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Using an extreme citizen science approach, we engaged people with disability as active partners in gathering data through qualitative surveys and focus groups. Framework Analysis was employed to ensure the validity of findings while privileging the voices of people with lived experience of disability. Dignity was contingent on the acknowledgement of personhood and the delivery of human rights. Our research identified five key aspects to maintain and protect dignity: (1) acknowledging personhood; (2) recognising people with disability as decision-makers of their lives; (3) realising the right to access information; (4) maintaining the right to privacy; and (5) eliminating or minimising barriers to accessibility and inclusion. Undignified experiences that resulted from a lack of acknowledgement negatively affected participants\u2019 wellbeing, and healthcare settings were identified as particularly challenging environments for dignity. These findings have significant implications for healthcare systems and services within an international and interdisciplinary context. They emphasise the need for adaptable, flexible services, co-designed with people with lived experience of disability. Addressing organisational constraints, resource limitations, and expectations is paramount to ensuring dignity is maintained through the acknowledgement of personhood and safeguarding of human rights.<\/jats:p>","DOI":"10.1177\/10497323231204562","type":"journal-article","created":{"date-parts":[[2023,10,30]],"date-time":"2023-10-30T06:11:51Z","timestamp":1698646311000},"page":"141-153","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":25,"title":["Dignity and the Importance of Acknowledgement of Personhood for People With Disability"],"prefix":"10.1177","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5668-661X","authenticated-orcid":false,"given":"Kelsey","family":"Chapman","sequence":"first","affiliation":[{"name":"The Hopkins Centre: Research for Rehabilitation and Resilience, Griffith University, Nathan, QLD, Australia"},{"name":"Inclusive Futures: Reimagining Disability, Griffith University, Southport, QLD, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angel","family":"Dixon","sequence":"additional","affiliation":[{"name":"Inclusive Futures: Reimagining Disability, Griffith University, Southport, QLD, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carolyn","family":"Ehrlich","sequence":"additional","affiliation":[{"name":"The Hopkins Centre: Research for Rehabilitation and Resilience, Griffith University, Nathan, QLD, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Kendall","sequence":"additional","affiliation":[{"name":"The Hopkins Centre: Research for Rehabilitation and Resilience, Griffith University, Nathan, QLD, Australia"},{"name":"Inclusive Futures: Reimagining Disability, Griffith University, Southport, QLD, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2023,10,30]]},"reference":[{"key":"bibr1-10497323231204562","doi-asserted-by":"publisher","DOI":"10.1111\/ap.12012"},{"key":"bibr2-10497323231204562","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-63493-3_2"},{"key":"bibr3-10497323231204562","doi-asserted-by":"publisher","DOI":"10.1093\/hrlr\/ngaa021"},{"key":"bibr4-10497323231204562","doi-asserted-by":"publisher","DOI":"10.1080\/10383441.2021.2003744"},{"key":"bibr5-10497323231204562","volume-title":"Disability with dignity: Justice, human rights and equal status","author":"Barclay L.","year":"2019"},{"key":"bibr6-10497323231204562","doi-asserted-by":"publisher","DOI":"10.4324\/9781315577333"},{"key":"bibr7-10497323231204562","doi-asserted-by":"publisher","DOI":"10.1037\/13620-004"},{"key":"bibr9-10497323231204562","volume-title":"Creating systems that increase dignified experience for people with disability. 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