{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T14:02:41Z","timestamp":1777384961036,"version":"3.51.4"},"reference-count":15,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,2,24]],"date-time":"2026-02-24T00:00:00Z","timestamp":1771891200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Brown University School of Public Health","award":["Catalyst Grant"],"award-info":[{"award-number":["Catalyst Grant"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The goal of palliative care (PC) is to reduce suffering and improve quality of life for patients with life-limiting illnesses and their families. Prior studies consistently demonstrate high symptom burden among PC patients; however, most evidence comes from cancer populations outside the US, leaving a gap in large-scale US data across disease groups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a retrospective cohort study using quality metrics from a large, nonprofit hospice agency in the US Northeast. The study included 5871 patients who received palliative care services and had at least one Edmonton Symptom Assessment Scale (ESAS) assessment between July 2022 and December 2023. Five symptoms are described by severity on a 0-10 scale in a sample with malignant and non-malignant diagnoses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We observed high prevalence of pain (34.3%), anxiety (32.3%), and dyspnea (28.0%) at first consultation. Many patients also reported moderate (4-6) or severe (7-10) intensity for pain (17.6% and 16.7%, respectively). Symptom burden also varied across disease groups: patients with solid tumors (63.3%) and liver disease (57.5%) exhibited particularly high rates of pain, while heart (46.9%) and lung disease (66.8%) exhibited high dyspnea. Among the 2852 patients with repeated consultations, there was substantial symptom improvement for pain (33.1% of patients), anxiety (22.1%), and dyspnea (19.3%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Palliative care patients experience high symptom burden, varying by diagnosis. Planning access to tailored PC services to meet varying physical and emotional needs at a population level remains critical.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10499091261428541","type":"journal-article","created":{"date-parts":[[2026,2,25]],"date-time":"2026-02-25T07:37:11Z","timestamp":1772005031000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Symptom Burden Across Disease Groups in Palliative Care Consultations"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7301-0451","authenticated-orcid":false,"given":"Emmanuelle","family":"B\u00e9langer","sequence":"first","affiliation":[{"name":"Brown University School of Public Health"},{"name":"Department of Health Services, Policy &amp; Practice, Brown University School of Public Health, Providence, RI, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sai Pranav","family":"Kota","sequence":"additional","affiliation":[{"name":"Brown University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca E.","family":"MacDonell-Yilmaz","sequence":"additional","affiliation":[{"name":"Warren Alpert Medical School"},{"name":"HopeHealth Hospice and Palliative Care, Providence, RI, USA"},{"name":"Brown University"},{"name":"Health"},{"name":"Warren Alpert Medical School"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jennifer","family":"Ritzau","sequence":"additional","affiliation":[{"name":"HopeHealth Hospice and Palliative Care, Providence, RI, USA"},{"name":"Warren Alpert Medical School"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Trang","family":"Truong","sequence":"additional","affiliation":[{"name":"Warren Alpert Medical School"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pedro L.","family":"Gozalo","sequence":"additional","affiliation":[{"name":"Brown University School of Public Health"},{"name":"Department of Health Services, Policy &amp; Practice, Brown University School of Public Health, Providence, RI, USA"},{"name":"U.S. Department of Veterans Affairs Medical Center"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,2,24]]},"reference":[{"key":"e_1_3_6_2_2","doi-asserted-by":"publisher","DOI":"10.1002\/onco.13751"},{"key":"e_1_3_6_3_2","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-019-07320-z"},{"key":"e_1_3_6_4_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2018-001560"},{"key":"e_1_3_6_5_2","first-page":"104990912513821","article-title":"Home-based palliative Care for patients with non-cancer diagnoses: clinical characteristics, symptom burden, and service delivery","volume":"19","author":"Corr\u00eaa MI","year":"2025","unstructured":"Corr\u00eaa MI, Siqueira Ide OC, Souza S, Bruera E, Drummond-Lage AP. Home-based palliative Care for patients with non-cancer diagnoses: clinical characteristics, symptom burden, and service delivery. Am J Hops Palliat Care. 2025;19:10499091251382180.","journal-title":"Am J Hops Palliat Care"},{"key":"e_1_3_6_6_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-018-0721-7"},{"key":"e_1_3_6_7_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2016.0363"},{"key":"e_1_3_6_8_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2017.0111"},{"key":"e_1_3_6_9_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2022.0267"},{"key":"e_1_3_6_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.10.370"},{"key":"e_1_3_6_11_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(19)30172-X"},{"issue":"9","key":"e_1_3_6_12_2","first-page":"CD012780","article-title":"The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers","volume":"9","author":"Bajwah S","year":"2020","unstructured":"Bajwah S, Oluyase AO, Yi D, et al. The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. Cochrane Database Syst Rev. 2020;9(9):CD012780.","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_3_6_13_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamahealthforum.2023.2603"},{"key":"e_1_3_6_14_2","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2021.21161"},{"key":"e_1_3_6_15_2","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.30735"},{"key":"e_1_3_6_16_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2018.1078"}],"container-title":["American Journal of Hospice and Palliative Medicine\u00ae"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10499091261428541","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10499091261428541","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10499091261428541","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T09:31:45Z","timestamp":1777368705000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10499091261428541"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,24]]},"references-count":15,"alternative-id":["10.1177\/10499091261428541"],"URL":"https:\/\/doi.org\/10.1177\/10499091261428541","relation":{},"ISSN":["1049-9091","1938-2715"],"issn-type":[{"value":"1049-9091","type":"print"},{"value":"1938-2715","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,24]]},"article-number":"10499091261428541"}}