{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,31]],"date-time":"2026-10-31T16:23:08Z","timestamp":1793463788865,"version":"4.5.0"},"reference-count":40,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2025,3,4]],"date-time":"2025-03-04T00:00:00Z","timestamp":1741046400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,3,4]],"date-time":"2025-03-04T00:00:00Z","timestamp":1741046400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100001826","name":"ZonMw","doi-asserted-by":"publisher","award":["844001310"],"award-info":[{"award-number":["844001310"]}],"id":[{"id":"10.13039\/501100001826","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Nurs Ethics"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:p>\n                    Family care\u2014when partners, relatives, or other proxies care for each other in case of illness, disability, or frailty\u2014is increasingly considered an important pillar for the sustainability of care systems. For many people, taking on a caring role is self-evident. Especially in a palliative care context, however, family care can be challenging. Witnessing caregivers\u2019 challenges may prompt compassionate nurses to undertake actions to reduce burden by adjusting tasks or activities. Using a care ethical approach, this theoretical paper aims to provide nurses with an alternative perspective on caregiver burden and support. Drawing on the concepts of relationality and contextuality, we explain that family care often is not a well-demarcated or actively chosen task. Instead, it is a practice of responding to an all-encompassing \u201ccall\u201d to care flowing from a relationship, within a social and cultural context where norms, motivations, and expectations shape people\u2019s (sometimes limitless) care. We consider relational interdependence at the root of persisting in care provision. The question is then whether self-sacrifice is a problem that nurses should immediately solve. In ideal circumstances, self-sacrifice is the result of a conscious balancing act between values, but family care in the context of serious illness barely provides room for reflection. Yet, instant attempts to alleviate burden may overlook family caregivers\u2019 values and the inherent moral ambiguities and\/or ambivalent feelings within family care. Family care is complex and highly personal, as is finding an adequate balance in fulfilling one\u2019s sometimes conflicting values, motivations, and social expectations. Therefore, we suggest that caregiver experiences should always be interpreted in an explorative dialogue, focused on what caring means to a particular family caregiver. Nurses do not have to liberate family caregivers\n                    <jats:italic>from<\/jats:italic>\n                    the situation but should support them\n                    <jats:italic>in<\/jats:italic>\n                    whatever overwhelms or drives them in standing-by their loved ones until the end.\n                  <\/jats:p>","DOI":"10.1177\/09697330251324294","type":"journal-article","created":{"date-parts":[[2025,3,5]],"date-time":"2025-03-05T04:36:12Z","timestamp":1741149372000},"page":"1873-1885","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":9,"title":["A care ethical perspective on family caregiver burden and support"],"prefix":"10.1177","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8430-2564","authenticated-orcid":false,"given":"Maaike","family":"Haan","sequence":"first","affiliation":[{"name":"Radboud University Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jelle","family":"van Gurp","sequence":"additional","affiliation":[{"name":"Radboud University Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marianne","family":"Boenink","sequence":"additional","affiliation":[{"name":"Radboud University Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gert","family":"Olthuis","sequence":"additional","affiliation":[{"name":"Radboud University Medical Center"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,3,4]]},"reference":[{"key":"e_1_3_4_2_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216314565706"},{"key":"e_1_3_4_3_2","article-title":"Are family carers part of the care team providing end-of-life care? 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The modified caregiver strain index (MCSI). J Gerontol Nurs 2013; 33: 19\u201326.","journal-title":"J Gerontol Nurs"},{"key":"e_1_3_4_25_2","doi-asserted-by":"publisher","DOI":"10.1023\/A:1012048907443"},{"key":"e_1_3_4_26_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11019-018-9873-7"},{"key":"e_1_3_4_27_2","doi-asserted-by":"publisher","DOI":"10.1177\/0969733010388926"},{"key":"e_1_3_4_28_2","doi-asserted-by":"publisher","DOI":"10.1177\/0969733012473772"},{"key":"e_1_3_4_29_2","volume-title":"Moral boundaries. A political argument for an ethic of care","author":"Tronto JC","year":"1993","unstructured":"Tronto JC. Moral boundaries. A political argument for an ethic of care. 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