{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T16:36:49Z","timestamp":1783960609563,"version":"3.55.0"},"reference-count":18,"publisher":"SAGE Publications","issue":"12","license":[{"start":{"date-parts":[[2021,2,9]],"date-time":"2021-02-09T00:00:00Z","timestamp":1612828800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["1R01CA200867"],"award-info":[{"award-number":["1R01CA200867"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"published-print":{"date-parts":[[2021,12]]},"abstract":"<jats:p>A routine threat to palliative care research is participants not completing studies. The purpose of this analysis was to quantify attrition rates mid-way through a palliative care study on Dignity Therapy and describe the reasons cited for attrition. Enrolled in the study were a total of 365 outpatients with cancer who were receiving outpatient specialty palliative care (mean age 66.7 \u00b1 7.3 years, 56% female, 72% White, 22% Black, 6% other race\/ethnicity). These participants completed an initial screening for cognitive status, performance status, physical distress, and spiritual distress. There were 76 eligible participants who did not complete the study (58% female, mean age 67.9 \u00b1 7.3 years, 76% White, 17% Black, and 7% other race). Of those not completing the study, the average scores were 74.5 \u00b1 11.7 on the Palliative Performance Scale and 28.3 \u00b1 1.5 on the Mini-Mental Status Examination, whereas 22% had high spiritual distress scores and 45% had high physical distress scores. The most common reason for attrition was death\/decline of health (47%), followed by patient withdrawal from the study (21%), and patient lost to follow-up (21%). The overall attrition rate was 24% and within the a priori projected attrition rate of 20%-30%. Considering the current historical context, this interim analysis is important because it will serve as baseline data on attrition prior to the outbreak of the COVID-19 pandemic. Future research will compare these results with attrition throughout the rest of the study, allowing analysis of the effect of the COVID-19 pandemic on the study attrition.<\/jats:p>","DOI":"10.1177\/1049909121994309","type":"journal-article","created":{"date-parts":[[2021,2,13]],"date-time":"2021-02-13T05:26:54Z","timestamp":1613194014000},"page":"1503-1508","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":7,"title":["Interim Analysis of Attrition Rates in Palliative Care Study on Dignity Therapy"],"prefix":"10.1177","volume":"38","author":[{"given":"Virginia","family":"Samuels","sequence":"first","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tasha M.","family":"Schoppee","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"},{"name":"Community Hospice & Palliative Care, Jacksonville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amelia","family":"Greenlee","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Destiny","family":"Gordon","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stacey","family":"Jean","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Valandrea","family":"Smith","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tyra","family":"Reed","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheri","family":"Kittelson","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tammie","family":"Quest","sequence":"additional","affiliation":[{"name":"Emory University School of Medicine, Atlanta, GA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0809-5238","authenticated-orcid":false,"given":"Sean","family":"O\u2019Mahony","sequence":"additional","affiliation":[{"name":"Rush University Medical Center, Chicago, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josh","family":"Hauser","sequence":"additional","affiliation":[{"name":"Northwestern University, Evanston, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marvin O. Delgado","family":"Guay","sequence":"additional","affiliation":[{"name":"University of Texas MD Anderson Cancer Center, Houston, TX, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael W.","family":"Rabow","sequence":"additional","affiliation":[{"name":"University of California San Francisco, San Francisco, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Linda","family":"Emanuel","sequence":"additional","affiliation":[{"name":"Northwestern University, Evanston, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George","family":"Fitchett","sequence":"additional","affiliation":[{"name":"Rush University Medical Center, Chicago, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George","family":"Handzo","sequence":"additional","affiliation":[{"name":"Healthcare Chaplaincy, New York, NY, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Harvey Max","family":"Chochinov","sequence":"additional","affiliation":[{"name":"CancerCare Manitoba, Winnipeg, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yingwei","family":"Yao","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3954-8933","authenticated-orcid":false,"given":"Diana J.","family":"Wilkie","sequence":"additional","affiliation":[{"name":"University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2021,2,9]]},"reference":[{"key":"bibr1-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1002\/pon.2013"},{"key":"bibr2-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.27854"},{"key":"bibr3-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-019-0506-6"},{"key":"bibr4-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2354.2002.00343.x"},{"key":"bibr5-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2017.11.009"},{"key":"bibr6-1049909121994309","doi-asserted-by":"publisher","DOI":"10.2196\/12213"},{"key":"bibr7-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(11)70153-X"},{"key":"bibr8-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-015-0007-1"},{"key":"bibr9-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1177\/1049909118777987"},{"key":"bibr10-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2008.03.023"},{"key":"bibr11-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1016\/0022-3956(75)90026-6"},{"key":"bibr12-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1037\/a0036465"},{"key":"bibr13-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2007.12.018"},{"key":"bibr14-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1177\/082585979601200102"},{"key":"bibr15-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2005.8.492"},{"issue":"1","key":"bibr16-1049909121994309","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1016\/S0885-3924(99)00040-8","volume":"18","author":"Morita T","year":"1999","journal-title":"J Pain Symptom Manage"},{"key":"bibr17-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2006.0125"},{"key":"bibr18-1049909121994309","doi-asserted-by":"publisher","DOI":"10.1016\/S0885-3924(02)00407-4"}],"container-title":["American Journal of Hospice and Palliative Medicine\u00ae"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1049909121994309","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1049909121994309","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1049909121994309","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T09:30:23Z","timestamp":1777368623000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1049909121994309"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,2,9]]},"references-count":18,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2021,12]]}},"alternative-id":["10.1177\/1049909121994309"],"URL":"https:\/\/doi.org\/10.1177\/1049909121994309","relation":{},"ISSN":["1049-9091","1938-2715"],"issn-type":[{"value":"1049-9091","type":"print"},{"value":"1938-2715","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,2,9]]}}}