{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T20:31:04Z","timestamp":1791664264543,"version":"4.3.4"},"reference-count":35,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2024,12,1]],"date-time":"2024-12-01T00:00:00Z","timestamp":1733011200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100009053","name":"Wellcome Trust DBT India Alliance","doi-asserted-by":"publisher","award":["IA\/CPHS\/20\/1\/505255"],"award-info":[{"award-number":["IA\/CPHS\/20\/1\/505255"]}],"id":[{"id":"10.13039\/501100009053","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>The study aimed to understand parents\u2019 reactions to cleft, the manner in which they learned about its presence, and the challenges they faced in caring for their child with a view to providing healthcare professionals insights toward enhancing care delivery.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Qualitative in-depth interviews using the grounded theory approach were carried out with 11 mothers and fathers of children with cleft lip and palate (CLP) attending a cleft speciality hospital in Chennai city, in South India.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Analysis resulted in the discovery of 5 core categories, learning about CLP\u2014when and how, reactions and attributions to CLP, learning about and expectations from treatment, caring for a child with CLP and support systems. Feelings of shock and bewilderment when they learned of the presence of cleft in their child was reported by most parents. Poor awareness of cleft, difficulties in feeding, and concerns for the child's future were major sources of disquiet. The presence of support from family and friends and interactions with other parents of children with cleft helped them to cope better.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The results highlight the need for enhancing understanding of cleft among parents and strengthening them emotionally, thereby empowering them to provide effective care for their child. There is an urgent need to develop standardized information materials for parents to ensure that they have clear, consistent, and reliable information on the care of their child.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656241298217","type":"journal-article","created":{"date-parts":[[2024,12,2]],"date-time":"2024-12-02T01:11:01Z","timestamp":1733101861000},"page":"218-228","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":10,"title":["Parental Experiences on Learning About and Caring for Children with Cleft Lip and Palate: A Qualitative Study from South India"],"prefix":"10.1177","volume":"63","author":[{"given":"Shuba","family":"Kumar","sequence":"first","affiliation":[{"name":"Samarth, Chennai, Tamil Nadu, India"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rani","family":"Mohanraj","sequence":"additional","affiliation":[{"name":"Samarth, Chennai, Tamil Nadu, India"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thailavathy","family":"Vaidhyalingam","sequence":"additional","affiliation":[{"name":"Sree Balaji Dental College and Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Subhiksha","family":"Chakkaravarthi","sequence":"additional","affiliation":[{"name":"Sree Balaji Dental College and Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7809-8111","authenticated-orcid":false,"given":"Badri","family":"Thiruvenkatachari","sequence":"additional","affiliation":[{"name":"Sree Balaji Dental College and Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,12]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"crossref","DOI":"10.4103\/0970-0358.57182","article-title":"Addressing the challenges of cleft lip and palate research in India","volume":"42","author":"Mossey P","year":"2009","unstructured":"Mossey P, Little J. Addressing the challenges of cleft lip and palate research in India. Indian J Plast Surg. 2009;42(Suppl):S9-S18. doi:10.4103\/0970-0358.57182","journal-title":"Indian J Plast Surg"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.5005\/jp-journals-10028-1550"},{"key":"e_1_3_3_4_2","doi-asserted-by":"crossref","DOI":"10.4103\/0970-0358.57191","article-title":"A community-based survey of visible congenital anomalies in rural Tamil Nadu","volume":"42","author":"Sridhar K","year":"2009","unstructured":"Sridhar K. A community-based survey of visible congenital anomalies in rural Tamil Nadu. Indian J Plast Surg. 2009;42(Suppl):S184-S191. doi:10.4103\/0970-0358.57191","journal-title":"Indian J Plast Surg"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1597\/05-117"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1597\/08-177"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1002\/bdra.20735"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1601-0825.2009.01588.x"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijom.2007.06.009"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1097\/DBP.0b013e3181c7226b"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1002\/jclp.10019"},{"issue":"6","key":"e_1_3_3_12_2","first-page":"105566562110244","article-title":"Awareness of orofacial clefts in the Sultanate of Oman","volume":"59","author":"Al Alawi K","year":"2021","unstructured":"Al Alawi K, Shaqsi S, Ghaithi M. Awareness of orofacial clefts in the Sultanate of Oman. Cleft Palate Craniofac J. 2021;59(6):105566562110244. doi:10.1177\/10556656211024477.","journal-title":"Cleft Palate Craniofac J."