{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T12:39:35Z","timestamp":1784723975498,"version":"3.55.0"},"reference-count":22,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2020,11,10]],"date-time":"2020-11-10T00:00:00Z","timestamp":1604966400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"UMass Memorial Cancer Center of Excellence","award":["Program Development Research Grant"],"award-info":[{"award-number":["Program Development Research Grant"]}]},{"DOI":"10.13039\/100015348","name":"cambia health foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100015348","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"published-print":{"date-parts":[[2021,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>This study examined the feasibility, burden and acceptability of a legacy-making intervention in adults with cancer and preliminary effects on patient quality-of-life (QOL) measures.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method:<\/jats:title>\n                    <jats:p>We conducted a Stage IB pilot, intervention study. The intervention was a digital video legacy-making interview of adults with advanced cancer to create a digital video of their memories and experiences. Baseline and post-video QOL assessments included: Functional Assessment of Cancer Therapy\u2014General (FACT-G), Patient Dignity Inventory (PDI), Hospital Anxiety and Depression Scale (HADS), and Emotional Thermometers for distress, anxiety, anger, help and depression. Participants received a final copy of the digital video for distribution to their families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Adults (n = 16) ages 38-83 years old with an advanced or life-limiting cancer diagnosis completed an intervention. Feasibility and acceptability was strong with 0% attrition. While the pilot study was not powered for quantitative significance, there were changes from baseline to post-intervention in the participants\u2019 total or subscale FACT-G scores, PDI, HADS anxiety or depression scores, and Emotional Thermometer scores.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>A digital video legacy-making intervention is feasible for adults with cancer without significant negative outcomes for individuals completing the study. It remains unclear whether this intervention contributes to positive quality of life outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1049909120971569","type":"journal-article","created":{"date-parts":[[2020,11,10]],"date-time":"2020-11-10T03:50:50Z","timestamp":1604980250000},"page":"772-777","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":11,"title":["Feasibility and Acceptability of Digital Legacy-Making: An Innovative Story-Telling Intervention for Adults With Cancer"],"prefix":"10.1177","volume":"38","author":[{"given":"Susan","family":"DeSanto-Madeya","sequence":"first","affiliation":[{"name":"College of Nursing, University of Rhode Island, South Kingstown, RI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4541-0460","authenticated-orcid":false,"given":"Jennifer","family":"Tjia","sequence":"additional","affiliation":[{"name":"University of Massachusetts Medical School, Worcester, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christina","family":"Fitch","sequence":"additional","affiliation":[{"name":"University of Massachusetts Medical School, Worcester, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy","family":"Wachholtz","sequence":"additional","affiliation":[{"name":"University of Massachusetts Medical School, Worcester, MA, USA"},{"name":"University of Colorado Denver, Denver, CO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,11,10]]},"reference":[{"key":"bibr1-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1186\/s12885-019-6181-4"},{"key":"bibr2-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-018-4215-0"},{"key":"bibr3-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1764"},{"key":"bibr4-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(01)00084-3"},{"key":"bibr5-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951511000538"},{"key":"bibr6-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2005.08.391"},{"key":"bibr7-1049909120971569","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(11)70153-X"},{"key":"bibr8-1049909120971569","doi-asserted-by":"crossref","unstructured":"Fitchett G, Emanuel L, Handzo G, Boyken L, Wilkie DJ. 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