{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T04:01:06Z","timestamp":1778126466929,"version":"3.51.4"},"reference-count":23,"publisher":"SAGE Publications","issue":"11","license":[{"start":{"date-parts":[[2020,6,30]],"date-time":"2020-06-30T00:00:00Z","timestamp":1593475200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2020,11]]},"abstract":"<jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>To describe the association between children\u2019s orofacial cleft (OFC) and families\u2019 quality of life (QoL), using the short-form Family Impact Scale questionnaire (FIS-SF). Also assessed were the psychometric properties of the FIS-SF, as well as whether certain demographic and clinical variables impacted the family.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Observational cross-sectional study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting:<\/jats:title>\n                    <jats:p>Tertiary care public children\u2019s hospital in New South Wales, Australia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants:<\/jats:title>\n                    <jats:p>Parents\/caregivers of children with OFC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main outcome measure(s):<\/jats:title>\n                    <jats:p>The short-form Family Impact Scale questionnaire.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Two hundred and fourteen parents completed the FIS-SF. Excellent convergent validity was evident, but discriminant validity was weaker. Those children with velopharyngeal insufficiency\/submucous cleft reported lower scores on the family\/parental activity, and lower overall family impact scores than those with cleft lip (CL) or cleft palate (CP). Those with cleft lip and palate (CL\/P) had poorer family\/parental activity scores than those with CP. There were no systematic differences in FIS-SF scores by the child\u2019s age, gender, private health insurance, living location, the number of cleft-related operations, or whether a child had commenced orthodontic treatment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>The FIS-SF is a valid and reliable measure for determining the impact that OFC has on family QoL. The impact of OFC on children\u2019s families differs according to cleft type.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1055665620936442","type":"journal-article","created":{"date-parts":[[2020,6,30]],"date-time":"2020-06-30T05:47:17Z","timestamp":1593496037000},"page":"1291-1297","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":10,"title":["Family Impact of Child Oro-Facial Cleft"],"prefix":"10.1177","volume":"57","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1274-3357","authenticated-orcid":false,"given":"Caitlin M.","family":"Agnew","sequence":"first","affiliation":[{"name":"Hospital and Specialist Dentistry, Auckland District Health Board, Auckland, New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lyndie A.","family":"Foster Page","sequence":"additional","affiliation":[{"name":"Department of Oral Sciences, Sir John Walsh Research Institute, School of Dentistry, The University of Otago, Dunedin, New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sally","family":"Hibbert","sequence":"additional","affiliation":[{"name":"Department of Paediatric Dentistry, Westmead Centre for Oral Health, Sydney, New South Wales, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"William M.","family":"Thomson","sequence":"additional","affiliation":[{"name":"Department of Oral Sciences, Sir John Walsh Research Institute, School of Dentistry, The University of Otago, Dunedin, New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2020,6,30]]},"reference":[{"key":"e_1_3_4_2_1","article-title":"Congenital anomalies in Australia 2002-2003","author":"Abeywardana S","year":"2008","unstructured":"Abeywardana S, Sullivan EA. 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