},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.4103\/jclpca.jclpca_41_17"},{"key":"e_1_3_3_14_2","article-title":". Factors Related to Perceived Stigma in Parents of Children and Adolescents in Outpatient Mental Healthcare.","volume":"19","author":"Drent HM.","year":"2022","unstructured":"Drent HM.. Factors Related to Perceived Stigma in Parents of Children and Adolescents in Outpatient Mental Healthcare.. JInt J Environ Res Public Health 2022;19, 19. doi:10.3390\/ijerph191912767.","journal-title":"JInt J Environ Res Public Health"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.4103\/2348-2125.150749"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.4103\/jfmpc.jfmpc_472_20"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.14260\/jemds\/181"},{"key":"e_1_3_3_18_2","doi-asserted-by":"crossref","DOI":"10.4103\/0970-0358.57202","article-title":"Management of cleft lip and palate in adults","volume":"42","author":"Murthy J","year":"2009","unstructured":"Murthy J. Management of cleft lip and palate in adults. Indian J Plast Surg. 2009;42(Suppl):S116-S122. doi:10.4103\/0970-0358.57202","journal-title":"Indian J Plast Surg"},{"key":"e_1_3_3_19_2","doi-asserted-by":"crossref","DOI":"10.4103\/0970-0358.57186","article-title":"Smile train: the ascendancy of cleft care in India","volume":"42","author":"Singh SK","year":"2009","unstructured":"Singh SK. Smile train: the ascendancy of cleft care in India. Indian J Plast Surg. 2009;42(Suppl):S192-S198. doi:10.4103\/0970-0358.57186","journal-title":"Indian J Plast Surg"},{"key":"e_1_3_3_20_2","first-page":"312","volume-title":"Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory","author":"Strauss A","year":"1998","unstructured":"Strauss A, Corbin J. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. 2nd ed. Sage Publications; 1998:xiii, 312.","edition":"2"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1177\/2333393618799571"},{"key":"e_1_3_3_22_2","volume-title":"The Discovery of Grounded Theory: Strategies for Qualitative Research","author":"Glaser BG","year":"1967","unstructured":"Glaser BG, Strauss AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine Publishing Company; 1967."},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.4324\/9780203793206"},{"key":"e_1_3_3_24_2","unstructured":"SRQR Reporting Checklist for Qualitative Study. Accessed October 14 2024. https:\/\/www.google.com\/search?q=srqr+reporting+checklist+for+qualitative+study&rlz=1C1VDKB_enIN1117IN1117&oq=srqr&gs_lcrp=EgZjaHJvbWUqBggCEEUYOzIICAAQRRgnGDsyBggBEEUYOTIGCAIQRRg7MgcIAxAAGIAEMgcIBBAAGIAEMgYIBRBFGDwyBggGEEUYPDIGCAcQRRg80gEINTQ2MGowajeoAgiwAgE&sourceid=chrome&ie=UTF-8"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1597\/07-194.1"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.4103\/0019-5545.111456"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620977271"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1597\/07-194.1"},{"key":"e_1_3_3_29_2","article-title":"Having a child with Orofacial cleft: initial reaction and psychosocial experiences of Ghanaian mothers","volume":"8","author":"Boamah Mensah AB","year":"2018","unstructured":"Boamah Mensah AB, Dzomeku V, Apiribu F, et al. Having a child with Orofacial cleft: initial reaction and psychosocial experiences of Ghanaian mothers. Int J Afr Nurs Sci. 2018;8:132-140. doi:10.1016\/j.ijans.2018.05.003.","journal-title":"Int J Afr Nurs Sci."},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1111\/scs.12048"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.12968\/bjom.2008.16.12.31819"},{"key":"e_1_3_3_32_2","unstructured":"NHS England\/D07\/S\/a. Gateway Reference 01362. Accessed June 27 2023. https:\/\/www.england.nhs.uk\/wp-content\/uploads\/2013\/06\/d07-cleft-lip.pdf"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-020-02118-5"},{"key":"e_1_3_3_34_2","first-page":"1","article-title":"A psychologic assessment of the parents of patients with cleft lip and palate","volume":"31","author":"Kumar K","year":"2019","unstructured":"Kumar K, Kumar S, Mehrotra D, Gupta S, Khandpur S, Mishra R. A psychologic assessment of the parents of patients with cleft lip and palate. J Craniofac Surg. 2019;31:1. doi:10.1097\/SCS.0000000000005835","journal-title":"J Craniofac Surg"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1597\/08-075.1"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1057\/s41599-020-00677-7"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656241298217","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10556656241298217","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656241298217","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:22:06Z","timestamp":1777393326000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10556656241298217"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,12]]},"references-count":35,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2026,2]]}},"alternative-id":["10.1177\/10556656241298217"],"URL":"https:\/\/doi.org\/10.1177\/10556656241298217","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,12]]}}}