{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T20:09:12Z","timestamp":1787170152167,"version":"build-2736575974"},"reference-count":28,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2023,3,28]],"date-time":"2023-03-28T00:00:00Z","timestamp":1679961600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["R21NR017978-01A1S1"],"award-info":[{"award-number":["R21NR017978-01A1S1"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","award":["R21NR017978"],"award-info":[{"award-number":["R21NR017978"]}],"id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:p>Background: Hospice is intended to promote the comfort and quality of life of dying patients and their families. When patients are discharged from hospice prior to death (ie, experience a \u201clive discharge\u201d), care continuity is disrupted. This systematic review summarizes the growing body of evidence on live discharge among hospice patients with Alzheimer\u2019s Disease and related dementias (ADRD), a clinical subpopulation that disproportionately experiences this often burdensome care transition. Methods: Researchers conducted a systematic review in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Reviewers searched AgeLine, APA PsycINFO (Ovid), CINAHL Plus with Full Text, ProQuest Dissertations &amp; Theses Global, PubMed, Scopus, and Web of Science (Core Collection). Reviewers extracted data and synthesized findings from 9 records, which reported findings from 10 individual studies. Results: The reviewed studies, which were generally of high quality, consistently identified diagnosis of ADRD as a risk factor for live discharge from hospice. The relationship between race and live hospice discharge was less clear and likely dependent upon the type of discharge under investigation and other (eg, systemic-level) factors. Research on patient and family experiences underscored the extent to which live hospice discharge can be distressing, confusing, and associated with numerous losses. Conclusion: Research specific to live discharge among ADRD patients and their families is limited. Synthesis across included studies points to the importance for future research to differentiate between types of live discharge\u2014revocation vsversus decertification\u2014as these are vastly different experiences in choice and circumstances.<\/jats:p>","DOI":"10.1177\/10499091231168401","type":"journal-article","created":{"date-parts":[[2023,3,28]],"date-time":"2023-03-28T20:17:23Z","timestamp":1680034643000},"page":"228-239","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":16,"title":["Live Discharge of Hospice Patients with Alzheimer\u2019s Disease and Related Dementias: A Systematic Review"],"prefix":"10.1177","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4697-1139","authenticated-orcid":false,"given":"Stephanie P","family":"Wladkowski","sequence":"first","affiliation":[{"name":"College of Health and Human Services, Bowling Green State University Department of Human Services, Bowling Green, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6739-1910","authenticated-orcid":false,"given":"Cara L","family":"Wallace","sequence":"additional","affiliation":[{"name":"School of Social Work, Saint Louis University, St. Louis, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathryn","family":"Coccia","sequence":"additional","affiliation":[{"name":"School of Social Work, Saint Louis University, St. Louis, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca C","family":"Hyde","sequence":"additional","affiliation":[{"name":"Pius XII Memorial Library, Saint Louis University, St. Louis, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leslie","family":"Hinyard","sequence":"additional","affiliation":[{"name":"Department of Health and Clinical Outcomes Research, School of Medicine, Saint Louis University, St. Louis, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1100-9524","authenticated-orcid":false,"given":"Karla T","family":"Washington","sequence":"additional","affiliation":[{"name":"Division of Palliative Medicine, School of Medicine, Washington University in St. Louis, St. Louis, MO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2023,3,28]]},"reference":[{"issue":"109","key":"bibr1-10499091231168401","first-page":"32087","volume":"73","author":"Medicare and Medicaid Programs: Hospice Conditions of Participation","year":"2008","journal-title":"Fed Regist"},{"key":"bibr2-10499091231168401","volume-title":"NHPCO Facts and Figures","author":"National Hospice and Palliative Care Organization","year":"2021"},{"key":"bibr3-10499091231168401","doi-asserted-by":"publisher","DOI":"10.1177\/23337214221109984"},{"key":"bibr4-10499091231168401","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.17107"},{"key":"bibr5-10499091231168401","volume-title":"Understanding and Managing Live Patient Discharge in Hospice Care","author":"Hospice National, Palliative Care Organization","year":"2022"},{"key":"bibr6-10499091231168401","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2010.1572"},{"key":"bibr7-10499091231168401","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211025457"},{"key":"bibr8-10499091231168401","volume-title":"Office of the Assistant Secretary for Planning and Evaluation. 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Drivers of live discharge from the medicare hospice program: A mixed methods study. Doctoral Dissertation. 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