{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T04:30:14Z","timestamp":1777523414438,"version":"3.51.4"},"reference-count":46,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2020,7,31]],"date-time":"2020-07-31T00:00:00Z","timestamp":1596153600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100018379","name":"VTCT Foundation","doi-asserted-by":"crossref","award":["1155360"],"award-info":[{"award-number":["1155360"]}],"id":[{"id":"10.13039\/100018379","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2021,2]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>Previous research in the field of cleft lip and\/or palate (CL\/P) has indicated a high prevalence of common health concerns, functional difficulties, and additional conditions known to affect long-term physical health, cognitive development, and psychological well-being. The aim of the present study was to examine the self-reported physical health of a national sample of adults born with CL\/P.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Drawing upon previous literature, an online, mixed-methods survey was designed by the Cleft Lip and Palate Association in collaboration with the Centre for Appearance Research at the University of the West of England. A total of 207 eligible responses were received between July and October 2018. Qualitative data were analyzed using inductive content analysis, while quantitative data were analyzed using descriptive statistics.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>A considerable proportion of participants reported one or more comorbid conditions, including common health concerns, difficulties related to language and\/or learning, unresolved speech and\/or hearing issues, problems with vision, breathing difficulties, and concerns related to eating and drinking. Many participants were unaware of their entitlement to specialist treatment, and some had experienced difficulties accessing specialist services through their general practitioner (GP).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Individuals with CL\/P may be at risk of physical health issues persisting into adulthood. The monitoring of physical symptoms from an early age is recommended, as is a routine physical assessment for adults returning to the CL\/P service later in life. Education for both GPs and adults is warranted. Future studies could investigate the wider prevalence of comorbid conditions in CL\/P, in order to better understand the longer-term health burden.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1055665620944758","type":"journal-article","created":{"date-parts":[[2020,7,31]],"date-time":"2020-07-31T07:56:58Z","timestamp":1596182218000},"page":"153-162","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":24,"title":["Physical Health in Adults Born With Cleft Lip and\/or Palate: A Whole of Life Survey in the United Kingdom"],"prefix":"10.1177","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8105-3926","authenticated-orcid":false,"given":"Kenny","family":"Ardouin","sequence":"first","affiliation":[{"name":"Cleft Lip and Palate Association, London, United Kingdom"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sin\u00e9ad","family":"Davis","sequence":"additional","affiliation":[{"name":"Welsh Centre for Cleft Lip and Palate, Morriston Hospital, Swansea, United Kingdom"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1285-691X","authenticated-orcid":false,"given":"Nicola Marie","family":"Stock","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2020,7,31]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2016.1925"},{"key":"e_1_3_3_3_1","doi-asserted-by":"publisher","DOI":"10.1597\/08-094"},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/oso\/9780195139068.003.0036"},{"key":"e_1_3_3_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/aje\/kwi132"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/003335490912400315"},{"key":"e_1_3_3_7_1","unstructured":"British Medical Association. A Vision for General Practice; 2015. Accessed August 27 2019. https:\/\/www.bma.org.uk\/collective-voice\/committees\/general-practitioners-committee\/gpc-vision-2015."