing","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100013963","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Lupus"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Pain is one of the most frequently reported symptoms and often one of the first subjective symptoms in patients with systemic lupus erythematosus (SLE). A previous study indicated that most patients with SLE reported low levels of SLE-related pain. However, a subgroup of patients reported high levels of pain \u226540\u00a0mm (0-100\u00a0mm) and had a substantial symptom burden in terms of fatigue, anxiety, depression, and reduced health-related quality of life. Thus, there is a need to elucidate the implications of high levels of pain in everyday life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>This study explored the patient\u2019s experiences and implications of SLE-related pain in daily life and the support requested from healthcare providers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>A total of 20 patients, previously reported high levels of SLE-related pain intensity measuring \u226540\u00a0mm (0\u2013100\u00a0mm) in a research context at one or two occasions participated in individual semi-structured interviews, which were transcribed and analysed with content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The interviews revealed four main categories and 13 generic categories. SLE-associated pain was described by its multifaceted nature, exhibiting longstanding, unpredictable, migrating, and various physical sensations. The pain entailed multidimensional consequences, restricting everyday life by interfering with roles and relationships and causing various emotions, including existential thoughts. The informants used comprehensive strategies to deal with the pain, including their inner resources, support from family and significant others, and pharmaceuticals and relieving treatments. They expressed the need for security and acknowledgement, which involved individualized support and accessibility of healthcare.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This study provides comprehensive insights into the nature and multifaceted impact of SLE-related pain in different dimensions of the informants\u2019 daily lives. Except for medications the informants used several strategies, including their inner resources and support from family and others, to manage the pain. Support requested from healthcare providers by the informants included understanding, compassion, individualized care and accessibility.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/09612033241284093","type":"journal-article","created":{"date-parts":[[2024,9,17]],"date-time":"2024-09-17T13:44:36Z","timestamp":1726580676000},"page":"1435-1445","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["The experience and implications of pain in systemic lupus erythematosus: A qualitative interview study focusing on the patient\u2019s perspective"],"prefix":"10.1177","volume":"33","author":[{"given":"Eva","family":"Waldheim","sequence":"first","affiliation":[{"name":"Center for Rheumatology, Academic Specialist Center, Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4258-5348","authenticated-orcid":false,"given":"Elisabet","family":"Welin","sequence":"additional","affiliation":[{"name":"School of Health Sciences, \u00d6rebro University, \u00d6rebro, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Bergman","sequence":"additional","affiliation":[{"name":"Department of Public Health and Community Medicine, Primary Health Care Unit, Institute of Medicine, The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden"},{"name":"Department of Clinical Sciences, Rheumatology, Lund University, Lund, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7432-2756","authenticated-orcid":false,"given":"Susanne","family":"Pettersson","sequence":"additional","affiliation":[{"name":"Department of Rheumatology, Medical unit Gastroenterology, Dermatology and Rheumatology, Karolinska University Hospital, Stockholm, Sweden"},{"name":"Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,9,17]]},"reference":[{"key":"bibr1-09612033241284093","doi-asserted-by":"publisher","DOI":"10.7759\/cureus.30330"},{"key":"bibr2-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2016.39"},{"key":"bibr3-09612033241284093","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17041315"},{"key":"bibr4-09612033241284093","doi-asserted-by":"publisher","DOI":"10.3109\/03009742.2012.677857"},{"key":"bibr5-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1177\/0961203312468625"},{"key":"bibr6-09612033241284093","first-page":"74","volume":"41","author":"Kapsala NN","year":"2023","journal-title":"Clin Exp Rheumatol"},{"key":"bibr7-09612033241284093","doi-asserted-by":"publisher","DOI":"10.4081\/reumatismo.2014.762"},{"key":"bibr8-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1177\/0961203320983445"},{"key":"bibr9-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1046\/j.1526-4637.2003.03001.x"},{"key":"bibr10-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1002\/msc.220"},{"key":"bibr11-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2004.03.015"},{"key":"bibr12-09612033241284093","doi-asserted-by":"publisher","DOI":"10.3200\/BMED.35.1.5-13"},{"key":"bibr13-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2015.05.022"},{"key":"bibr14-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-008-9361-2"},{"key":"bibr15-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1177\/0961203313502109"},{"key":"bibr16-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1007\/s10067-018-4079-1"},{"key":"bibr17-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1002\/art.1780251101"},{"key":"bibr18-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0232076"},{"key":"bibr19-09612033241284093","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"bibr20-09612033241284093","unstructured":"World Health Organization.\n                      The constitution of the world health organization\n                      [Internet]. 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