{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T21:50:35Z","timestamp":1780523435043,"version":"3.54.1"},"reference-count":34,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2024,2,19]],"date-time":"2024-02-19T00:00:00Z","timestamp":1708300800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:sec>\n                    <jats:title>\n                      <jats:italic>Objective<\/jats:italic>\n                    <\/jats:title>\n                    <jats:p>The objective was to evaluate the readability of easily accessible parent-directed information concerning Robin Sequence (RS) online, compared to the American Medical Association (AMA)-recommended sixth grade (age 11-12) readability level.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>\n                      <jats:italic>Design<\/jats:italic>\n                    <\/jats:title>\n                    <jats:p>A Google search of the term \u201cPierre Robin Sequence information\u201d was performed. The first ten websites were evaluated using six commonly used readability formulas. Sample texts from three websites were \u2018translated\u2019 by the authors, with the aim of achieving a sixth grade readability level.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>\n                      <jats:italic>Main outcome measures<\/jats:italic>\n                    <\/jats:title>\n                    <jats:p>The following outcomes were used: Automated Readability Index (ARI), Coleman Liau Index (CLI), Gunning Fog Score, Simple Measure of Gobbledygook (SMOG), Flesch Kincaid Grade Level (FKGL), and Flesch Reading Ease (FRE) score.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>\n                      <jats:italic>Results<\/jats:italic>\n                    <\/jats:title>\n                    <jats:p>The mean pooled grade level of the top 10 included websites was 12.1 (age 17-18). The overall FRE Index was 45.8, which is equivalent to a College-grade reading level. The mean grade level by each test used was: Flesch-Kincaid Grade Level 11.6 (age 16-17), Gunning Fog Score 13.3 (age 18+), SMOG 10.0 (age 14-15), Coleman-Liau Index 13.8 (age 18+), and ARI 12.0 (age 17-18). The author-translated resources achieved pooled mean grade levels of 6.3-6.5.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>\n                      <jats:italic>Conclusions<\/jats:italic>\n                    <\/jats:title>\n                    <jats:p>Parent-directed online materials concerning RS have a readability in excess of the AMA-recommended sixth grade reading level. Even though the condition is complex, more readable resources are achievable. Coproduction of parent-directed resources in association with public an patient involvement (PPI) contributors is encouraged.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656241234587","type":"journal-article","created":{"date-parts":[[2024,2,19]],"date-time":"2024-02-19T18:56:05Z","timestamp":1708368965000},"page":"964-969","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["Online Resources for Robin Sequence; an Analysis of Readability"],"prefix":"10.1177","volume":"62","author":[{"given":"R.","family":"Browne","sequence":"first","affiliation":[{"name":"Department of Plastic Surgery, Children's Health Ireland, Crumlin, Ireland"},{"name":"Royal College of Surgeons, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.M.","family":"Hurley","sequence":"additional","affiliation":[{"name":"Department of Plastic Surgery, Children's Health Ireland, Crumlin, Ireland"},{"name":"Royal College of Surgeons, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Carr","sequence":"additional","affiliation":[{"name":"Department of Plastic Surgery, Children's Health Ireland, Crumlin, Ireland"},{"name":"Royal College of Surgeons, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3197-4161","authenticated-orcid":false,"given":"C.","family":"de Blacam","sequence":"additional","affiliation":[{"name":"Department of Plastic Surgery, Children's Health Ireland, Crumlin, Ireland"},{"name":"Royal College of Surgeons, Ireland"},{"name":"Department of Paediatrics, Trinity College Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,2,19]]},"reference":[{"key":"e_1_3_2_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/0007-1226(83)90123-6"},{"key":"e_1_3_2_3_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2016.0796"},{"key":"e_1_3_2_4_2","doi-asserted-by":"publisher","DOI":"10.1186\/1750-1172-9-9"},{"key":"e_1_3_2_5_2","unstructured":"Pew Internet and American Life Project. Accessed Jan 4 2023. http:\/\/www.pewinternet.org\/data-trend\/internet-use\/internet-use-over-time\/."},{"key":"e_1_3_2_6_2","unstructured":"National Institutes of Health NCI. Health Information National Trends Survey. Accessed February 28 2023. https:\/\/hints.cancer.gov\/view-questions-topics\/question-details.aspx?nq=1&qid=757"},{"key":"e_1_3_2_7_2","doi-asserted-by":"crossref","unstructured":"In: Nielsen-Bohlman L Panzer AM Kindig DA eds. Health Literacy: A Prescription to End Confusion. 