{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T12:26:34Z","timestamp":1787660794058,"version":"build-2736575974"},"reference-count":18,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2026,6,17]],"date-time":"2026-06-17T00:00:00Z","timestamp":1781654400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,17]],"date-time":"2026-06-17T00:00:00Z","timestamp":1781654400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Lupus"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study examined the lived experiences of women with lupus and their primary support persons to better understand the effects associated with navigating university\/college with lupus.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Five women with lupus and five primary support persons (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 10) were recruited from Southern Ontario. One-on-one semi-structured interviews were conducted with participants. Reflexive thematic analysis was used to analyze verbatim transcripts.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Two salient themes, (1)\n                      <jats:italic toggle=\"yes\">Lupus is a part of me<\/jats:italic>\n                      , and (2)\n                      <jats:italic toggle=\"yes\">Lupus does not exist in a bubble<\/jats:italic>\n                      , were identified, each with associated sub-themes.\n                      <jats:italic toggle=\"yes\">Lupus is a part of me<\/jats:italic>\n                      discussed how lupus was part of participants everyday lives and how it became their new normal following symptom onset.\n                      <jats:italic toggle=\"yes\">Lupus does not exist in a bubble<\/jats:italic>\n                      explored the ongoing challenges individuals and support persons experienced due to the lack of knowledge within healthcare, education, and society.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Women with lupus who are navigating university endure unique challenges in addition to school-related demands. Similarly, primary support persons who assisted throughout this navigation period encountered several individual and situational hardships due to the nature of lupus. Education for healthcare professionals, universities, and individuals with lived experience is warranted, along with more support services, to help navigate university\/college more effectively.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/09612033261461992","type":"journal-article","created":{"date-parts":[[2026,6,17]],"date-time":"2026-06-17T11:59:41Z","timestamp":1781697581000},"page":"1048-1057","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["The lived experiences of woman navigating university with lupus and their primary support persons"],"prefix":"10.1177","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9248-8837","authenticated-orcid":false,"given":"Hailey A.","family":"O\u2019Neil","sequence":"first","affiliation":[{"name":"Wilfrid Laurier University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Misha","family":"Behi","sequence":"additional","affiliation":[{"name":"Wilfrid Laurier University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paula C.","family":"Fletcher","sequence":"additional","affiliation":[{"name":"Wilfrid Laurier University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,6,17]]},"reference":[{"key":"e_1_3_5_2_2","unstructured":"Lupus Foundation of America. Lupus facts and statistics. 2021. Available from: https:\/\/www.lupus.org\/resources\/lupus-facts-and-statistics"},{"key":"e_1_3_5_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203309355810"},{"key":"e_1_3_5_4_2","doi-asserted-by":"publisher","DOI":"10.1177\/0961203316640913"},{"key":"e_1_3_5_5_2","doi-asserted-by":"publisher","DOI":"10.3390\/children10061006"},{"key":"e_1_3_5_6_2","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.191004"},{"key":"e_1_3_5_7_2","doi-asserted-by":"publisher","DOI":"10.3233\/WOR-162477"},{"key":"e_1_3_5_8_2","doi-asserted-by":"publisher","DOI":"10.1002\/capr.12227"},{"key":"e_1_3_5_9_2","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2021.1907549"},{"key":"e_1_3_5_10_2","volume-title":"Interpretive phenomenological analysis: theory, method & research","author":"Smith JA","year":"2009","unstructured":"Smith JA, Flowers P, Larkin M. Interpretive phenomenological analysis: theory, method & research. Sage, 2009."},{"key":"e_1_3_5_11_2","volume-title":"Qualitative inquiry and research design: choosing among the five approaches","author":"Creswell JW","year":"2013","unstructured":"Creswell JW. Qualitative inquiry and research design: choosing among the five approaches. 3rd ed. Sage Publications, 2013.","edition":"3"},{"key":"e_1_3_5_12_2","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_3_5_13_2","doi-asserted-by":"publisher","DOI":"10.4135\/9781483384511"},{"issue":"2","key":"e_1_3_5_14_2","first-page":"41","article-title":"The role of family caregivers for people with chronic illness","volume":"94","author":"Goldberg A","year":"2011","unstructured":"Goldberg A, Rickler KS. The role of family caregivers for people with chronic illness. Med Health R I 2011; 94(2): 41\u201342.","journal-title":"Med Health R I"},{"key":"e_1_3_5_15_2","doi-asserted-by":"publisher","DOI":"10.1080\/10810730902814079"},{"key":"e_1_3_5_16_2","doi-asserted-by":"publisher","DOI":"10.18278\/jep.2.2.5"},{"key":"e_1_3_5_17_2","doi-asserted-by":"publisher","DOI":"10.1177\/1077558719892349"},{"key":"e_1_3_5_18_2","doi-asserted-by":"publisher","DOI":"10.1370\/afm.1224"},{"key":"e_1_3_5_19_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2016.07.039"}],"container-title":["Lupus"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/09612033261461992","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/09612033261461992","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/09612033261461992","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T12:05:30Z","timestamp":1787659530000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/09612033261461992"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,17]]},"references-count":18,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1177\/09612033261461992"],"URL":"https:\/\/doi.org\/10.1177\/09612033261461992","relation":{},"ISSN":["0961-2033","1477-0962"],"issn-type":[{"value":"0961-2033","type":"print"},{"value":"1477-0962","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,17]]}}}