{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,10]],"date-time":"2026-11-10T10:55:45Z","timestamp":1794308145231,"version":"4.9.0"},"reference-count":16,"publisher":"SAGE Publications","issue":"4_suppl2","license":[{"start":{"date-parts":[[2021,6,29]],"date-time":"2021-06-29T00:00:00Z","timestamp":1624924800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100018379","name":"VTCT Foundation","doi-asserted-by":"crossref","award":["1155360"],"award-info":[{"award-number":["1155360"]}],"id":[{"id":"10.13039\/100018379","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2022,4]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The largest group of people living with repaired cleft lip and\/or palate (CL\/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions developed by the Cleft Lip and Palate Association as part of its 3-year community-based Adult Services Programme; an Adults Conference, a series of panel discussions (\u201cCleft Talk\u201d) streamed in podcast\/video format, and a Leaver\u2019s Pack of resources for adults wishing to return to cleft care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Feedback from attendees of the Adults Conferences (2018-2019) was collected using specifically developed evaluation forms. Streaming metrics and social media interactions were extracted for Cleft Talk panel discussions (2019-2020). The Leaver\u2019s Pack was piloted in 2020, using an online evaluation form. Specialist health professionals were invited to provide feedback or participate in a one-to-one interview regarding their perceived impact of the program.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>All 3 interventions across the different modalities received support from participating adults, demonstrating potential to meet adults\u2019 needs across the life span. Health professionals also offered support for the program, viewing the interventions as a valuable adjunct to formal medical CL\/P services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>This exploratory evaluation indicates that peer- and community-led interventions, in combination with ongoing access to specialist medical care, can have a range of positive impacts for adults with CL\/P. There is scope for similar initiatives to be developed internationally and for individuals with other craniofacial conditions. Not-for-profit organizations are encouraged to routinely evaluate their interventions to create a stronger evidence base for their valuable work.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656211025415","type":"journal-article","created":{"date-parts":[[2021,6,29]],"date-time":"2021-06-29T05:58:32Z","timestamp":1624946312000},"page":"S48-S56","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":8,"title":["Expanding Support Services for Adults Born With Cleft Lip and\/or Palate in the United Kingdom: An Exploratory Evaluation of the Cleft Lip and Palate Association Adult Services Programme"],"prefix":"10.1177","volume":"59","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8105-3926","authenticated-orcid":false,"given":"Kenny","family":"Ardouin","sequence":"first","affiliation":[{"name":"Cleft Lip and Palate Association, The Green House, London, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicky","family":"Davis","sequence":"additional","affiliation":[{"name":"Cleft Lip and Palate Association, The Green House, London, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1285-691X","authenticated-orcid":false,"given":"Nicola Marie","family":"Stock","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2021,6,29]]},"reference":[{"key":"bibr1-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620944758"},{"key":"bibr2-10556656211025415","author":"Ardouin K","year":"2021","journal-title":"Cleft Palate Craniofac J"},{"key":"bibr3-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619896681"},{"key":"bibr4-10556656211025415","author":"Ardouin K","year":"2021","journal-title":"Cleft Palate Craniofac J"},{"key":"bibr5-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_2001_038_0126_saicaw_2.0.co_2"},{"key":"bibr6-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1037\/sah0000018"},{"key":"bibr7-10556656211025415","unstructured":"Cleft Lip and Palate Association. CLAPA Adult Services Programme Roadshow Report. 2018. Accessed April 20, 2021. https:\/\/www.clapa.com\/wp-content\/uploads\/2018\/09\/2018-Adult-Engagement-Roadshow-Findings-Branded.pdf"},{"key":"bibr8-10556656211025415","unstructured":"Cleft Registry and Audit Network. CRANE Database 2018 Annual Report. 2018. Accessed April 20, 2021. www.crane-database.org.uk"},{"key":"bibr9-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1597\/10-033"},{"key":"bibr10-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619843410"},{"issue":"1","key":"bibr11-10556656211025415","first-page":"3601","volume":"16","author":"Lauckner HM","year":"2016","journal-title":"Rural Remote Health"},{"key":"bibr13-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1177\/1055665618768540"},{"key":"bibr14-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1093\/ortho.25.1.21"},{"key":"bibr15-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1597\/14-178"},{"key":"bibr16-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1177\/1055665618764737"},{"key":"bibr17-10556656211025415","doi-asserted-by":"publisher","DOI":"10.1597\/04-124r.1"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656211025415","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10556656211025415","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656211025415","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:21:33Z","timestamp":1777393293000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10556656211025415"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,6,29]]},"references-count":16,"journal-issue":{"issue":"4_suppl2","published-print":{"date-parts":[[2022,4]]}},"alternative-id":["10.1177\/10556656211025415"],"URL":"https:\/\/doi.org\/10.1177\/10556656211025415","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,6,29]]}}}