{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T20:35:24Z","timestamp":1792787724695,"version":"4.5.0"},"reference-count":43,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T00:00:00Z","timestamp":1792022400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T00:00:00Z","timestamp":1792022400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Riva Ariella Ritvo Endowment at the Yale Child Study Center","id":[{"id":"https:\/\/ror.org\/0229evh14","id-type":"ROR","asserted-by":"crossref"}]},{"DOI":"10.13039\/100001796","name":"Gustavus and Louise Pfeiffer Research Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100001796","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100004823","name":"Connecticut State Department of Mental Health and Addiction Services","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004823","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Qual Health Res"],"abstract":"<jats:p>\n                    The diagnosis of a psychotic disorder in youth often leads to high costs, emotional distress, and isolation for caregivers. Yet, caregiving experiences are underexplored in research, resulting in a potentially missed area to enhance care. We aim to explore the experiences, perceptions, and help-seeking efforts of families supporting youth with first-episode psychosis (FEP). We conducted semi-structured interviews with 20 caregivers of 17 individuals diagnosed with a psychotic disorder within the past 5 years (age range = 12\u201335, mean age at diagnosis = 21). Interviews covered caregivers\u2019 experiences, perceptions, and help-seeking efforts. We transcribed interviews and used thematic analysis informed by an interpretative phenomenological lens. We organized our findings into three domains. First, an inward-facing, youth-focused domain of\n                    <jats:italic toggle=\"yes\">Caring<\/jats:italic>\n                    with three themes:\n                    <jats:italic toggle=\"yes\">Making Sense<\/jats:italic>\n                    ,\n                    <jats:italic toggle=\"yes\">Loss of the Envisioned Child<\/jats:italic>\n                    , and\n                    <jats:italic toggle=\"yes\">Strengths<\/jats:italic>\n                    . Second, an inward-facing, caregiver-focused domain of\n                    <jats:italic toggle=\"yes\">Coping<\/jats:italic>\n                    with three themes:\n                    <jats:italic toggle=\"yes\">Fractures and Bonds<\/jats:italic>\n                    ,\n                    <jats:italic toggle=\"yes\">Emotional Load<\/jats:italic>\n                    , and\n                    <jats:italic toggle=\"yes\">Caregiver Role and Identity.<\/jats:italic>\n                    Third, an outward-facing domain of\n                    <jats:italic toggle=\"yes\">Connecting<\/jats:italic>\n                    with three themes:\n                    <jats:italic toggle=\"yes\">Navigating Systems of Care<\/jats:italic>\n                    ,\n                    <jats:italic toggle=\"yes\">Cultural<\/jats:italic>\n                    ,\n                    <jats:italic toggle=\"yes\">Social<\/jats:italic>\n                    ,\n                    <jats:italic toggle=\"yes\">and Religious Context<\/jats:italic>\n                    , and\n                    <jats:italic toggle=\"yes\">Independence<\/jats:italic>\n                    . Our framework underpinning the lived experiences of caregivers may serve as a resource for caregivers, clinicians, and policymakers to inform earlier intervention and improve outcomes for young individuals with FEP.\n                  <\/jats:p>","DOI":"10.1177\/10497323261481767","type":"journal-article","created":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T20:27:05Z","timestamp":1792096025000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Supporting Young People With First-Episode Psychosis: A Qualitative Study of Caregiver Perceptions and Experiences"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2242-5793","authenticated-orcid":false,"given":"Alexis L.","family":"Chang","sequence":"first","affiliation":[{"name":"Yale School of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zoe","family":"Beketova","sequence":"additional","affiliation":[{"name":"Yale School of Medicine"},{"name":"Yale School of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nina","family":"Levine","sequence":"additional","affiliation":[{"name":", Yale School of Medicine"},{"name":"Program for Specialized Treatment Early in Psychosis (STEP), Connecticut Mental Health Center (CMHC)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vinod H.","family":"Srihari","sequence":"additional","affiliation":[{"name":", Yale School of Medicine"},{"name":"Program for Specialized Treatment Early in Psychosis (STEP), Connecticut Mental Health Center (CMHC)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andr\u00e9s","family":"Martin","sequence":"additional","affiliation":[{"name":"Yale School of Medicine"},{"name":", Yale School of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,10,15]]},"reference":[{"issue":"5","key":"e_1_3_5_2_1","first-page":"e39549","article-title":"Understanding and addressing mental health stigma across cultures for improving psychiatric care: A narrative review","volume":"15","author":"Ahad A. A.","year":"2023","unstructured":"Ahad A. A., Sanchez-Gonzalez M., Junquera P. (2023). Understanding and addressing mental health stigma across cultures for improving psychiatric care: A narrative review. Cureus, 15(5), Article