2004.","DOI":"10.17226\/10883"},{"key":"e_1_3_2_8_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0094670"},{"key":"e_1_3_2_9_2","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2010.0294"},{"key":"e_1_3_2_10_2","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.5834"},{"key":"e_1_3_2_11_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-019-6524-8"},{"key":"e_1_3_2_12_2","volume-title":"Health literacy and patient safety: help patients understand","author":"Weiss BD","year":"2007","unstructured":"Weiss BD. Health literacy and patient safety: help patients understand. 2nd ed. American Medical Association Foundation and American Medical Association; 2007.","edition":"2"},{"key":"e_1_3_2_13_2","volume-title":"Get to the top on Google","author":"Viney D","year":"2008","unstructured":"Viney D. Get to the top on Google. Nicolas Brealey Publishing; 2008."},{"key":"e_1_3_2_14_2","unstructured":"Teknicks. Marketing Research Survey: Google Search Behaviors. Accessed 08\/12\/2023 https:\/\/www.teknicks.com\/blog\/marketing-research-survey-google-search-behaviors\/?utm_campaign=Marketing+Blog+-+Daily+Emails&utm_medium=email&utm_content=93246567&utm_source=hs_email#.X2N0VGdKjUI"},{"key":"e_1_3_2_15_2","unstructured":"WebFX. www.read-able.com. Accessed January 03 2023 www.read-able.com"},{"key":"e_1_3_2_16_2","doi-asserted-by":"publisher","DOI":"10.1177\/001872087001200505"},{"key":"e_1_3_2_17_2","doi-asserted-by":"publisher","DOI":"10.1037\/h0076540"},{"key":"e_1_3_2_18_2","volume-title":"The technique of clear writing","author":"Gunning R","year":"1952","unstructured":"Gunning R. The technique of clear writing. McGraw-Hill; 1952."},{"issue":"8","key":"e_1_3_2_19_2","first-page":"639","article-title":"SMOG Grading - a new readability formula","volume":"12","author":"McLaughlin GH","year":"1969","unstructured":"McLaughlin GH. SMOG Grading - a new readability formula. Journal of Reading. 1969;12(8):639-646.","journal-title":"Journal of Reading"},{"key":"e_1_3_2_20_2","doi-asserted-by":"publisher","DOI":"10.1080\/19325037.2008.10599016"},{"key":"e_1_3_2_21_2","doi-asserted-by":"publisher","DOI":"10.1007\/BF02904998"},{"key":"e_1_3_2_22_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656211013177"},{"key":"e_1_3_2_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620980244"},{"key":"e_1_3_2_24_2","doi-asserted-by":"publisher","DOI":"10.1097\/GOX.0000000000004050"},{"key":"e_1_3_2_25_2","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0b013e31821c00e4"},{"key":"e_1_3_2_26_2","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.155.7.807"},{"key":"e_1_3_2_27_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpurol.2018.08.020"},{"key":"e_1_3_2_28_2","doi-asserted-by":"publisher","DOI":"10.1002\/ohn.251"},{"key":"e_1_3_2_29_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijporl.2018.02.036"},{"key":"e_1_3_2_30_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijporl.2017.04.031"},{"key":"e_1_3_2_31_2","doi-asserted-by":"publisher","DOI":"10.1177\/10556656231154843"},{"key":"e_1_3_2_32_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2014.01.014"},{"key":"e_1_3_2_33_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2019.02.002"},{"key":"e_1_3_2_34_2","first-page":"193864002211094","article-title":"Quality and readability of information regarding total ankle arthroplasty available to patients on the internet","author":"Smith S","year":"2022","unstructured":"Smith S, Jupiter DC, Panchbhavi VK, Chen J. Quality and readability of information regarding total ankle arthroplasty available to patients on the internet. Foot Ankle Spec. Jul 17 2022:19386400221109423. doi:https:\/\/doi.org\/10.1177\/19386400221109423","journal-title":"Foot Ankle Spec"},{"key":"e_1_3_2_35_2","unstructured":"NIH. Clear & Simple. National Institutes of Health. Accessed Jan 5 2023. https:\/\/www.nih.gov\/institutes-nih\/nih-office-director\/office-communications-public-liaison\/clear-communication\/clear-simple"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656241234587","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10556656241234587","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656241234587","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:21:43Z","timestamp":1777393303000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10556656241234587"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2,19]]},"references-count":34,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2025,6]]}},"alternative-id":["10.1177\/10556656241234587"],"URL":"https:\/\/doi.org\/10.1177\/10556656241234587","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,2,19]]}}}