{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T09:56:27Z","timestamp":1781862987716,"version":"3.54.5"},"reference-count":53,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,6,15]],"date-time":"2026-06-15T00:00:00Z","timestamp":1781481600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,15]],"date-time":"2026-06-15T00:00:00Z","timestamp":1781481600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100031786","name":"Institute of Alcohol Studies","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100031786","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000275","name":"Leverhulme Trust","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000275","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Qual Health Res"],"abstract":"<jats:p>\n                    Gypsy, Roma, and Traveller communities experience significant health inequalities, yet alcohol consumption within these communities remains under-researched. This paper offers a methodological and ethical contribution by reflecting on two qualitative studies of alcohol use in Romany Gypsy and Traveller communities in the United Kingdom: project 1 explores youth drinking, and project 2 examines intergenerational drinking narratives. Drawing on a collaborative partnership with\n                    <jats:italic toggle=\"yes\">Friends, Families and Travellers<\/jats:italic>\n                    , we highlight the importance of equitable partnerships and the role of peer researchers in enabling access to seldom-heard communities, particularly when researching sensitive and potentially stigmatised topics. We demonstrate the value of culturally credible methods, including craft-elicitation and story-telling interviews, which align with community traditions, support participant agency, and generate nuanced, relational accounts that challenge stereotypical and pathologising narratives of alcohol use. Participatory data analysis further enabled participants to shape interpretation, repositioning them as active contributors to knowledge production, rather than passive subjects. We also critically reflect on ethical dimensions of the research process, including accessible approaches to informed consent, the complexities and unintended consequences of remuneration, and the importance of prioritising participant comfort, care, and flexibility in research design. We argue that researching alcohol with Romany Gypsy and Traveller communities requires methodological openness, cultural sensitivity, and adaptive, participant-led design. More broadly, the paper contributes practice-based insights that extend debates on participatory and ethical research, offering guidance for qualitative health researchers working with seldom-heard populations on sensitive topics.\n                  <\/jats:p>","DOI":"10.1177\/10497323261447802","type":"journal-article","created":{"date-parts":[[2026,6,15]],"date-time":"2026-06-15T11:17:17Z","timestamp":1781522237000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Doing Alcohol Research Differently: Considerations During Research With Romany Gypsy and Traveller Communities \u2013 A Narrative Review With Methodological and Ethical Considerations"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1564-5472","authenticated-orcid":false,"given":"Samantha","family":"Wilkinson","sequence":"first","affiliation":[{"name":"Manchester Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9313-6585","authenticated-orcid":false,"given":"Catherine","family":"Wilkinson","sequence":"additional","affiliation":[{"name":"Liverpool John Moores University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgia","family":"Williams","sequence":"additional","affiliation":[{"name":"Manchester Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kara","family":"Hewitson","sequence":"additional","affiliation":[{"name":"Friends, Families and Travellers"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Gavin","sequence":"additional","affiliation":[{"name":"Friends, Families and Travellers"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charlotte","family":"Bowling","sequence":"additional","affiliation":[{"name":"Manchester Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,6,15]]},"reference":[{"issue":"3","key":"e_1_3_5_2_1","first-page":"631","article-title":"Narrative interviewing","volume":"38","author":"Anderson C.","year":"2016","unstructured":"Anderson C., Kirkpatrick S. (2016). Narrative interviewing. International Journal of Clinical Pharmacy, 38(3), 631\u2013634. https:\/\/doi.org\/10.1007\/s11096-015-0222-0","journal-title":"International Journal of Clinical Pharmacy"},{"key":"e_1_3_5_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/17488958241300231"},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_3_5_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/cdj\/bsp008"},{"key":"e_1_3_5_6_1","first-page":"1","article-title":"Care, comfort, and