{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T02:04:24Z","timestamp":1782871464317,"version":"3.54.5"},"reference-count":26,"publisher":"SAGE Publications","issue":"12","license":[{"start":{"date-parts":[[2021,12,6]],"date-time":"2021-12-06T00:00:00Z","timestamp":1638748800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2021,12,6]],"date-time":"2021-12-06T00:00:00Z","timestamp":1638748800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2022,12]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To examine quality of life in internationally adopted children with cleft lip and\/or palate (CL\/P) versus non-adopted children with CL\/P.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Cross sectional study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Multidisciplinary cleft team of a secondary and tertiary hospital in the Netherlands.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Parents of children under the age of 8 treated by the multidisciplinary cleft team of our institutions were asked to fill out a questionnaire containing demographic and clinical data and a validated parent proxy measure of cleft-specific quality of life instrument for children aged 0\u20138: the CleftChild-8. Adopted children were matched to non-adopted children using propensity score matching based on sex, age, type of cleft, if palatal surgery was completed and the level of education of the parent. CleftChild-8 scores were then compared between the matched samples of adopted and non-adopted children with CL\/P.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measure(s)<\/jats:title>\n                    <jats:p>Differences in (sub)domain scores of the CleftChild-8.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Most median CleftChild-8 scores of the adopted children (n\u2009=\u200929) were slightly lower compared to the 29 matched non-adopted children. A significant difference was seen for the domain score \u2018satisfaction with (operative) treatment\u2019 and 3 of the 13 subdomain scores: \u2018post-operative results\u2019, \u2018acceptance by siblings\u2019 and \u2018acceptance by family\/friends\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>By parent report, adopted children with CL\/P experienced some areas of lower quality of life when compared to non-adopted children. Members of cleft teams should be aware of the problems associated with adoption and offer additional guidance and counseling to adopted children and their parents.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656211050795","type":"journal-article","created":{"date-parts":[[2021,12,6]],"date-time":"2021-12-06T10:33:32Z","timestamp":1638786812000},"page":"1502-1508","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":5,"title":["Quality of Life of Adopted Chinese Versus Nonadopted Dutch Children with Cleft Lip and\/or Palate: A Propensity Score Matched Analysis"],"prefix":"10.1177","volume":"59","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2233-2068","authenticated-orcid":false,"given":"Martinus M.","family":"van Veen","sequence":"first","affiliation":[{"name":"Medical Center Leeuwarden"},{"name":"University Medical Center Groningen"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bente A.","family":"van den Berge","sequence":"additional","affiliation":[{"name":"University Medical Center Groningen"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chantal M.","family":"Mou\u00ebs-Vink","sequence":"additional","affiliation":[{"name":"Medical Center Leeuwarden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2021,12,6]]},"reference":[{"key":"e_1_3_2_2_1","volume-title":"Discriminatie van Chinese Nederlanders: Wat doen we eraan?","author":"Broekroelofs R","unstructured":"Broekroelofs R. Discriminatie van Chinese Nederlanders: Wat doen we eraan? Kennisplatform Integratie & Samenleving. https:\/\/www.kis.nl\/blog\/discriminatie-van-chinese-nederlanders-wat-doen-we-eraan. Accessed June 15, 2021."},{"key":"e_1_3_2_3_1","unstructured":"Busschers N. Validatieproces vragenlijst Kwaliteit van leven en patienttevredenheid bij kinderen van 0\u20138 jaar met (Niet) Uitwendig Zichtbare Schisis en\/of open neusspraak behandeld door een regionaal schisisteam: K(N)UZS-8. University of Groningen; 2016. [Master\u2019s thesis]."},{"key":"e_1_3_2_4_1","unstructured":"Centraal Bureau voor Statistiek. Children adopted from China perform better in secondary education. Available at: https:\/\/www.cbs.nl\/en-gb\/news\/2015\/24\/children-adopted-from-china-perform-better-in-secondary-education. Accessed August 19 2021."},{"key":"e_1_3_2_5_1","volume-title":"Adoption disruption and dissolution","author":"Child Welfare Information Gateway","year":"2012","unstructured":"Child Welfare Information Gateway. Adoption disruption and dissolution. Washington, DC: U.S. Department of Health and Human Services; 2012, Children\u2019s bureau. https:\/\/www.childwelfare.gov\/pubPDFs\/s_disrup.pdf. Accessed June 15, 2021."},{"key":"e_1_3_2_6_1","volume-title":"Statistical Power Analysis for the Behavioral Sciences","author":"Cohen J","year":"1988","unstructured":"Cohen J. Statistical Power Analysis for the Behavioral Sciences. New York, NY: Routledge Academic; 1988."},{"key":"e_1_3_2_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-7610.2007.01853.x"},{"key":"e_1_3_2_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000000701"},{"key":"e_1_3_2_9_1","doi-asserted-by":"publisher","DOI":"10.3109\/2000656X.2012.668774"},{"key":"e_1_3_2_10_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.293.20.2501"},{"key":"e_1_3_2_11_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10567-013-0130-6"},{"key":"e_1_3_2_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/1055665618771423"},{"key":"e_1_3_2_13_1","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.170289"},{"key":"e_1_3_2_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/pan.13866"},{"key":"e_1_3_2_15_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-2005-864211"},{"key":"e_1_3_2_16_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.105.6.e76"},{"key":"e_1_3_2_17_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.1995.02170130042009"},{"key":"e_1_3_2_18_1","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000001162"},{"key":"e_1_3_2_19_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph8010105"},{"key":"e_1_3_2_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/1055665617735109"},{"key":"e_1_3_2_21_1","doi-asserted-by":"publisher","DOI":"10.1097\/DBP.0000000000000639"},{"key":"e_1_3_2_22_1","doi-asserted-by":"publisher","DOI":"10.1597\/15-237"},{"key":"e_1_3_2_23_1","unstructured":"Stichting Adoptievoorzieningen. Jaarverslag 2017. Available at: http:\/\/www.adoptie.nl\/. Accessed April 11 2021."},{"key":"e_1_3_2_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000000224"},{"key":"e_1_3_2_25_1","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000000391"},{"key":"e_1_3_2_26_1","unstructured":"University College Londen. Waar wonen de niet-westerse allochtonen in Nederland? Available at: https:\/\/www.ucl.ac.uk\/dutchstudies\/an\/SP_LINKS_UCL_POPUP\/SPs_dutch\/multicultureel\/pages\/waar_wonen.html. 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