{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,4]],"date-time":"2026-11-04T19:55:07Z","timestamp":1793822107992,"version":"4.6.1"},"reference-count":64,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2019,8,20]],"date-time":"2019-08-20T00:00:00Z","timestamp":1566259200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100001318","name":"University of the West of England","doi-asserted-by":"crossref","award":["Vice Chancellor\u2019s Early Career Researcher Develo"],"award-info":[{"award-number":["Vice Chancellor\u2019s Early Career Researcher Develo"]}],"id":[{"id":"10.13039\/501100001318","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2020,2]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist clinicians working in cleft lip and\/or palate (CL\/P) services hold a wealth of knowledge and experience yet to be elicited. The aims of this study were to identify common psychosocial challenges and potential risk and\/or protective factors for psychosocial distress from the perspective of specialist clinicians and to establish the types of interventions currently being delivered in practice.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Individual interviews with 17 clinical nurse specialists and 19 specialist clinical psychologists, representing all 16 UK CL\/P surgical sites. Data were analyzed using inductive content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Numerous psychosocial challenges affecting individuals with CL\/P and their families were identified across the life span. Risk factors were predominantly contextual in nature, while protective factors appeared amenable to intervention. Participants drew upon a range of therapeutic models and approaches to guide formulation and intervention, while acknowledging the lack of evidence to support these approaches in CL\/P populations specifically.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Findings have important implications for the way in which psychosocial support for CL\/P and related conditions is delivered and evaluated. A framework for the standardized assessment of holistic individual and familial well-being is proposed. Suggestions for increasing the evidence base for specific psychosocial interventions are made, including enhanced family functioning; social, emotional, and appearance concerns; treatment decision-making; and screening for psychosocial and developmental issues.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1055665619868331","type":"journal-article","created":{"date-parts":[[2019,8,21]],"date-time":"2019-08-21T01:18:48Z","timestamp":1566350328000},"page":"186-197","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":24,"title":["Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and\/or Palate and Their Families: Current Clinical Practice in the United Kingdom"],"prefix":"10.1177","volume":"57","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1285-691X","authenticated-orcid":false,"given":"Nicola Marie","family":"Stock","sequence":"first","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Coldharbour Lane, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fabio","family":"Zucchelli","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Coldharbour Lane, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nichola","family":"Hudson","sequence":"additional","affiliation":[{"name":"Spires Cleft Centre, Salisbury, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James D.","family":"Kiff","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Coldharbour Lane, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vanessa","family":"Hammond","sequence":"additional","affiliation":[{"name":"Welsh Centre for Cleft Lip and Palate, Swansea, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2019,8,20]]},"reference":[{"key":"e_1_3_4_2_1","volume-title":"Identifying the Psychosocial Factors and Processes Contributing to Successful Adjustment to Disfiguring Conditions","author":"Appearance Research Collaboration","year":"2009","unstructured":"Appearance Research Collaboration. 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