capacity: The importance of being flexible in research with disabled and chronically ill people","volume":"4","author":"Budworth P.","year":"2023","unstructured":"Budworth P. (2023). Care, comfort, and capacity: The importance of being flexible in research with disabled and chronically ill people. Qualitative Research in Health, 4, 1\u20139. https:\/\/doi.org\/10.1016\/j.ssmqr.2023.100352","journal-title":"Qualitative Research in Health"},{"key":"e_1_3_5_7_1","volume-title":"Diversity in older age \u2013 Gypsies and travellers","author":"Centre for Policy on Ageing","year":"2016","unstructured":"Centre for Policy on Ageing. (2016). Diversity in older age \u2013 Gypsies and travellers. [Online], available: CPA-Rapid-Review-Diversity-in-Older-Age-Ethnic-Minorities-Gypsies-and-Travellers.pdf (23rd July, 2024)."},{"key":"e_1_3_5_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732318813558"},{"key":"e_1_3_5_9_1","volume-title":"Telling our own stories: An exploratory study of alcohol use and harm by people who identify as Roma, gypsies and travellers","author":"Condon L.","year":"2023","unstructured":"Condon L., Hargreaves S. C., Barry D., Curejova J., Morgan D. L., Worrall S., Celik F., Price M. (2023). Telling our own stories: An exploratory study of alcohol use and harm by people who identify as Roma, gypsies and travellers. [Online], available: NH26-Final-Report-September-2023-ACUK.pdf (4th April, 2026)."},{"key":"e_1_3_5_10_1","first-page":"1","volume-title":"Experiences of alcohol use and harm among travellers, Roma and gypsies: A participatory qualitative study","author":"Condon L.","year":"2024","unstructured":"Condon L., Hargreaves S. C., Barry D., Curejova K., Morgan D. L., Worrall S., Celik F., Price M. (2024). Experiences of alcohol use and harm among travellers, Roma and gypsies: A participatory qualitative study (pp. 1\u201310). Health & Social Care in the Community."},{"key":"e_1_3_5_11_1","volume-title":"Equality act 2010","author":"Equality Act","year":"2010","unstructured":"Equality Act. (2010). Equality act 2010. [Online]. https:\/\/www.legislation.gov.uk\/ukpga\/2010\/15\/contents (17th September, 2025)."},{"key":"e_1_3_5_12_1","first-page":"119","volume-title":"Handbook of research on teaching","author":"Erickson F.","year":"1986","unstructured":"Erickson F. (1986). Qualitative methods in research on teaching. In Wittrock M. C. (Ed.), Handbook of research on teaching (pp. 119\u2013161). Macmillan."},{"key":"e_1_3_5_13_1","doi-asserted-by":"publisher","DOI":"10.1515\/9781399526364"},{"key":"e_1_3_5_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/dar.13710"},{"key":"e_1_3_5_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-10-92"},{"key":"e_1_3_5_16_1","doi-asserted-by":"publisher","DOI":"10.2307\/jj.9827048.15"},{"key":"e_1_3_5_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-34390-3_11"},{"key":"e_1_3_5_18_1","doi-asserted-by":"publisher","DOI":"10.2307\/jj.9827048.13"},{"key":"e_1_3_5_19_1","volume-title":"Health inequalities experienced by gypsy, Roma and traveller communities","author":"Friends, Families and Travellers","year":"2022","unstructured":"Friends, Families and Travellers. (2022). Health inequalities experienced by gypsy, Roma and traveller communities. [Online]. Briefing_Health-inequalities-experienced-by-Gypsies-and-Travellers-in-England.pdf (10th September, 2025)."},{"key":"e_1_3_5_20_1","volume-title":"Briefing: Economic and financial exclusion experienced by Gypsies and Travellers in England","author":"Friends, Families and Travellers","year":"2023","unstructured":"Friends, Families and Travellers. (2023). Briefing: Economic and financial exclusion experienced by Gypsies and Travellers in England. [Online]. https:\/\/www.gypsy-traveller.org\/wp-content\/uploads\/2025\/03\/Economic-and-Financial-Exclusion-briefing-2.pdf (17th September, 2025)."},{"key":"e_1_3_5_21_1","volume-title":"About us","author":"Friends, Families and Travellers","year":"2025","unstructured":"Friends, Families and Travellers. (2025). About us. [Online]. (3rd December, 2025)."},{"key":"e_1_3_5_22_1","doi-asserted-by":"publisher","DOI":"10.7748\/phc.2017.e1263"},{"key":"e_1_3_5_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/0907568204040186"},{"key":"e_1_3_5_24_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781529739152.n13"},{"key":"e_1_3_5_25_1","doi-asserted-by":"publisher","DOI":"10.1080\/13645570802246724"},{"key":"e_1_3_5_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1475-5661.2005.00176.x"},{"key":"e_1_3_5_27_1","doi-asserted-by":"publisher","DOI":"10.1177\/14767503231191854"},{"key":"e_1_3_5_28_1","doi-asserted-by":"publisher","DOI":"10.29098\/crs.v4i2.104"},{"key":"e_1_3_5_29_1","volume-title":"Promoting the participation of selfom heard young people: A review of the literature on best practice principles","author":"Kelleher C.","year":"2014","unstructured":"Kelleher C., Seymour M., Halpenny A. M. (2014). Promoting the participation of selfom heard young people: A review of the literature on best practice principles. Technological University. [Online]. https:\/\/arrow.tudublin.ie\/cgi\/viewcontent.cgi?article=1026&context=aaschsslrep (17th September, 2025)."