{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T12:14:19Z","timestamp":1788178459861,"version":"build-2803163510"},"reference-count":54,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T00:00:00Z","timestamp":1787788800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T00:00:00Z","timestamp":1787788800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["174891"],"award-info":[{"award-number":["174891"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Qual Health Res"],"abstract":"<jats:p>The COVID-19 pandemic intensified the burden on informal caregivers, particularly those with dual caregiving roles. This grounded theory study explores the lived experiences of women who simultaneously cared for a hospitalized family member at the end of life and for minor children during the pandemic. We aimed to examine how the intersection of these roles influenced women\u2019s experiences during caregiving and into bereavement. We analyzed 11 qualitative interviews with bereaved women caregivers in Toronto, Canada, who simultaneously cared for minor children and a dying family member during the COVID-19 pandemic. Our findings reveal a core category of Caregiving and Grieving in Survival Mode, and show that these caregivers (i) often neglected their own needs due to being pulled into numerous responsibilities; (ii) perceived their children as both sources of motivation yet as adding emotional burden to their caregiving; and (iii) felt isolated due to the need for human touch, making small compassionate gestures from healthcare providers seem meaningful. These findings highlight the compounded challenges of dual caregiving and bereavement under crisis conditions and identify a critical need for tailored support for the vulnerable population of dual caregivers.<\/jats:p>","DOI":"10.1177\/10497323261462030","type":"journal-article","created":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T14:57:16Z","timestamp":1787842636000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Lived Experiences of Women Navigating End-of-Life Caregiving and Parenting During the COVID-19 Pandemic"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0009-0009-0286-3903","authenticated-orcid":false,"given":"Junhee","family":"Baek","sequence":"first","affiliation":[{"name":"University Health Network"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Faye","family":"Ajmera","sequence":"additional","affiliation":[{"name":"University Health Network"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paige","family":"Chu","sequence":"additional","affiliation":[{"name":"University Health Network"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eryn","family":"Tong","sequence":"additional","affiliation":[{"name":"University Health Network"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sally","family":"Bean","sequence":"additional","affiliation":[{"name":"Sunnybrook Health Sciences Centre"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Breffni","family":"Hannon","sequence":"additional","affiliation":[{"name":"University Health Network"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elie","family":"Isenberg-Grzeda","sequence":"additional","affiliation":[{"name":"Sunnybrook Health Sciences Centre"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Madeline","family":"Li","sequence":"additional","affiliation":[{"name":"University Health Network"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gary","family":"Rodin","sequence":"additional","affiliation":[{"name":"University Health Network"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Debbie","family":"Selby","sequence":"additional","affiliation":[{"name":"Sunnybrook Health Sciences Centre"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Camilla","family":"Zimmermann","sequence":"additional","affiliation":[{"name":"University Health Network"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Hales","sequence":"additional","affiliation":[{"name":"University Health Network"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rinat","family":"Nissim","sequence":"additional","affiliation":[{"name":"University Health Network"},{"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,8,27]]},"reference":[{"key":"e_1_3_6_2_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951513000953"},{"key":"e_1_3_6_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/10615806.2017.1363390"},{"key":"e_1_3_6_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2022.2048281"},{"key":"e_1_3_6_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s41155-022-00228-w"},{"key":"e_1_3_6_6_1","doi-asserted-by":"publisher","DOI":"10.4172\/2165-7386.1000120"},{"key":"e_1_3_6_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-022-01031-1"},{"key":"e_1_3_6_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2012.718037"},{"key":"e_1_3_6_9_1","doi-asserted-by":"publisher","DOI":"10.3389\/fnins.2020.613378"},{"key":"e_1_3_6_10_1","doi-asserted-by":"publisher","DOI":"10.1017\/S147895152100095X"},{"key":"e_1_3_6_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11133-020-09451-2"},{"key":"e_1_3_6_12_1","doi-asserted-by":"publisher","DOI":"10.1080\/07399332.2020.1835917"},{"key":"e_1_3_6_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2021-058768"},{"key":"e_1_3_6_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/08982643221092876"},{"key":"e_1_3_6_15_1","doi-asserted-by":"publisher","DOI":"10.18103\/mra.v8i8.2204"},{"key":"e_1_3_6_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2020-042871"},{"key":"e_1_3_6_17_1","volume-title":"The discovery of grounded theory: Strategies for qualitative research","author":"Glaser B. G.","year":"1967","unstructured":"Glaser B. G., Strauss A. (1967). The discovery of grounded theory: Strategies for qualitative research. Aldine."