{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T18:32:34Z","timestamp":1790706754636,"version":"4.1.0"},"reference-count":34,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2020,11,30]],"date-time":"2020-11-30T00:00:00Z","timestamp":1606694400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Pediatr Oncol Nurs"],"published-print":{"date-parts":[[2021,3]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Understanding parents\u2019 experiences is a prerequisite to developing interventions that are sensitive to needs of children and families. In China, little is known about parental experiences of having a young child with acute lymphoblastic leukemia (ALL). This phenomenological study aimed to describe parental experiences of having a young child with ALL in China.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method:<\/jats:title>\n                    <jats:p>Ten parents, recruited in central China using purposive sampling, participated in face-to-face, in-depth interviews using Haase\u2019s adaptation of Colaizzi\u2019s phenomenological method.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Five theme categories were identified: (a) The Cancer Diagnosis as a Terrible Disaster\u2014The Sky is Falling, (b) Fighting the Beast, (c) Putting on a Happy Face and Other Coping Strategies, (d) Diagnosis Disclosure: If We Tell and How to Tell, and (e) Hope-Filled Expectations: Returning to Normal Life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Parents put their child\u2019s health as their top priority. They strive to manage uncertainty about prognosis and cope with enormous pressures caused by children\u2019s suffering, financial burden, and stigma. Parents also express their resilience and hope throughout their child\u2019s cancer journey. Support services to strengthen specific families\u2019 protective factors (i.e., family\/community support, hope, and positive coping) are needed to foster resilience and quality of life. Health care professionals should systematically assess parents\u2019 needs, provide validated education materials, and implement tailored interventions across the cancer continuum. Public education and advocacy about cancer is also necessary to decrease cancer-related stigma, and provide financial aid and health care resources in pediatric oncology.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1043454220975463","type":"journal-article","created":{"date-parts":[[2020,11,30]],"date-time":"2020-11-30T08:07:03Z","timestamp":1606723623000},"page":"94-104","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":40,"title":["Parents\u2019 Experiences of Having a Young Child With Acute Lymphoblastic Leukemia in China"],"prefix":"10.1177","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6833-6131","authenticated-orcid":false,"given":"Qian","family":"Liu","sequence":"first","affiliation":[{"name":"Department of Respiratory and Critical Care Medicine, Zhongnan Hospital of Wuhan University, Wuhan, China"},{"name":"School of Health Sciences, Wuhan University, Wuhan, China"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcia A.","family":"Petrini","sequence":"additional","affiliation":[{"name":"Faculty of Nursing Chiang Mai University, Chiang Mai, Thailand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dan","family":"Luo","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Wuhan University, Wuhan, China"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bing Xiang","family":"Yang","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Wuhan University, Wuhan, China"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jiong","family":"Yang","sequence":"additional","affiliation":[{"name":"Department of Respiratory and Critical Care Medicine, Zhongnan Hospital of Wuhan University, Wuhan, China"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joan E.","family":"Haase","sequence":"additional","affiliation":[{"name":"School of Nursing, Indiana University, Indianapolis, IN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,11,30]]},"reference":[{"key":"bibr1-1043454220975463","doi-asserted-by":"crossref","unstructured":"Aburn G., Gott M. 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