{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T10:38:37Z","timestamp":1788431917839,"version":"build-2803163510"},"reference-count":27,"publisher":"SAGE Publications","issue":"5","license":[{"start":{"date-parts":[[2019,12,9]],"date-time":"2019-12-09T00:00:00Z","timestamp":1575849600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate-Craniofacial Journal"],"published-print":{"date-parts":[[2020,5]]},"abstract":"<jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>Having a child born with a cleft lip and\/or palate (CL\/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health care is a risk factor for poor parental adjustment and family functioning. Yet, knowledge is lacking in regard to which aspects of care parents may be dissatisfied with. The current study aimed to comprehensively evaluate health-care satisfaction in families following a diagnosis of CL\/P by utilizing data collected from a UK-wide birth cohort.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Self-reported questionnaire data were obtained from 517 parent dyads enrolled in The Cleft Collective Birth Cohort Study. The \u201cPediatric Quality of Life Inventory\u2014Healthcare Satisfaction Generic Module\u201d was used as the primary outcome measure.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Overall, parents were satisfied with the care they had received. However, less favorable scores were identified in relation to the information parents had been given. A good degree of agreement between mothers and fathers was observed. However, marginal evidence suggested that fathers were significantly more dissatisfied than mothers regarding the \u201cCommunication\u201d and \u201cInclusion of Family\u201d subscales.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Although the findings of this large-scale study reflect overall health-care satisfaction, issues are raised in relation to the quality of information families received, particularly for fathers. In addition, fathers may feel less included in their child\u2019s treatment pathway. These findings offer practical suggestions as to which areas of care could be targeted by all health professionals to improve parents\u2019 health-care experiences and promote overall familial adjustment.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1055665619888318","type":"journal-article","created":{"date-parts":[[2019,12,9]],"date-time":"2019-12-09T04:55:19Z","timestamp":1575867319000},"page":"599-605","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":11,"title":["Satisfaction With Health Care in Families Following a Diagnosis of Cleft Lip and\/or Palate in the United Kingdom"],"prefix":"10.1177","volume":"57","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8275-695X","authenticated-orcid":false,"given":"Bruna","family":"Costa","sequence":"first","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul","family":"White","sequence":"additional","affiliation":[{"name":"Applied Statistics Group, University of the West of England, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1285-691X","authenticated-orcid":false,"given":"Nicola Marie","family":"Stock","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2019,12,9]]},"reference":[{"issue":"1","key":"bibr1-1055665619888318","first-page":"88","volume":"32","author":"Ahmann E","year":"2006","journal-title":"Pediatr Nurs"},{"key":"bibr3-1055665619888318","volume-title":"Annual Report on Cleft Lip and\/or Palate 2017","author":"Cleft Registry &amp; 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