},{"key":"e_1_3_6_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.13687"},{"key":"e_1_3_6_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211004210"},{"key":"e_1_3_6_20_1","doi-asserted-by":"publisher","DOI":"10.2190\/OM.60.3.c"},{"key":"e_1_3_6_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2025.118518"},{"key":"e_1_3_6_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/0030222818819350"},{"key":"e_1_3_6_23_1","doi-asserted-by":"publisher","DOI":"10.1037\/a0016108"},{"key":"e_1_3_6_24_1","volume-title":"Global Consumer Trends: Individualism (Market Analysis Report No. A74-2\/2010-1E-PDF)","author":"International Markets Bureau","year":"2010","unstructured":"International Markets Bureau. (2010). Global Consumer Trends: Individualism (Market Analysis Report No. A74-2\/2010-1E-PDF). Government of Canada, Agriculture and Agri-Food Canada. https:\/\/publications.gc.ca\/site\/archivee-archived.html?url=https%3A%2F%2Fpublications.gc.ca%2Fcollections%2Fcollection_2013%2Faac-aafc%2FA74-2-2010-1-eng.pdf"},{"key":"e_1_3_6_25_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11205-022-02972-z"},{"key":"e_1_3_6_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/apa.16716"},{"key":"e_1_3_6_27_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12916-024-03253-x"},{"key":"e_1_3_6_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bbih.2024.100941"},{"issue":"11","key":"e_1_3_6_29_1","first-page":"CD003519","article-title":"Early skin-to-skin contact for mothers and their healthy newborn infants","volume":"11","author":"Moore E. R.","year":"2016","unstructured":"Moore E. R., Bergman N., Anderson G. C., Medley N. (2016). Early skin-to-skin contact for mothers and their healthy newborn infants. Cochrane Database of Systematic Reviews, 11(11), CD003519. https:\/\/doi.org\/10.1002\/14651858.cd003519.pub4","journal-title":"Cochrane Database of Systematic Reviews"},{"key":"e_1_3_6_30_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163241248725"},{"key":"e_1_3_6_31_1","doi-asserted-by":"publisher","DOI":"10.1177\/00914150231183137"},{"key":"e_1_3_6_32_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41562-024-01841-8"},{"key":"e_1_3_6_33_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211040982"},{"key":"e_1_3_6_34_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221076355"},{"key":"e_1_3_6_35_1","doi-asserted-by":"publisher","DOI":"10.1080\/15487733.2020.1776561"},{"key":"e_1_3_6_36_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1000121"},{"key":"e_1_3_6_37_1","doi-asserted-by":"publisher","DOI":"10.26419\/ppi.00086.001"},{"key":"e_1_3_6_38_1","doi-asserted-by":"publisher","DOI":"10.1177\/0959354300104003"},{"key":"e_1_3_6_39_1","doi-asserted-by":"publisher","DOI":"10.1016\/B978-012088470-4\/50006-5"},{"key":"e_1_3_6_40_1","doi-asserted-by":"publisher","DOI":"10.1177\/0959354306066202"},{"key":"e_1_3_6_41_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781483387864.n21"},{"key":"e_1_3_6_42_1","doi-asserted-by":"publisher","DOI":"10.1037\/h0079765"},{"key":"e_1_3_6_43_1","volume-title":"COVID-19 and the care economy: Immediate action and structural transformation for a gender-responsive recovery","author":"Staab S.","year":"2020","unstructured":"Staab S., Qayum S., Diallo B., Azcona G., Koissy-Kpein S., Cookson T. P. (2020). COVID-19 and the care economy: Immediate action and structural transformation for a gender-responsive recovery [Policy Brief No. 16]. UN Women. https:\/\/gbvguidelines.org\/wp\/wp-content\/uploads\/2020\/08\/COVID-19-and-the-care-economy-Immediate-action-and-structural-transformation-for-a-gender-responsive-recovery.pdf"},{"key":"e_1_3_6_44_1","doi-asserted-by":"publisher","DOI":"10.25011\/cim.v36i3.19722"},{"key":"e_1_3_6_45_1","volume-title":"Who are the sandwich caregivers in Canada?","author":"Statistics Canada","year":"2024","unstructured":"Statistics Canada. (2024). Who are the sandwich caregivers in Canada? https:\/\/www150.statcan.gc.ca\/n1\/pub\/11-627-m\/11-627-m2024003-eng.htm"},{"key":"e_1_3_6_46_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12144-021-02630-6"},{"key":"e_1_3_6_47_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-132-10-200005160-00011"},{"key":"e_1_3_6_48_1","doi-asserted-by":"publisher","DOI":"10.1098\/rsos.210287"},{"key":"e_1_3_6_49_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2022.05.003"},{"key":"e_1_3_6_50_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2015.0214"},{"key":"e_1_3_6_51_1","doi-asserted-by":"publisher","DOI":"10.1177\/00302228231186354"},{"key":"e_1_3_6_52_1","doi-asserted-by":"publisher","DOI":"10.1177\/08258597221120707"},{"key":"e_1_3_6_53_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-025-05399-w"},{"key":"e_1_3_6_54_1","doi-asserted-by":"publisher","DOI":"10.1037\/fam0000528"},{"key":"e_1_3_6_55_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-021-06736-2"}],"container-title":["Qualitative Health Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10497323261462030","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10497323261462030","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10497323261462030","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T11:20:47Z","timestamp":1788175247000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10497323261462030"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8,27]]},"references-count":54,"alternative-id":["10.1177\/10497323261462030"],"URL":"https:\/\/doi.org\/10.1177\/10497323261462030","relation":{},"ISSN":["1049-7323","1552-7557"],"issn-type":[{"value":"1049-7323","type":"print"},{"value":"1552-7557","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,8,27]]},"article-number":"10497323261462030"}}