{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,24]],"date-time":"2026-08-24T18:03:38Z","timestamp":1787594618839,"version":"build-2736575974"},"reference-count":41,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2024,3,15]],"date-time":"2024-03-15T00:00:00Z","timestamp":1710460800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000072","name":"National Institute of Dental and Craniofacial Research","doi-asserted-by":"publisher","award":["3U01DE029750"],"award-info":[{"award-number":["3U01DE029750"]}],"id":[{"id":"10.13039\/100000072","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000072","name":"National Institute of Dental and Craniofacial Research","doi-asserted-by":"publisher","award":["R01DE027493"],"award-info":[{"award-number":["R01DE027493"]}],"id":[{"id":"10.13039\/100000072","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2025,7]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Compare the feeding management practices in infants with cleft palate with and without Pierre Robin sequence (PRS) and determine if specific feeding difficulties or interventions predict delayed palate repair.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Retrospective cross-sectional study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Seventeen cleft palate teams contributed data.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patients<\/jats:title>\n                    <jats:p>414 infants were included in this study: 268 infants with cleft palate only and 146 infants with cleft palate and PRS.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Procedures<\/jats:title>\n                    <jats:p>Data were collected via parent interview and electronic health records.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measures<\/jats:title>\n                    <jats:p>Outcomes for the primary objective included categorical data for: history of poor growth, feeding therapy, milk fortification, use of enteral feeding, and feeding difficulties. The outcome for the secondary objective was age in months at primary palate repair.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Infants with PRS had a significantly higher prevalence of feeding difficulties (81% versus 61%) and poor growth (29% versus 15%) compared to infants with cleft palate only. Infants with PRS received all feeding interventions\u2014including feeding therapy, milk fortification, and enteral feeding\u2014at a significantly higher frequency. Infants with PRS underwent primary palate repair at a mean age of 13.55 months (SD\u2005=\u20053.29) which was significantly (\n                      <jats:italic toggle=\"yes\">P<\/jats:italic>\n                      \u2005&lt;\u2005.00001) later than infants with cleft palate only who underwent palate repair at a mean age of 12.05 months (SD\u2005=\u20052.36). Predictors of delayed palate repair included diagnosis of PRS as well as Hispanic ethnicity and a history of poor growth.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>These findings can be used to establish clinical directives focused on providing early, multimodal feeding interventions to promote optimal growth and timely palate repair for infants with PRS.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656241239766","type":"journal-article","created":{"date-parts":[[2024,3,15]],"date-time":"2024-03-15T19:39:50Z","timestamp":1710531590000},"page":"1180-1189","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":7,"title":["Feeding Management and Palate Repair Timing in Infants with Cleft Palate with and without Pierre Robin Sequence: A Multisite Study"],"prefix":"10.1177","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2882-7275","authenticated-orcid":false,"given":"Jessica L","family":"Williams","sequence":"first","affiliation":[{"name":"Phoenix Children's Hospital"},{"name":"Program of Speech and Hearing Science, College of Health Solutions, Arizona State University, Tempe, AZ, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2691-0806","authenticated-orcid":false,"given":"Kari M","family":"Lien","sequence":"additional","affiliation":[{"name":"Department of Communication Sciences and Disorders, College of Health, University of Utah, Salt Lake City, UT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Kirschner","sequence":"additional","affiliation":[{"name":"Department of Plastic and Reconstructive Surgery, Nationwide Children's Hospital, Columbus, OH, USA"},{"name":"Department of Plastic Surgery, The Ohio State University Medical College, Columbus, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7138-2240","authenticated-orcid":false,"given":"Gregory","family":"Allen","sequence":"additional","affiliation":[{"name":"Department of Otolaryngology, Children's Hospital Colorado, Aurora, CO, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1236-9185","authenticated-orcid":false,"given":"Kathy","family":"Chapman","sequence":"additional","affiliation":[{"name":"Department of Communication Sciences and Disorders, College of Health, University of Utah, Salt Lake City, UT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"on behalf of the Cleft Outcomes Research NETwork (CORNET) Consortium","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,3,15]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1597\/05-172"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bjps.2008.06.050"},{"key":"e_1_3_3_4_2","first-page":"1206","article-title":"Pierre robin sequence: Management of respiratory and feeding complications during the first year of life in a tertiary referral center","volume":"79","author":"Rathe M","year":"2015","unstructured":"Rathe M, Rayyan M, Schoenaers J, et al. 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