},{"key":"e_1_3_5_30_1","volume-title":"Gypsy tales \u2013 Now we're all around the campfire","author":"Khaleeli H.","year":"2016","unstructured":"Khaleeli H. (2016). Gypsy tales \u2013 Now we're all around the campfire. [Online], Gypsy tales \u2013 now we're all around the campfire | Family | The Guardian. (17th September, 2025)."},{"key":"e_1_3_5_31_1","doi-asserted-by":"publisher","DOI":"10.1177\/14687941241288207"},{"key":"e_1_3_5_32_1","doi-asserted-by":"publisher","DOI":"10.1192\/bji.2024.14"},{"key":"e_1_3_5_33_1","volume-title":"Mutable matter: An experiment in engaging publics with nanotechnology","author":"Last A.","year":"2010","unstructured":"Last A. (2010). Mutable matter: An experiment in engaging publics with nanotechnology. [PhD Thesis]. The Open University."},{"key":"e_1_3_5_34_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781849209861"},{"key":"e_1_3_5_35_1","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"e_1_3_5_36_1","doi-asserted-by":"publisher","DOI":"10.1177\/0038038514557913"},{"key":"e_1_3_5_37_1","doi-asserted-by":"publisher","DOI":"10.2304\/rcie.2014.9.4.375"},{"key":"e_1_3_5_38_1","first-page":"211","volume-title":"Paulo Freire: The global legacy","author":"Melling A.","year":"2015","unstructured":"Melling A., Ali Y. (2015). Travellers in time: A critical dialogue with the Gypsy Travellers of Lancashire. In Peters M., Besley T. (Eds.), Paulo Freire: The global legacy (pp. 211\u2013220). Peter Lang."},{"key":"e_1_3_5_39_1","doi-asserted-by":"publisher","DOI":"10.1111\/add.14824"},{"key":"e_1_3_5_40_1","unstructured":"O\u2019Neill G. C. (2020). Why are schools still such hostile places for Gyspy Roma and Traveller Children. [Online]. https:\/\/www.theguardian.com\/commentisfree\/2020\/oct\/04\/schools-gypsy-roma-traveller-children-education-system (26th November 2025)."},{"key":"e_1_3_5_41_1","doi-asserted-by":"publisher","DOI":"10.1177\/17470161231202135"},{"key":"e_1_3_5_42_1","doi-asserted-by":"publisher","DOI":"10.1177\/1468794120965356"},{"key":"e_1_3_5_43_1","doi-asserted-by":"publisher","DOI":"10.1111\/add.70330"},{"key":"e_1_3_5_44_1","unstructured":"Travellers Times. (2023). Gypsy Roma traveller showmen & boater crafts of cultural significance to be added to the red list of endangered crafts in 2023. [Online]. https:\/\/www.travellerstimes.org.uk\/news\/2023\/01\/gypsy-roma-traveller-showmen-boater-crafts-cultural-significance-be-added-red-list (06 August 2025)."},{"issue":"1","key":"e_1_3_5_45_1","first-page":"31","article-title":"Making and breaking: An embodied ethnography of eating","volume":"4","author":"Vanderslice K.","year":"2017","unstructured":"Vanderslice K. (2017). Making and breaking: An embodied ethnography of eating. Graduate Journal of Food Studies, 4(1), 31.","journal-title":"Graduate Journal of Food Studies"},{"key":"e_1_3_5_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1465-3362.2009.00085.x"},{"key":"e_1_3_5_47_1","doi-asserted-by":"publisher","DOI":"10.1080\/14733285.2013.829662"},{"key":"e_1_3_5_48_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961463X13517537"},{"key":"e_1_3_5_49_1","volume-title":"Gypsies and travellers in Doncaster","author":"Warner-Southwell J.","year":"2019","unstructured":"Warner-Southwell J. (2019). Gypsies and travellers in Doncaster. [Online]. doncasterccg.nhs.uk (31st July, 2024)."},{"key":"e_1_3_5_50_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpain.2024.1450667"},{"key":"e_1_3_5_51_1","doi-asserted-by":"publisher","DOI":"10.1080\/17597269.2015.1134761"},{"key":"e_1_3_5_52_1","doi-asserted-by":"publisher","DOI":"10.1177\/20438206231206736"},{"key":"e_1_3_5_53_1","doi-asserted-by":"publisher","DOI":"10.1111\/gwao.70134"},{"key":"e_1_3_5_54_1","doi-asserted-by":"publisher","DOI":"10.4337\/9781035315239.00036"}],"container-title":["Qualitative Health Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10497323261447802","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10497323261447802","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10497323261447802","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T09:47:46Z","timestamp":1781862466000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10497323261447802"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,15]]},"references-count":53,"alternative-id":["10.1177\/10497323261447802"],"URL":"https:\/\/doi.org\/10.1177\/10497323261447802","relation":{},"ISSN":["1049-7323","1552-7557"],"issn-type":[{"value":"1049-7323","type":"print"},{"value":"1552-7557","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,15]]},"article-number":"10497323261447802"}}