{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T04:24:47Z","timestamp":1777523087040,"version":"3.51.4"},"reference-count":18,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2019,6,13]],"date-time":"2019-06-13T00:00:00Z","timestamp":1560384000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2019,11]]},"abstract":"<jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>To evaluate attrition rates prior to expected completion of team care for children with complete cleft lip and palate (cleft) or nonsyndromic single-suture craniosynostosis (synostosis).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>A single-institution retrospective review of attendance data from 2002 to 2016.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting:<\/jats:title>\n                    <jats:p>Single cleft and craniofacial center in the United States.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patients\/Participants:<\/jats:title>\n                    <jats:p>A sample of 983 patients with either cleft or synostosis. Patients who were more than 2 to 3 years from their last visit were considered lost to follow-up. Patients with cleft older than 16 years or synostosis over 11 years were considered graduated from team care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Survival analysis shows that in our patients with cleft, 25% leave before age 8 and over 60% are lost from team by age 16. In patients with synostosis, 25% leave before age 6 and 45% are lost by age 11. Cox regression showed underrepresented minorities being 1.7 times more likely to become lost in the cleft group (hazard ratio: 1.66, 95% confidence interval [CI]: 1.01-2.74).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Overall, attrition rates were high at our institution. Many patients are lost to follow-up prior to receiving key medical interventions. Improved family education and personalized care are needed to help ensure continuity of care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1055665619856245","type":"journal-article","created":{"date-parts":[[2019,6,14]],"date-time":"2019-06-14T00:15:29Z","timestamp":1560471329000},"page":"1287-1294","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":22,"title":["Cleft and Craniofacial Multidisciplinary Team Clinic: A Look at Attrition Rates for Patients With Complete Cleft Lip and Palate and Nonsyndromic Single-Suture Craniosynostosis"],"prefix":"10.1177","volume":"56","author":[{"given":"Danielle C.","family":"Cooper","sequence":"first","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erin C.","family":"Peterson","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cheryl G.","family":"Grellner","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sybill D.","family":"Naidoo","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gary B.","family":"Skolnick","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8880-2881","authenticated-orcid":false,"given":"Kristin D.","family":"Pfeifauf","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthew D.","family":"Smyth","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alison K.","family":"Snyder-Warwick","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kamlesh B.","family":"Patel","sequence":"additional","affiliation":[{"name":"Division of Plastic and Reconstructive Surgery, Washington University in St Louis, St Louis, MO, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2019,6,13]]},"reference":[{"key":"bibr1-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/01.prs.0000172763.71043.b8"},{"key":"bibr2-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0000000000001940"},{"key":"bibr3-1055665619856245","doi-asserted-by":"publisher","DOI":"10.2147\/JMDH.S100248"},{"key":"bibr4-1055665619856245","first-page":"3","volume-title":"Comprehensive Cleft Care","volume":"1","author":"Cohen MA","year":"2016","edition":"2"},{"key":"bibr5-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/01.PRS.0000132854.14237.A8"},{"key":"bibr6-1055665619856245","first-page":"1171","volume-title":"Comprehensive Cleft Care","volume":"2","author":"Daskalogiannakis J","year":"2016","edition":"2"},{"issue":"4","key":"bibr7-1055665619856245","first-page":"e155","volume":"52","author":"Deuber C","year":"2015","journal-title":"Cleft Palate Craniofac J"},{"key":"bibr8-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0b013e31822b6a67"},{"issue":"5","key":"bibr9-1055665619856245","first-page":"382","volume":"105","author":"Kelleher MO","year":"2006","journal-title":"J Neurosurg"},{"key":"bibr10-1055665619856245","unstructured":"Koop CE. Surgeon General\u2019s Report: children with special health care needs. United States Department of Health and Human Services. Office of Maternal and Child Health, Public Health Service. 1987."},{"key":"bibr11-1055665619856245","first-page":"453","volume-title":"Comprehensive Cleft Care","volume":"1","author":"Long RE","year":"2016","edition":"2"},{"key":"bibr12-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0000000000002016"},{"key":"bibr13-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.b2803"},{"key":"bibr14-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2007.00565.x"},{"issue":"4","key":"bibr15-1055665619856245","first-page":"e110","volume":"52","author":"Truong T","year":"2015","journal-title":"Cleft Palate Craniofac J"},{"key":"bibr16-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000003687"},{"key":"bibr17-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/SAP.0000000000001044"},{"key":"bibr18-1055665619856245","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0b013e3182412a50"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1055665619856245","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1055665619856245","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1055665619856245","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:19:38Z","timestamp":1777393178000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1055665619856245"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,6,13]]},"references-count":18,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2019,11]]}},"alternative-id":["10.1177\/1055665619856245"],"URL":"https:\/\/doi.org\/10.1177\/1055665619856245","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,6,13]]}}}