{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T04:21:12Z","timestamp":1777522872231,"version":"3.51.4"},"reference-count":22,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2018,3,21]],"date-time":"2018-03-21T00:00:00Z","timestamp":1521590400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2018,11]]},"abstract":"<jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>Our objective is to describe the process of adapting a conceptual framework into a practical toolkit for one cleft team.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>This is a single-arm implementation study in a single institution.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting:<\/jats:title>\n                    <jats:p>Implementation took place at a mid-sized multidisciplinary clinic for patients with cleft lip and\/or palate (CL\/P) from urban\/suburban and rural areas across North Carolina and neighboring states.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants:<\/jats:title>\n                    <jats:p>Eligible participants were patients with CL\/P from English-speaking families. Sixty patients entered and finished the study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Interventions:<\/jats:title>\n                    <jats:p>The implementation of a prospective data collection system based on the International Consortium for Health Outcomes Measurement (ICHOM) standard set of outcome measures for CL\/P was accomplished in multiple stages. Patient- and clinician-reported forms and protocols for gathering data were created. Team members were trained and the system was tested; finally, the system was deployed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main outcome measures:<\/jats:title>\n                    <jats:p>Success was appraised using the RE-AIM framework to assess reach, effectiveness, adoption, implementation, and maintenance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Ninety-eight percent of patients and all team members agreed to participate. Ninety-four percent of required data were captured. Adaptations to friction points were made; specifically, visible reminders were affixed to charts, primary clinicians were required to assume data entry responsibility, and e-mail reminders were instituted. Development cost was US$7707; average time cost per clinician was 21 min\/wk.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Conceptual frameworks for outcomes studies must be tailored to their environments; otherwise, they cannot be practically implemented and sustained. We present this process for a cleft team using the ICHOM standard set. The process may help other teams implement the standard set or other conceptual frameworks.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1055665618764952","type":"journal-article","created":{"date-parts":[[2018,3,21]],"date-time":"2018-03-21T14:57:12Z","timestamp":1521644232000},"page":"1382-1390","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":22,"title":["Implementation of a Standardized Data-Collection System for Comprehensive Appraisal of Cleft Care"],"prefix":"10.1177","volume":"55","author":[{"given":"Peter G.","family":"Bittar","sequence":"first","affiliation":[{"name":"Duke University School of Medicine, Durham, NC, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna R.","family":"Carlson","sequence":"additional","affiliation":[{"name":"Division of Plastic, Maxillofacial and Oral Surgery, Department of Surgery, Duke University Hospital, Durham, NC, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ann","family":"Mabie-DeRuyter","sequence":"additional","affiliation":[{"name":"Division of Otolaryngology and Communication Sciences, Department of Surgery, Duke University Hospital; Durham, NC, USA"},{"name":"Duke Cleft and Craniofacial Center, Duke Children\u2019s Hospital, Durham, NC, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeffrey R.","family":"Marcus","sequence":"additional","affiliation":[{"name":"Division of Plastic, Maxillofacial and Oral Surgery, Department of Surgery, Duke University Hospital, Durham, NC, USA"},{"name":"Duke Cleft and Craniofacial Center, Duke Children\u2019s Hospital, Durham, NC, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexander C.","family":"Allori","sequence":"additional","affiliation":[{"name":"Division of Plastic, Maxillofacial and Oral Surgery, Department of Surgery, Duke University Hospital, Durham, NC, USA"},{"name":"Duke Cleft and Craniofacial Center, Duke Children\u2019s Hospital, Durham, NC, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2018,3,21]]},"reference":[{"key":"bibr1-1055665618764952","unstructured":"AAMC. Careers in medicine. 2017. https:\/\/www.aamc.org\/cim\/specialty\/exploreoptions\/list\/. Accessed June 2, 2017."},{"key":"bibr2-1055665618764952","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2010.28.5478"},{"key":"bibr3-1055665618764952","doi-asserted-by":"publisher","DOI":"10.1597\/15-292"},{"key":"bibr4-1055665618764952","unstructured":"American Cleft Palate-Craniofacial Association. Standards of team care for cleft palate and craniofacial teams. http:\/\/www.acpa-cpf.org\/team_care\/standards\/-standard6. Accessed June 23, 2017"},{"key":"bibr5-1055665618764952","doi-asserted-by":"publisher","DOI":"10.1097\/00000637-198403000-00004"},{"key":"bibr6-1055665618764952","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_2001_038_0038_clapci_2.0.co_2"},{"key":"bibr7-1055665618764952","unstructured":"Bureau of Labor Statistics, U.S. Department of Labor. Occupational employment statistics. 2016. https:\/\/www.bls.gov\/oes\/current\/oes_stru.htm-29-0000. 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Kirschstein national research service awards (nrsa) postdoctoral stipends, training related expenses, institutional allowance, and tuition\/fees effective for fiscal year 2017. 2016. https:\/\/grants.nih.gov\/grants\/guide\/notice-files\/NOT-OD-17-003.html. Accessed June 2, 2017."},{"key":"bibr16-1055665618764952","doi-asserted-by":"crossref","unstructured":"Park S, Antony J. Robust Design for Quality Engineering and Six Sigma. 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