{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,20]],"date-time":"2026-05-20T08:11:50Z","timestamp":1779264710606,"version":"3.51.4"},"reference-count":26,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T00:00:00Z","timestamp":1778889600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["K76AG059997"],"award-info":[{"award-number":["K76AG059997"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Hosp Palliat Care"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Family caregivers provide essential support to patients receiving home hospice care, often assuming complex clinical and personal care tasks that may impact caregiver mental health. Although hospice caregivers experience high prevalence of anxiety and depression, there is a lack of studies connecting these findings to caregivers\u2019 lived experiences, coping strategies, and openness to mental health interventions during hospice care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To (1) characterize hospice caregivers\u2019 mental health symptoms and stressors, (2) identify coping strategies used during hospice, and (3) assess caregivers\u2019 receptiveness to mental health interventions during the hospice period.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted semi-structured interviews with caregivers who completed the Improving Home hospice Management of End-of-life symptoms (I-HoME) study. Eligible caregivers were \u226518 years, English-speaking, and provided weekly care to a home hospice patient aged \u226565. From July to October 2025, 80 caregivers were contacted, and 26 participated. Interviews were audio-recorded and analyzed using qualitative methods.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Participants\u2019 mean age was 58; most were female (77%) and adult children (85%), providing an average of 12 caregiving hours\/day. Caregivers commonly described anxiety around caregiving responsibilities and depressive symptoms associated with impending bereavement. Key stressors included witnessing a loved one\u2019s decline, caregiver burden, and the unpredictable end-of-life trajectory. Coping strategies included support from family\/friends, hospice staff, and religion. Most caregivers expressed interest in mental health services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Home hospice caregivers experience substantial anxiety and depressive symptoms driven by patient decline, high burden, and prognostic uncertainty, yet are receptive to flexible, individualized mental health interventions during hospice care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10499091261454307","type":"journal-article","created":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T15:48:38Z","timestamp":1778946518000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Mental Health Experiences of Home Hospice Caregivers: A Qualitative Study of Their Lived Experiences"],"prefix":"10.1177","author":[{"given":"Vanessa","family":"Liao","sequence":"first","affiliation":[{"name":"Weill Cornell Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4686-1397","authenticated-orcid":false,"given":"Irina","family":"Mindlis","sequence":"additional","affiliation":[{"name":"Rutgers University Robert Wood Johnson Medical School"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8168-2255","authenticated-orcid":false,"given":"Daniel","family":"Shalev","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shanyna","family":"Joasil","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elaine","family":"Yu","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Giancarlo","family":"Chuquitarco","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7488-1264","authenticated-orcid":false,"given":"Veerawat","family":"Phongtankuel","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,5,16]]},"reference":[{"key":"e_1_3_6_2_2","unstructured":"2024 Edition: NHPCO Facts and Figures. National Alliance for Care at Home. https:\/\/allianceforcareathome.org\/wp-content\/uploads\/2024\/09\/Facts-Figures-2024_FINAL.pdf (2024)."},{"key":"e_1_3_6_3_2","unstructured":"2020 Edition: NHPCO Hospice Facts and Figures.. National Hospice and Palliative Care Organization. https:\/\/allianceforcareathome.org\/wp-content\/uploads\/NHPCO-Facts-Figures-2020-edition.pdf (2020)."},{"key":"e_1_3_6_4_2","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-12-7"},{"key":"e_1_3_6_5_2","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2017.0134"},{"key":"e_1_3_6_6_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2016.0372"},{"key":"e_1_3_6_7_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2021.0302"},{"key":"e_1_3_6_8_2","unstructured":"Key substance use and mental health indicators in the United States: results from the 2024 national survey on drug use and health. Substance Abuse and Mental Health Services Administration. 2025. https:\/\/www.samhsa.gov\/data\/data-we-collect\/nsduh-national-survey-drug-use-and-health\/national-releases"},{"key":"e_1_3_6_9_2","first-page":"1","article-title":"Symptoms of depression among adults: United States, 2019","volume":"379","author":"Villarroel MA","year":"2020","unstructured":"Villarroel MA, Terlizzi EP. Symptoms of depression among adults: United States, 2019. 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