{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T11:30:51Z","timestamp":1780572651482,"version":"3.54.1"},"reference-count":41,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2025,11,18]],"date-time":"2025-11-18T00:00:00Z","timestamp":1763424000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,11,18]],"date-time":"2025-11-18T00:00:00Z","timestamp":1763424000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100001659","name":"German Research Foundation","doi-asserted-by":"crossref","award":["424883170"],"award-info":[{"award-number":["424883170"]}],"id":[{"id":"10.13039\/501100001659","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Qual Health Res"],"abstract":"<jats:p>Advancements in surgical, interventional, and intensive-care medicine have significantly increased the life expectancy of individuals born with congenital heart disease (CHD). As a result, growing numbers of affected children now reach adulthood. Despite medical progress, CHD remains a lifelong condition that influences how individuals perceive and shape their lives. This qualitative study explored ideas of a good life among 14 young adults aged 18\u201329\u00a0years living with CHD. Data were gathered through semi-structured phenomenological interviews and analyzed using interpretative phenomenological analysis. The pursuit of a \u201cnormal\u201d life, characterized by equal developmental opportunities compared to peers without CHD, emerged as a central pattern. This experience was reflected in four key themes: \u201cMy Whole Life I Have to Fight for Normality,\u201d \u201cBeing Treated Normally by Others Is Part of a Good Development,\u201d \u201cNormal Development Includes Lightheartedness,\u201d and \u201cI Need to Stand on My Own Two Feet.\u201d These findings carry important implications for healthcare providers, particularly regarding the promotion of normality and autonomy among individuals with CHD. Patients should be supported in adopting this perspective\u2014as should their parents, since they significantly shape the lives and well-being of patients during their formative years, playing a crucial role in laying the foundation for healthy development and a good life. At the same time, healthcare providers should avoid paternalistic attitudes that risk replicating patterns of parental overprotection. Finally, our findings point to the importance of future research exploring how gender and cultural background shape ideas of a good life with CHD.<\/jats:p>","DOI":"10.1177\/10497323251394947","type":"journal-article","created":{"date-parts":[[2025,11,18]],"date-time":"2025-11-18T20:09:18Z","timestamp":1763496558000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["\u201cI No Longer Felt Sick, I Always Felt Free\u201d: Growing Up With Congenital Heart Disease and the Struggle for a Good Life\u2014An Interpretative Phenomenological Analysis"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-5413-8848","authenticated-orcid":false,"given":"Lisa","family":"Nebel","sequence":"first","affiliation":[{"name":"University Medical Center G\u00f6ttingen"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annika","family":"Freiberger","sequence":"additional","affiliation":[{"name":"German Heart Center Munich"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudia","family":"Dellas","sequence":"additional","affiliation":[{"name":"University Medical Center G\u00f6ttingen"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christoph","family":"Herrmann-Lingen","sequence":"additional","affiliation":[{"name":"University Medical Center G\u00f6ttingen"},{"name":"German Center for Cardiovascular Research (DZHK), Partner site Lower Saxony"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-1056-9278","authenticated-orcid":false,"given":"Daniel","family":"Broschmann","sequence":"additional","affiliation":[{"name":"University Medical Center G\u00f6ttingen"},{"name":"University Medical Center G\u00f6ttingen"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,11,18]]},"reference":[{"key":"e_1_3_5_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/14768320701246469"},{"key":"e_1_3_5_3_1","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehaa554"},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcard.2005.08.006"},{"key":"e_1_3_5_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/chd.12244"},{"key":"e_1_3_5_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00481-022-00744-4"},{"key":"e_1_3_5_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323251322662"},{"key":"e_1_3_5_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/16094069241282843"},{"key":"e_1_3_5_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejcnurse.2004.12.003"},{"key":"e_1_3_5_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323231164556"},{"key":"e_1_3_5_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-531-92052-8_50"},{"key":"e_1_3_5_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323231224777"},{"key":"e_1_3_5_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-034588"},{"key":"e_1_3_5_14_1","doi-asserted-by":"publisher","DOI":"10.21037\/cdt-22-213"},{"key":"e_1_3_5_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjcard.2023.06.087"},{"key":"e_1_3_5_16_1","volume-title":"Wahrheit und methode [Truth and method]","author":"Gadamer H.-G.","year":"2010","unstructured":"Gadamer H.-G. 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