{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T21:14:03Z","timestamp":1777929243079,"version":"3.51.4"},"reference-count":44,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T00:00:00Z","timestamp":1764115200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Lupus"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>LupusPRO is a disease-targeted, patient-reported outcome measure developed for assessing the quality of life in patients with systemic lupus erythematosus. Initially, the questionnaire was validated among U.S. patients of varied ethnic backgrounds and genders. This study aims to carry out a cross-cultural adaptation and validation of the Polish-translated version of LupusPRO.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>We administered the Polish version of LupusPRO along with the 36-Item Short Form Health Survey (SF-36) and EQ-5D-5L questionnaire, and the Polish modification of the Hospital Anxiety and Depression Scale (HADS-M). At the same time, we collected demographics and clinical characteristics. Disease activity, damage, and exacerbation were assessed using SELENA-SLEDAI, SLICC\/ACR DI and LFA. Furthermore, we tested internal consistency reliability (measured with Cronbach\u2019s alpha), test-retest reliability (using r-Pearson correlation coefficient), convergent validity (against corresponding domains of SF-36) and criterion validity (against disease activity, damage and EQ-VAS), and known group validity.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 199 (91% females) patients with SLE with a mean age of 42.6 \u00b1 12.62\u00a0years participated in the study. We observed that the mean SELENA-SLEDAI reached 5.3 (\u00b15.9) points, while SLICC\/ACR DI was at 1.3 (\u00b12.0) points. The internal consistency reliability of LupusPRO domains ranged between 0.737 and 0.925 (except for Lupus Symptoms, Social Support, Coping, and Satisfaction with care). For all domains except Social Support, test-retest reliability exceeded 0.7. Convergent validity with corresponding domains of the SF-36 was good (r &gt; 0.5). All health-related quality of life domains performed well against disease activity and damage measures, establishing its criterion validity. Confirmatory factor analysis showed a satisfactory fit. (\u00b1 expression of range).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The Polish version of LupusPRO has proved to have fair psychometric properties among Polish patients with SLE.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/09612033251401647","type":"journal-article","created":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T23:19:29Z","timestamp":1764199169000},"page":"57-64","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["The polish validation of a disease-specific patient-reported outcome measure of systemic lupus erythematosus"],"prefix":"10.1177","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-8661-501X","authenticated-orcid":false,"given":"A","family":"P\u0119kala","sequence":"first","affiliation":[{"name":"National Institute of Geriatrics, Rheumatology and Rehabilitation"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8460-2751","authenticated-orcid":false,"given":"M","family":"Jolly","sequence":"additional","affiliation":[{"name":"Rush University Medical Center"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"K","family":"Fronczyk","sequence":"additional","affiliation":[{"name":"University of Warsaw"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Z","family":"Czuszy\u0144ska","sequence":"additional","affiliation":[{"name":"Medical University of Gdansk"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M","family":"Sierakowska","sequence":"additional","affiliation":[{"name":"Medical University of Bialystok"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M","family":"Szmyrka-Kaczmarek","sequence":"additional","affiliation":[{"name":"Wroclaw Medical University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M","family":"Olesi\u0144ska","sequence":"additional","affiliation":[{"name":"National Institute of Geriatrics, Rheumatology and Rehabilitation"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,11,26]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203319828519"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.47102\/annals-acadmedsg.V36N2p115"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keh392"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-199206000-00002"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(95)00112-K"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1016\/0168-8510(90)90421-9"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1002\/art.23339"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.081022"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1023\/A:1025176407776"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keh605"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2007.086009"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.091277"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.semarthrit.2011.12.005"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.121129"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203312474086"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203316682100"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203319880340"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203313476359"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22448"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10067-013-2345-9"},{"issue":"10","key":"e_1_3_3_22_2","first-page":"1776","article-title":"Validation of the French version of lupus patient reported outcome (LupusPRO), a disease-specific patient reported outcome for lupus patients [abstract]","volume":"68","author":"Devilliers H","year":"2016","unstructured":"Devilliers H, Jolly M, Samson M, et al. 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