{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,28]],"date-time":"2026-07-28T11:34:05Z","timestamp":1785238445355,"version":"3.55.0"},"reference-count":24,"publisher":"SAGE Publications","issue":"5","license":[{"start":{"date-parts":[[2010,12,13]],"date-time":"2010-12-13T00:00:00Z","timestamp":1292198400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"published-print":{"date-parts":[[2011,8]]},"abstract":"<jats:p>\n                    Objective: We estimated the prevalence of children with life-threatening conditions (LTC) cared for in the military health system (MHS) in response to a Congressional inquiry and to inform program planning. Methods: We developed a case definition of LTC, using the concept \u2018\u2018death trajectory\u2019\u2019\n                    <jats:sup>1,2<\/jats:sup>\n                    to define our cases. We conducted an unduplicated count of children with LTC in the MHS database during FY 2001\/FY 2002 using selected ICD-9 codes based on our case definition. We then surveyed the literature for reported prevalence of LTC among children with similar case definitions. The concept of \u2018\u2018death trajectory\u2019\u2019 describes non-categorical life-threatening conditions of four types: progressive decline to death (e.g., spinal muscular atrophy); intermittent periods of intensive care to maintain quality-of-life (e.g., cystic fibrosis); curative treatment is possible but may fail (e.g., childhood cancers); and severe but non-progressive disability with extreme health vulnerability (e.g., spastic quadriplegia with tracheotomy). Results: There were 3,976 children identified with LTC in a population of 2.6 million children, for a prevalence of 0.15%. Conclusion: A prevalence of 0.15% for children with LTC in the MHS population agrees closely with that derived for similar case definitions by other authors among populations of children in other single-payer health care systems (i.e., United Kingdom). The method used here may apply to similar health care systems with ICD 9 codes in a searchable database.\n                  <\/jats:p>","DOI":"10.1177\/1049909110391463","type":"journal-article","created":{"date-parts":[[2010,12,14]],"date-time":"2010-12-14T20:24:47Z","timestamp":1292358287000},"page":"310-315","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":5,"title":["Prevalence of Life-Threatening Conditions in Children"],"prefix":"10.1177","volume":"28","author":[{"given":"Virginia","family":"Randall","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Uniformed Services University of the Health Sciences, Bethesda, MD, USA,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jason","family":"Cervenka","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Johns Hopkins School of Medicine, Baltimore, MD, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Arday","sequence":"additional","affiliation":[{"name":"Department of Defense, Office of the Chief Medical Officer, TRICARE Management Activity, Bethesda, MD, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tomoko","family":"Hooper","sequence":"additional","affiliation":[{"name":"Department of Preventive Medicine and Biometrics, Uniformed Services University of the Health Sciences, Bethesda, MD, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janice","family":"Hanson","sequence":"additional","affiliation":[{"name":"Departments of Medicine, Family Medicine, and Pediatrics, Uniformed Services University of the Health Sciences, Bethesda, MD, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2010,12,13]]},"reference":[{"key":"atypb1","volume-title":"A Guide to the Development of Children\u2019s Palliative Care Services. 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A Call for Change: Recommendations to Improve the Care of Children Living with Life-Threatening Conditions: National Hospice and Palliative Care Organization","author":"ChIPPS.","year":"2001"},{"key":"atypb21","doi-asserted-by":"publisher","DOI":"10.1186\/1741-7015-1-3"},{"key":"atypb22","doi-asserted-by":"publisher","DOI":"10.1136\/jme.2005.015768"},{"key":"atypb23","doi-asserted-by":"publisher","DOI":"10.1097\/00003246-200201000-00032"},{"key":"atypb24","doi-asserted-by":"publisher","DOI":"10.1111\/j.1475-6773.2005.00444.x"}],"container-title":["American Journal of Hospice and Palliative Medicine\u00ae"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1049909110391463","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1049909110391463","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T09:27:08Z","timestamp":1777368428000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1049909110391463"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,12,13]]},"references-count":24,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2011,8]]}},"alternative-id":["10.1177\/1049909110391463"],"URL":"https:\/\/doi.org\/10.1177\/1049909110391463","relation":{},"ISSN":["1049-9091","1938-2715"],"issn-type":[{"value":"1049-9091","type":"print"},{"value":"1938-2715","type":"electronic"}],"subject":[],"published":{"date-parts":[[2010,12,13]]}}}