{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T14:02:55Z","timestamp":1777384975645,"version":"3.51.4"},"reference-count":28,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T00:00:00Z","timestamp":1773014400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T00:00:00Z","timestamp":1773014400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Tsinghua University Global Industry Research Institute - Ping An Group Research Project","award":["2024-09-23-LXHT008"],"award-info":[{"award-number":["2024-09-23-LXHT008"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Pediatric palliative care in Mainland China is still developing. Biological, psychological, and social factors may change during the course of illness and after the child\u2019s death.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>This study examines pediatric end-of-life decision-making in Mainland China across biological, psychological, and social dimensions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This study examined illness narratives using a case-based qualitative approach. The analysis included twelve pediatric end-of-life decision-making cases involving children from neonates to 18\u00a0years of age.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The findings indicate that diagnosis- and treatment-related decisions were primarily shaped by the child\u2019s biological condition. As time passed, parents\u2019 emotions played a larger role in decisions about continuing or stopping treatment and about fulfilling the child\u2019s wishes. Social considerations were evident in relation to financial costs, travel burden, and access to care. Following death, bereavement experiences and funeral customs further shaped decision-making, alongside constraints related to limited services and staff shortages.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The findings show that biological, psychological, and social factors changed over the course of illness and bereavement. This suggests a need for better decision support and follow-up bereavement care within pediatric palliative care services in Mainland China.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10499091261434572","type":"journal-article","created":{"date-parts":[[2026,3,11]],"date-time":"2026-03-11T15:29:24Z","timestamp":1773242964000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Pediatric End-of-Life Decision-Making in Mainland China: Case-Based Analysis of Illness Narratives"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3668-7708","authenticated-orcid":false,"given":"Yang","family":"Zhao","sequence":"first","affiliation":[{"name":"University of Auckland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jun","family":"Zhang","sequence":"additional","affiliation":[{"name":"Tsinghua University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Wah Yun","family":"Low","sequence":"additional","affiliation":[{"name":"University of Malaya"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,3,9]]},"reference":[{"key":"e_1_3_4_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0885-3924(00)00190-1"},{"key":"e_1_3_4_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2021.09.062"},{"key":"e_1_3_4_4_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-018-1021-2"},{"key":"e_1_3_4_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/00125817-200209000-00008"},{"key":"e_1_3_4_6_2","doi-asserted-by":"publisher","DOI":"10.3390\/children5070085"},{"key":"e_1_3_4_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320975308"},{"key":"e_1_3_4_8_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.clinme.2025.100487"},{"key":"e_1_3_4_9_2","doi-asserted-by":"publisher","DOI":"10.1097\/njh.0000000000001088"},{"key":"e_1_3_4_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2020.112846"},{"key":"e_1_3_4_11_2","doi-asserted-by":"publisher","DOI":"10.1370\/afm.245"},{"key":"e_1_3_4_12_2","doi-asserted-by":"publisher","DOI":"10.1111\/apa.16517"},{"key":"e_1_3_4_13_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2024.117338"},{"key":"e_1_3_4_14_2","doi-asserted-by":"publisher","DOI":"10.7499\/j.issn.1008-8830.1912078"},{"key":"e_1_3_4_15_2","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-11-100"},{"key":"e_1_3_4_16_2","doi-asserted-by":"publisher","DOI":"10.3390\/bs8050042"},{"key":"e_1_3_4_17_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2022.12.004"},{"key":"e_1_3_4_18_2","doi-asserted-by":"publisher","DOI":"10.1111\/scs.70157"},{"key":"e_1_3_4_19_2","doi-asserted-by":"publisher","DOI":"10.1097\/01.Pcc.0000269399.47060.6d"},{"key":"e_1_3_4_20_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.anr.2013.12.002"},{"key":"e_1_3_4_21_2","doi-asserted-by":"publisher","DOI":"10.1080\/24694193.2017.1330371"},{"key":"e_1_3_4_22_2","doi-asserted-by":"publisher","DOI":"10.1097\/njh.0000000000000839"},{"key":"e_1_3_4_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319860662"},{"key":"e_1_3_4_24_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-019-04728-x"},{"key":"e_1_3_4_25_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2022.12.029"},{"key":"e_1_3_4_26_2","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.157.10.1035"},{"key":"e_1_3_4_27_2","doi-asserted-by":"publisher","DOI":"10.1097\/md.0000000000018625"},{"key":"e_1_3_4_28_2","doi-asserted-by":"publisher","DOI":"10.1201\/9781032676043-20"},{"issue":"5","key":"e_1_3_4_29_2","first-page":"45","article-title":"Evolution and trend of the cross-pooling healthcare policy of basic medical insurance in China: based on content analysis of policy document","volume":"14","author":"Xie L-q","year":"2021","unstructured":"Xie L-q, Hu H-p. 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