{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,4]],"date-time":"2026-08-04T03:18:45Z","timestamp":1785813525131,"version":"3.56.0"},"reference-count":30,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2019,12,6]],"date-time":"2019-12-06T00:00:00Z","timestamp":1575590400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100006597","name":"Florida State University","doi-asserted-by":"publisher","award":["Undergraduate Research and Academic Engagement URO"],"award-info":[{"award-number":["Undergraduate Research and Academic Engagement URO"]}],"id":[{"id":"10.13039\/100006597","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"published-print":{"date-parts":[[2020,7]]},"abstract":"<jats:p>Individuals with terminal illness are dying behind bars and many state prison administrators have incorporated on-site hospice and palliative care services. Little is known, however, about these programs since a 2010 study of prison hospice characteristics. We provide an updated description and reflection of current hospice and palliative care programs in state prisons serving incarcerated persons with terminal illness. A cross-sectional survey was sent to representatives of all known prisons offering hospice and palliative care programs and services (N = 113). Questions were drawn from an earlier iteration regarding interdisciplinary team (IDT) membership, training length and topics, peer caregivers, visitation policies, bereavement services, perceived stakeholder support, and pain management strategies. Additional questions were added such as estimated operational costs, peer caregiver input in patient care, and the strengths and weaknesses of such programs. Frequency distributions were calculated for all study variables. Responding representatives (n = 33) indicated IDTs remain integral to care, peer caregivers continue to support dying patients, and perceived public support for these programs remains low. Reduced enthusiasm for the programs may negatively influence administrative decision-making and program resources. Further, peer caregiver roles appear to be changing with caregivers charged with fewer of the identified tasks, compared with the 2010 study.<\/jats:p>","DOI":"10.1177\/1049909119893090","type":"journal-article","created":{"date-parts":[[2019,12,6]],"date-time":"2019-12-06T06:03:12Z","timestamp":1575612192000},"page":"514-520","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":19,"title":["Characteristics of Hospice and Palliative Care Programs in US Prisons: An Update and 5-Year Reflection"],"prefix":"10.1177","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5110-7287","authenticated-orcid":false,"given":"Stephanie Grace","family":"Prost","sequence":"first","affiliation":[{"name":"Raymond A. Kent School of Social Work, University of Louisville, Louisville, KY, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret M.","family":"Holland","sequence":"additional","affiliation":[{"name":"College of Social Work, Florida State University, Tallahassee, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heath C.","family":"Hoffmann","sequence":"additional","affiliation":[{"name":"Department of Sociology and Anthropology, College of Charleston, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George E.","family":"Dickinson","sequence":"additional","affiliation":[{"name":"Department of Sociology and Anthropology, College of Charleston, Charleston, SC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2019,12,6]]},"reference":[{"key":"bibr1-1049909119893090","unstructured":"Prost SG, Golder S, Archuleta A. Co-and multimorbidity among older adults in a state prison system: Prevalence across age cohorts. In-press. Manuscript submitted for publication. Aging and Mental Health."},{"key":"bibr2-1049909119893090","doi-asserted-by":"crossref","unstructured":"James DE, Glaze LE. Mental health problems of prison and jail inmates. 2006. https:\/\/www.bjs.gov\/content\/pub\/pdf\/mhppji.pdf. Updated November 28, 2019. Accessed July 23, 2019.","DOI":"10.1037\/e557002006-001"},{"key":"bibr3-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1177\/0306624X19843885"},{"key":"bibr4-1049909119893090","unstructured":"Prost SG, Williams BA, Archuleta A, Golder S. Older adults incarcerated in state prison: health and quality of life disparities between age cohorts. Manuscript in preparation."},{"key":"bibr5-1049909119893090","unstructured":"Bailey M. More prisoners die of old age behind bars. 2016. https:\/\/khn.org\/news\/more-prisoners-die-of-old-age-behind-bars\/. Updated November 28, 2019. Accessed June 3, 2019."},{"key":"bibr6-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2018.07.009"},{"key":"bibr7-1049909119893090","volume":"6","author":"Holland MM","year":"2018","journal-title":"Omega"},{"key":"bibr8-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2018.12.335"},{"key":"bibr9-1049909119893090","first-page":"351","volume-title":"Serving the Stigmatized: Working Within the Incarcerated Environment","author":"Prost SG.","year":"2018"},{"key":"bibr10-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317721816"},{"key":"bibr11-1049909119893090","doi-asserted-by":"publisher","DOI":"10.4135\/9781452275444.n7"},{"key":"bibr12-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1007\/978-0-387-71695-4_5"},{"key":"bibr13-1049909119893090","unstructured":"Chari KA, Simon AE, DeFrances CJ, Maruschak MA. National survey of prison health care: selected findings. 2016. https:\/\/www.bjs.gov\/content\/pub\/pdf\/nsphcsf.pdf. Updated November 28, 2019. Accessed May 23, 2019."},{"key":"bibr14-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1177\/1049909110381884"},{"key":"bibr15-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1097\/01.NAJ.0000481277.99686.82"},{"key":"bibr16-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1177\/1049909113506035"},{"key":"bibr17-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2000.3.4.509"},{"key":"bibr18-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1177\/0030222819835650"},{"key":"bibr19-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1111\/j.1532-5415.2012.03962.x"},{"key":"bibr20-1049909119893090","unstructured":"National Hospice and Palliative Care Organization. NHPCO Facts and Figures. 2018. https:\/\/39k5cm1a9u1968hg74aj3x51-wpengine.netdna-ssl.com\/wp-content\/uploads\/2019\/07\/2018_NHPCO_Facts_Figures.pdf. Updated November 28, 2019. Accessed May 17, 2019."},{"key":"bibr21-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1111\/phn.12069"},{"key":"bibr22-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2004.08.015"},{"issue":"9","key":"bibr23-1049909119893090","first-page":"481","volume":"102","author":"Cavalieri TA","year":"2002","journal-title":"J Am Osteopath Assoc"},{"key":"bibr24-1049909119893090","first-page":"1","author":"Prost SG","year":"2019","journal-title":"Appl Res Qual Life"},{"key":"bibr25-1049909119893090","unstructured":"Melamed S. More people than ever are dying in prison. Their caregivers? Other inmates. 2017. https:\/\/www.inquirer.com\/philly\/living\/more-people-than-ever-are-dying-in-prison-their-caregivers-other-inmates-20170927.html. Updated November 28, 2019. Accessed June 5, 2019."},{"key":"bibr26-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1080\/01933920490439392"},{"key":"bibr27-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1080\/15524256.2013.877866"},{"key":"bibr28-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2008.04890.x"},{"key":"bibr29-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1177\/0018726708094863"},{"key":"bibr30-1049909119893090","doi-asserted-by":"publisher","DOI":"10.1086\/269125"}],"container-title":["American Journal of Hospice and Palliative Medicine\u00ae"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1049909119893090","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1049909119893090","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1049909119893090","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T09:28:56Z","timestamp":1777368536000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1049909119893090"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,12,6]]},"references-count":30,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2020,7]]}},"alternative-id":["10.1177\/1049909119893090"],"URL":"https:\/\/doi.org\/10.1177\/1049909119893090","relation":{},"ISSN":["1049-9091","1938-2715"],"issn-type":[{"value":"1049-9091","type":"print"},{"value":"1938-2715","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,12,6]]}}}