{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T04:29:30Z","timestamp":1777523370633,"version":"3.51.4"},"reference-count":33,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2022,9,13]],"date-time":"2022-09-13T00:00:00Z","timestamp":1663027200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Psychosocial adjustment can be challenging for children with cleft lip with or without a cleft palate (CL\u2009\u00b1\u2009P). Previous studies have linked social integration with self-acceptance and highlighted the impact of the parents\u2019 stress on self-acceptance. Teasing can be linked to children having difficulties explaining their diagnosis to others. This prospective research aimed to gain a better understanding of family communication about cleft, children's oral storytelling about their cleft, and explore their self-image and perceived familial acceptance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Parents and their children with CL\u2009\u00b1\u2009P ( N\u2009=\u200954; average age: 5.6 years).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Semistructured interviews with parents and structured interviews with children were conducted regarding their oral storytelling focusing on scars from cleft lip surgery. Children completed a projective test to explore their self-image and perceptions of familial acceptance. Language screening was completed with the French Wechsler Preschool Primary Scale of Intelligence-Fourth Edition.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Only 30% of children explained their cleft in a way appropriate for peers, including presence at birth, having had surgery, and scar location. Children's ability to explain their cleft was not related to language performance, which was in the average range of 84%. Children's cleft explanations were dependent on parents\u2019 narratives and education methods, including the use of verbal explanations and preoperative photographs. Children's storytelling was related to their self-image and perceived parental acceptance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Cleft teams should assist families in building their cleft story based on a complete explanation with photographs and a positive and accepting approach.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656221126268","type":"journal-article","created":{"date-parts":[[2022,9,13]],"date-time":"2022-09-13T10:27:35Z","timestamp":1663064855000},"page":"200-208","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":9,"title":["Parental and Child Diagnosis Storytelling and Self-Image in French Children With Cleft lip With or Without Cleft Palate"],"prefix":"10.1177","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9871-9923","authenticated-orcid":false,"given":"Pascale","family":"Gavelle","sequence":"first","affiliation":[{"name":"Service de Chirurgie Maxillo-Faciale et Chirurgie Plastique, H\u00f4pital Necker-Enfants Malades, Assistance Publique-H\u00f4pitaux de Paris, Centre de R\u00e9f\u00e9rence Fente et Malformations Faciales MAFACE, Fili\u00e8re Maladies Rares T\u00eate Cou, Universit\u00e9 de Paris, Paris, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8391-0007","authenticated-orcid":false,"given":"Caroline","family":"Dissaux","sequence":"additional","affiliation":[{"name":"Service de Chirurgie Maxillo-Faciale et Chirurgie Plastique des H\u00f4pitaux Universitaires de Strasbourg, Centre de Comp\u00e9tence des Fentes labio-palatines, Strasbourg, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mathilde","family":"Dupont","sequence":"additional","affiliation":[{"name":"Service de Chirurgie Maxillo-Faciale et Chirurgie Plastique, H\u00f4pital Necker-Enfants Malades, Assistance Publique-H\u00f4pitaux de Paris, Centre de R\u00e9f\u00e9rence Fente et Malformations Faciales MAFACE, Fili\u00e8re Maladies Rares T\u00eate Cou, Universit\u00e9 de Paris, Paris, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Roman Hossein","family":"Khonsari","sequence":"additional","affiliation":[{"name":"Service de Chirurgie Maxillo-Faciale et Chirurgie Plastique, H\u00f4pital Necker-Enfants Malades, Assistance Publique-H\u00f4pitaux de Paris, Centre de R\u00e9f\u00e9rence Fente et Malformations Faciales MAFACE, Fili\u00e8re Maladies Rares T\u00eate Cou, Universit\u00e9 de Paris, Paris, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Arnaud","family":"Picard","sequence":"additional","affiliation":[{"name":"Service de Chirurgie Maxillo-Faciale et Chirurgie Plastique, H\u00f4pital Necker-Enfants Malades, Assistance Publique-H\u00f4pitaux de Paris, Centre de R\u00e9f\u00e9rence Fente et Malformations Faciales MAFACE, Fili\u00e8re Maladies Rares T\u00eate Cou, Universit\u00e9 de Paris, Paris, France"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2022,9,13]]},"reference":[{"key":"bibr1-10556656221126268","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2011.01244.x"},{"key":"bibr2-10556656221126268","doi-asserted-by":"publisher","DOI":"10.3917\/dev.134.0245"},{"key":"bibr3-10556656221126268","doi-asserted-by":"publisher","DOI":"10.1016\/j.neurenf.2008.11.003"},{"key":"bibr4-10556656221126268","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-020-02118-5"},{"issue":"1","key":"bibr5-10556656221126268","first-page":"1","volume":"57","author":"Stock NM","year":"2019","journal-title":"Cleft Palate Craniofac 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