{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T01:19:28Z","timestamp":1789175968287,"version":"build-2803163510"},"reference-count":51,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2020,2,13]],"date-time":"2020-02-13T00:00:00Z","timestamp":1581552000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000320","name":"alzheimer\u2019s society","doi-asserted-by":"publisher","award":["292"],"award-info":[{"award-number":["292"]}],"id":[{"id":"10.13039\/501100000320","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Qual Health Res"],"published-print":{"date-parts":[[2020,6]]},"abstract":"<jats:p>There is limited global evidence exploring perceptions of dementia among people with intellectual disabilities. This article presents findings from the first known study where an inclusive research team, including members with intellectual disability, used photovoice methodology to visually represent views of people with intellectual disabilities and dementia. Drawing on Freire\u2019s empowerment pedagogy, the study aims were consistent with global photovoice aims: enabling people to visually record critical dialogue about dementia through photography and social change. We investigated the benefits and challenges of photovoice methodology with this population and sought to identify perspectives of dementia from people with intellectual disabilities. Data collected identified issues such as peers \u201cdisappearing\u201d and the importance of maintaining friendship as dementia progressed. Although reaching policymakers is a key aim of photovoice, this may not always be achievable, suggesting that revisiting Freire\u2019s original methodological aims may lead to improved outcomes in co-produced research with marginalized groups.<\/jats:p>","DOI":"10.1177\/1049732319901127","type":"journal-article","created":{"date-parts":[[2020,2,13]],"date-time":"2020-02-13T06:51:24Z","timestamp":1581576684000},"page":"1019-1032","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":28,"title":["Revisiting Photovoice: Perceptions of Dementia Among Researchers With Intellectual Disability"],"prefix":"10.1177","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0000-3589","authenticated-orcid":false,"given":"Karen","family":"Watchman","sequence":"first","affiliation":[{"name":"University of Stirling, Stirling, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Mattheys","sequence":"additional","affiliation":[{"name":"University of Stirling, Stirling, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Doyle","sequence":"additional","affiliation":[{"name":"University of Stirling, Stirling, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Louise","family":"Boustead","sequence":"additional","affiliation":[{"name":"University of Stirling, Stirling, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9727-7871","authenticated-orcid":false,"given":"Orlando","family":"Rincones","sequence":"additional","affiliation":[{"name":"University of Stirling, Stirling, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,2,13]]},"reference":[{"key":"bibr1-1049732319901127","doi-asserted-by":"crossref","unstructured":"Akkerman A., Janssen C. 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Reflections on doing inclusive research in the \u201cmaking life good in the community\u201d study. Journal of Intellectual and Developmental Disability, 35(2), 53\u201361. https:\/\/doi.org\/10.3109\/13668251003716425","DOI":"10.3109\/13668251003716425"},{"key":"bibr7-1049732319901127","doi-asserted-by":"crossref","unstructured":"Booth T., Booth W. (2003). In the frame: Photovoice and mothers with learning difficulties. Disability & Society, 18(4), 431\u2013442. https:\/\/doi.org\/10.1080\/0968759032000080986","DOI":"10.1080\/0968759032000080986"},{"key":"bibr8-1049732319901127","unstructured":"Bossler A. M. (2016). Exploring the process and potential of photovoice with culturally and linguistically diverse adults with intellectual\/developmental disabilities [Doctoral thesis, University of Hawaii]. https:\/\/www.semanticscholar.org\/paper\/Exploring-the-process-and-potential-of-Photovoice-Bossler\/0d32e935af01699733efc36e24cf28760ad94a5e"},{"key":"bibr9-1049732319901127","unstructured":"Brake L. R., Schleien S. J., Miller K. D., Walton G. (2012). Photovoice: A tour through the camera lens of self-advocates. Social Advocacy & Systems Change, 3, 44\u201353. http:\/\/sites.cortland.edu\/sasc\/wp-content\/uploads\/sites\/12\/2012\/10\/Brake_etal_Photovoice.pdf"},{"key":"bibr10-1049732319901127","doi-asserted-by":"crossref","unstructured":"Braun V., Clarke V. (2006). Using thematic analysis in psychology. 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