{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T04:35:45Z","timestamp":1777523745287,"version":"3.51.4"},"reference-count":37,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2024,2,29]],"date-time":"2024-02-29T00:00:00Z","timestamp":1709164800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Identify and describe factors associated with retention and attrition of patients during longitudinal follow-up at multidisciplinary cleft clinic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Retrospective cohort study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Single, tertiary care center.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patients, Participants<\/jats:title>\n                    <jats:p>Patients born between 1995 and 2007 with a diagnosis of cleft palate with or without cleft lip attending multidisciplinary cleft clinic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Interventions<\/jats:title>\n                    <jats:p>None tested, observational study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measure(s)<\/jats:title>\n                    <jats:p>Age at last clinical appointment with a multidisciplinary cleft team provider. Attrition was defined as absence of an outpatient appointment following 15 years of age.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Six hundred seventy-eight patients were included. The average age at last appointment across the entire cohort was 13.1 years (IQR 6.6\u201317.2). Patients who were Black (HR 1.60, 95% CI 1.10\u20132.32, p\u2009=\u20090.014) and other races (HR 1.90, 95% CI 1.22\u20132.98, p\u2009=\u20090.004) were more likely to be lost to follow-up compared to white patients. Publicly insured patients were more likely to experience attrition than those who were privately insured (HR 1.30, 95% CI 1.03\u20131.65, p\u2009=\u20090.030). Estimated income was not significantly associated with length of follow-up (p\u2009=\u20090.259). Those whose residence was in the fourth quartile of driving distance from our center experienced loss to follow-up significantly more than those who lived the closest (HR 2.04, 95% CI 1.50\u20132.78, p\u2009&lt;\u20090.001).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>There is a high degree of follow-up attrition among patients with cleft lip and palate. Race, insurance status, and driving distance to our center were associated with attrition in a large, retrospective cohort of patients who have reached the age of cleft clinic graduation.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656241234804","type":"journal-article","created":{"date-parts":[[2024,3,1]],"date-time":"2024-03-01T01:24:30Z","timestamp":1709256270000},"page":"1003-1010","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["Sociodemographic Factors Predict Long-Term Attrition from Multidisciplinary Cleft Clinic"],"prefix":"10.1177","volume":"62","author":[{"given":"Connor S","family":"Wagner","sequence":"first","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah L","family":"Barnett","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0150-4174","authenticated-orcid":false,"given":"Dominic","family":"Romeo","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carrie Z","family":"Morales","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lauren K","family":"Salinero","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4408-2071","authenticated-orcid":false,"given":"Carlos E","family":"Barrero","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthew E","family":"Pontell","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rachel A","family":"McKenna","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy","family":"Folsom","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2827-5471","authenticated-orcid":false,"given":"Jesse A","family":"Taylor","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7112-8114","authenticated-orcid":false,"given":"Jordan W","family":"Swanson","sequence":"additional","affiliation":[{"name":"Divsion of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Pennsylvania, PA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2024,2,29]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1097\/00000637-199904000-00017"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-202"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1597\/06-075.1"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0b013e31829ad109"},{"issue":"3","key":"e_1_3_3_6_2","article-title":"Number of surgical procedures for patients with cleft lip and palate from birth to 21 years old at a single children's hospital","volume":"76","author":"McIntyre JK","year":"2016","unstructured":"McIntyre JK, Sethi H, Sch\u00f6nbrunner A, Proudfoot J, Jones M, Gosman A. 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