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Here, we discuss a case of an infant born at 28 weeks\u2019 gestation with a diagnosis of Carmi syndrome (junctional epidermolysis bullosa and pyloric atresia). While the medical team felt that a do-not-resuscitate order and redirection to comfort care were appropriate, the family held on to hope for recovery and wished to continue with full intensive care measures.<\/jats:p>","DOI":"10.1177\/10499091221088829","type":"journal-article","created":{"date-parts":[[2022,4,24]],"date-time":"2022-04-24T06:43:14Z","timestamp":1650782594000},"page":"106-110","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Ethics Roundtable: How Much is Too Much?"],"prefix":"10.1177","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7169-0262","authenticated-orcid":false,"given":"Mariana F.","family":"Theodoro","sequence":"first","affiliation":[{"name":"Graduate Medical Education, Johns Hopkins All Children\u2019s Hospital, St. Petersburg, FL, USA"},{"name":"Department of Pediatrics, Division of Neonatology, Johns Hopkins All Children\u2019s Hospital, St. Petersburg, FL, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jacinda","family":"Hays","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Hospice and Palliative Medicine, Johns Hopkins All Children\u2019s Hospital, St. Petersburg, FL, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mara","family":"DiBartolomeo","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neonatology, Johns Hopkins All Children\u2019s Hospital, St. Petersburg, FL, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brian","family":"Carter","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neonatology and Bioethics Center, Children\u2019s Mercy Hospital, Kansas City, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2022,4,24]]},"reference":[{"key":"bibr1-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1155\/2018\/4548194"},{"key":"bibr2-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2018.05.019"},{"key":"bibr3-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2008-2061"},{"key":"bibr4-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1542\/peds.108.1.152"},{"key":"bibr5-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2004-2274"},{"key":"bibr6-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1186\/s40748-020-00116-0"},{"key":"bibr7-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1001\/jama.281.21.1991"},{"key":"bibr8-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1053\/j.semperi.2013.07.007"},{"issue":"146","key":"bibr9-10499091221088829","first-page":"34408","volume":"48","year":"1983","journal-title":"Fed Regist"},{"key":"bibr10-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1007\/s11017-020-09535-8"},{"key":"bibr11-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-0818N"},{"key":"bibr12-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1001\/amajethics.2019.831"},{"key":"bibr13-10499091221088829","doi-asserted-by":"publisher","DOI":"10.1001\/journalofethics.2017.19.6.pfor1-1706"},{"issue":"4","key":"bibr14-10499091221088829","first-page":"741","volume":"92","author":"Moore BS","year":"2019","journal-title":"Yale J Biol Med"}],"container-title":["American Journal of Hospice and Palliative Medicine\u00ae"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10499091221088829","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10499091221088829","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10499091221088829","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T09:30:28Z","timestamp":1777368628000},"score":1,"resource":{"primary":{"URL":"http:\/\/journals.sagepub.com\/doi\/10.1177\/10499091221088829"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,4,24]]},"references-count":14,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,1]]}},"alternative-id":["10.1177\/10499091221088829"],"URL":"https:\/\/doi.org\/10.1177\/10499091221088829","relation":{},"ISSN":["1049-9091","1938-2715"],"issn-type":[{"value":"1049-9091","type":"print"},{"value":"1938-2715","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,4,24]]}}}