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This emphasis overlooks the challenging moments of everyday life caring for children with PWS. Storied accounts of mothers caring for children with PWS offer expanded narratives to medicalized descriptions of experience. An understanding of everyday challenges in managing physical and mental health issues of PWS including hyperphagia and anxiety may create shifts in social and clinical perspectives. This understanding could improve practices in health and social care for families with PWS. This narrative inquiry studied everyday experience using storied accounts. Participants were mothers caring for children aged 3\u201317\u00a0years with genetically confirmed PWS who were experiencing hyperphagia. Four participants were recruited, and each interviewed 8\u201312 times over 12\u00a0months. Field texts and narrative accounts were co-composed through a collaborative process of analysis. Engaging with participants\u2019 day-to-day experiences offered insights into their work of nurturing, caring, and contributing to the care of a child with PWS. Narrative threads focused on complexity and rarity and include the desire to be normal, how ordinary becomes extraordinary, isolation, behaviors and normative standards, and alternative stories of mothering. Recommendations for practice and policy include (a) challenges of mothering a child with complexity, (b) moving beyond functionality and impairment to participation and quality of life, (c) re-storying narratives and supports for families, and (d) engaging with mothers to determine care priorities.<\/jats:p>","DOI":"10.1177\/10497323231225412","type":"journal-article","created":{"date-parts":[[2024,1,29]],"date-time":"2024-01-29T01:21:58Z","timestamp":1706491318000},"page":"742-755","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":8,"title":["Mothering a Child With Complexity and Rarity: A Narrative Inquiry Exploring Prader-Willi Syndrome"],"prefix":"10.1177","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9478-0850","authenticated-orcid":false,"given":"Genevieve","family":"Currie","sequence":"first","affiliation":[{"name":"School of Nursing and Midwifery, Faculty of Health, Community and Education, Mount Royal University, Calgary, AB, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Estefan","sequence":"additional","affiliation":[{"name":"Faculty of Nursing, University of Calgary, Calgary, AB, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vera","family":"Caine","sequence":"additional","affiliation":[{"name":"Faculty of Health and Life Sciences, School of Nursing, University of Victoria, Victoria, BC, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,1,28]]},"reference":[{"key":"bibr1-10497323231225412","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2010.11.032"},{"key":"bibr2-10497323231225412","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-3737.2000.01192.x"},{"key":"bibr3-10497323231225412","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-76333-0_34"},{"key":"bibr4-10497323231225412","doi-asserted-by":"publisher","DOI":"10.1075\/ni.16.1.18bam"},{"key":"bibr5-10497323231225412","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-018-0294-9"},{"key":"bibr7-10497323231225412","volume-title":"The experiences of women who mother children with disabilities: Maternality, relationality, subjectivity","author":"Brock S. 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