},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.20522"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.38106.559120.7C"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_2002_039_0392_fcapda_2.0.co_2"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1597\/07-048.1"},{"key":"e_1_3_3_12_1","unstructured":"Cleft Registry and Audit Network. CRANE Database 2018 Annual Report; 2018. Accessed March 8 2019. www.crane-database.org.uk"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2006-2091"},{"key":"e_1_3_3_14_1","unstructured":"Department of Health. Long Term Conditions: Compendium of Information 3rd ed; 2002. Accessed August 27 2019. https:\/\/assets.publishing.service.gov.uk\/government\/uploads\/system\/uploads\/attachment_data\/file\/216528\/dh_134486.pdf"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1597\/14-242"},{"key":"e_1_3_3_16_1","doi-asserted-by":"publisher","DOI":"10.1597\/14-063"},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1597\/12-326"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijporl.2009.07.015"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1597\/10-126"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.1155\/2012\/548698"},{"key":"e_1_3_3_21_1","doi-asserted-by":"publisher","DOI":"10.1155\/2015\/510395"},{"key":"e_1_3_3_22_1","doi-asserted-by":"publisher","DOI":"10.1597\/10-033"},{"key":"e_1_3_3_23_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000179303.72345.ce"},{"key":"e_1_3_3_24_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_2001_038_0379_qoliaw_2.0.co_2"},{"key":"e_1_3_3_25_1","doi-asserted-by":"publisher","DOI":"10.1080\/028443102753478327"},{"key":"e_1_3_3_26_1","doi-asserted-by":"publisher","DOI":"10.4081\/hpr.2013.932"},{"key":"e_1_3_3_27_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.100.2.180"},{"key":"e_1_3_3_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijom.2011.03.002"},{"key":"e_1_3_3_29_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781071802878"},{"key":"e_1_3_3_30_1","unstructured":"NHS England. NHS Standard Contract for Cleft Lip and\/or Palate Services Including Non-Cleft Velopharyngeal Dysfunction (D07\/S\/a); 2013. Accessed August 28 2019. https:\/\/www.england.nhs.uk\/wp-content\/uploads\/2013\/06\/d07-cleft-lip.pdf"},{"key":"e_1_3_3_31_1","doi-asserted-by":"publisher","DOI":"10.1177\/1055665618768540"},{"key":"e_1_3_3_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/1055665617730362"},{"key":"e_1_3_3_33_1","unstructured":"Office for National Statistics. People Population and Community; 2018. Accessed November 13 2018. https:\/\/www.ons.gov.uk\/peoplepopulationandcommunity"},{"key":"e_1_3_3_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijom.2007.07.008"},{"key":"e_1_3_3_35_1","doi-asserted-by":"publisher","DOI":"10.1597\/13-104"},{"key":"e_1_3_3_36_1","first-page":"159","volume-title":"Scott Brown\u2019s Otolaryngology Paediatric Otolaryngology","author":"Richard AM","year":"1987","unstructured":"Richard AM. Otitis media with effusion (glue ear). In: Scott Brown\u2019s Otolaryngology Paediatric Otolaryngology. Butterworth; 1987:6(5):159\u2013176."},{"key":"e_1_3_3_37_1","doi-asserted-by":"publisher","DOI":"10.1093\/ortho.25.1.21"},{"issue":"2","key":"e_1_3_3_38_1","first-page":"042","article-title":"Treatment experiences of individuals born with cleft lip and\/or palate in the UK","volume":"3","author":"Searle A","year":"2017","unstructured":"Searle A, Ali S, Deacon S, Waylen A. Treatment experiences of individuals born with cleft lip and\/or palate in the UK. Int J Oral Dental Health. 2017;3(2):042.","journal-title":"Int J Oral Dental Health"},{"key":"e_1_3_3_39_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0165-5876(03)00098-3"},{"key":"e_1_3_3_40_1","doi-asserted-by":"publisher","DOI":"10.1597\/13-009"},{"key":"e_1_3_3_41_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2016.1143944"},{"key":"e_1_3_3_42_1","doi-asserted-by":"publisher","DOI":"10.1597\/14-178"},{"key":"e_1_3_3_43_1","doi-asserted-by":"publisher","DOI":"10.1038\/sj.bdj.2018.542"},{"key":"e_1_3_3_44_1","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619868331"},{"issue":"1","key":"e_1_3_3_45_1","first-page":"297","article-title":"An investigation of the relationship between associated congenital malformations and the mental and psychomotor development of children with clefts","volume":"40","author":"Swanenburg V","year":"2003","unstructured":"Swanenburg V, Beemer FA, Mellenbergh GJ, Wolters WH, De Boer JAH. An investigation of the relationship between associated congenital malformations and the mental and psychomotor development of children with clefts. Cleft Palate Craniofac J. 2003;40(1):297\u2013303.","journal-title":"Cleft Palate Craniofac J"},{"key":"e_1_3_3_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1601-0825.2009.01588.x"},{"key":"e_1_3_3_47_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10654-015-0010-0"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1055665620944758","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1055665620944758","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1055665620944758","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:20:53Z","timestamp":1777393253000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1055665620944758"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,7,31]]},"references-count":46,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2021,2]]}},"alternative-id":["10.1177\/1055665620944758"],"URL":"https:\/\/doi.org\/10.1177\/1055665620944758","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,7,31]]}}}