e39549. https:\/\/doi.org\/10.7759\/cureus.39549","journal-title":"Cureus"},{"key":"e_1_3_5_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12991-018-0178-2"},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_5_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1751-7893.2009.00148.x"},{"key":"e_1_3_5_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/eip.12157"},{"key":"e_1_3_5_7_1","volume-title":"Psychosis","author":"Calabrese J.","year":"2025","unstructured":"Calabrese J., Al Khalili Y. (2025). Psychosis. StatPearls Publishing. https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK546579\/"},{"key":"e_1_3_5_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2025.01.129"},{"issue":"10","key":"e_1_3_5_9_1","first-page":"CD013541","article-title":"Family-based interventions versus standard care for people with schizophrenia","volume":"10","author":"Chien W. T.","year":"2024","unstructured":"Chien W. T., Ma D. C. F., Bressington D., Mou H. (2024). Family-based interventions versus standard care for people with schizophrenia. The Cochrane Database of Systematic Reviews, 10(10), CD013541. https:\/\/doi.org\/10.1002\/14651858.CD013541.pub2","journal-title":"The Cochrane Database of Systematic Reviews"},{"key":"e_1_3_5_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0020-7489(02)00013-5"},{"key":"e_1_3_5_11_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2017.00371"},{"key":"e_1_3_5_12_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapsychiatry.2018.0623"},{"key":"e_1_3_5_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/jpm.12367"},{"key":"e_1_3_5_14_1","doi-asserted-by":"publisher","DOI":"10.1159\/000528513"},{"key":"e_1_3_5_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-020-08964-3"},{"key":"e_1_3_5_16_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2023.1098292"},{"key":"e_1_3_5_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/schbul\/sbs136"},{"key":"e_1_3_5_18_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.202100600"},{"key":"e_1_3_5_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnu.2019.04.004"},{"key":"e_1_3_5_20_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.660708"},{"key":"e_1_3_5_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/cpp.2483"},{"key":"e_1_3_5_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/cpp.2921"},{"key":"e_1_3_5_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cpr.2014.12.002"},{"key":"e_1_3_5_24_1","doi-asserted-by":"publisher","DOI":"10.1080\/0142159X.2020.1755030"},{"key":"e_1_3_5_25_1","doi-asserted-by":"publisher","DOI":"10.5498\/wjp.v2.i3.43"},{"key":"e_1_3_5_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnss.2018.06.007"},{"key":"e_1_3_5_27_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0270234"},{"key":"e_1_3_5_28_1","doi-asserted-by":"publisher","DOI":"10.1093\/schbul\/sbp085"},{"key":"e_1_3_5_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eurpsy.2009.08.006"},{"key":"e_1_3_5_30_1","doi-asserted-by":"publisher","DOI":"10.1093\/schbul\/sbae100"},{"issue":"1","key":"e_1_3_5_31_1","first-page":"7","article-title":"A practical guide to using interpretative phenomenological analysis in qualitative research psychology","volume":"20","author":"Pietkiewicz I.","year":"2014","unstructured":"Pietkiewicz I., Smith J. A. (2014). A practical guide to using interpretative phenomenological analysis in qualitative research psychology. Czasopismo Psychologiczne Psychological Journal, 20(1), 7\u201314. https:\/\/doi.org\/10.14691\/CPPJ.20.1.7","journal-title":"Czasopismo Psychologiczne Psychological Journal"},{"key":"e_1_3_5_32_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10826-012-9625-x"},{"key":"e_1_3_5_33_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10597-020-00581-z"},{"key":"e_1_3_5_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/jpm.13094"},{"key":"e_1_3_5_35_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2850.2007.01075.x"},{"key":"e_1_3_5_36_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10597-015-9877-1"},{"key":"e_1_3_5_37_1","doi-asserted-by":"publisher","DOI":"10.1177\/2049463714541642"},{"key":"e_1_3_5_38_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.201400236"},{"key":"e_1_3_5_39_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11126-015-9348-4"},{"key":"e_1_3_5_40_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnu.2024.05.015"},{"key":"e_1_3_5_41_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.ps.20240061"},{"key":"e_1_3_5_42_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.psc.2008.11.007"},{"key":"e_1_3_5_43_1","doi-asserted-by":"publisher","DOI":"10.1111\/eip.12758"},{"key":"e_1_3_5_44_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2024.1460151"}],"container-title":["Qualitative Health Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10497323261481767","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10497323261481767","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10497323261481767","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,10,18]],"date-time":"2026-10-18T11:48:02Z","timestamp":1792324082000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10497323261481767"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,10,15]]},"references-count":43,"alternative-id":["10.1177\/10497323261481767"],"URL":"https:\/\/doi.org\/10.1177\/10497323261481767","relation":{},"ISSN":["1049-7323","1552-7557"],"issn-type":[{"value":"1049-7323","type":"print"},{"value":"1552-7557","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,10,15]]},"article-number":"10497323261481767"}}