{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T19:02:14Z","timestamp":1788289334296,"version":"build-2803163510"},"reference-count":31,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T00:00:00Z","timestamp":1737072000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100006733","name":"Indiana University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006733","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Decision-making for elective cleft lip and nose revisions varies widely, from patient-led decisions to more paternalistic approaches. As these procedures incur additional scarring that may impact future interventions, patients should be equipped to participate in these surgical decisions. We thus developed a decision aid based on international standards, and to ensure methodologic rigor, we sought feedback from other surgeons regarding shared decision-making and potential barriers to adopting the decision aid.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>The decision aid was developed based on qualitative patient data, expert opinion, and International Patient Decision Aid Standards (IPDAS). It was first piloted using a \u201cthink aloud\u201d approach and subsequently revised. In the present study, this version was presented to a diverse focus group of surgeons. The conversation was audio-recorded and transcribed. The transcription was coded independently by 2 authors, and codes were categorized for theme development.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>American Cleft Palate-Craniofacial Association meeting, April 2024.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Focus group of 8 board-certified craniofacial surgeons.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measures<\/jats:title>\n                    <jats:p>Surgeon feedback regarding appeal, usefulness, and generalizability of the decision aid.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Result(s)<\/jats:title>\n                    <jats:p>Eight surgeons participated. Mean age was 43 years (SD 5.7), and mean number of years in practice was 9.3 (SD 6.0). Four were female, and 4 were male. Three themes emerged: (1) Appeal to the consumer, (2) Acknowledge the parents, and (3) Consider logistics of decision aid delivery.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Based on surgeon feedback, the decision aid will be web-based, explicitly recognize the importance of parents, and maximize the likelihood that patients viewing the decision aid are surgical candidates.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/10556656241310205","type":"journal-article","created":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T10:26:08Z","timestamp":1737109568000},"page":"938-944","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Cleft-Related Revision Procedures: Surgeon Perspectives on Shared Decision-Making and a Decision Aid Prototype"],"prefix":"10.1177","volume":"63","author":[{"given":"Katelyn G.","family":"Makar","sequence":"first","affiliation":[{"name":"Indiana University School of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Khoa D.","family":"Tran","sequence":"additional","affiliation":[{"name":"Riley Hospital for Children"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-3203-5971","authenticated-orcid":false,"given":"Whitney","family":"Brown","sequence":"additional","affiliation":[{"name":"Department of Surgery, Indiana University School of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2015-4213","authenticated-orcid":false,"given":"Christian J.","family":"Vercler","sequence":"additional","affiliation":[{"name":"Section of Plastic Surgery, Michigan Medicine, Ann Arbor, MI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,1,17]]},"reference":[{"key":"e_1_3_2_2_2","doi-asserted-by":"publisher","DOI":"10.1055\/s-0041-1728673"},{"key":"e_1_3_2_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cps.2013.12.008"},{"key":"e_1_3_2_4_2","doi-asserted-by":"publisher","DOI":"10.1597\/15-206"},{"key":"e_1_3_2_5_2","doi-asserted-by":"publisher","DOI":"10.1597\/14-269"},{"key":"e_1_3_2_6_2","doi-asserted-by":"publisher","DOI":"10.1245\/s10434-016-5369-y"},{"key":"e_1_3_2_7_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2016-1485"},{"key":"e_1_3_2_8_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.sempedsurg.2021.151101"},{"key":"e_1_3_2_9_2","doi-asserted-by":"publisher","DOI":"10.2307\/1130087"},{"key":"e_1_3_2_10_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665619866552"},{"key":"e_1_3_2_11_2","doi-asserted-by":"publisher","DOI":"10.1097\/SCS.0000000000002924"},{"issue":"1","key":"e_1_3_2_12_2","article-title":"Decision aids for people facing health treatment or screening decisions","volume":"1","author":"Stacey D","year":"2024","unstructured":"Stacey D, Lewis KB, Smith M, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2024;1(1):CD001431. doi:https:\/\/doi.org\/10.1002\/14651858.CD001431.pub6.","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_3_2_13_2","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X20978208"},{"key":"e_1_3_2_14_2","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X211014163"},{"key":"e_1_3_2_15_2","unstructured":"https:\/\/decisionaid.ohri.ca\/IPDAS\/resources.html."},{"key":"e_1_3_2_16_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpurol.2022.01.004"},{"key":"e_1_3_2_17_2","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_3_2_18_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpurol.2020.03.015"},{"key":"e_1_3_2_19_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"e_1_3_2_20_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cps.2014.01.002"},{"key":"e_1_3_2_21_2","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0000000000005722"},{"key":"e_1_3_2_22_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2023.35941"},{"key":"e_1_3_2_23_2","article-title":"Efficacy of a decision aid in breast cancer patients considering immediate reconstruction: Results of a randomized controlled trial","author":"Ter Stege JA","year":"2023","unstructured":"Ter Stege JA, Woerdeman LAE, Kieffer JM, et al. Efficacy of a decision aid in breast cancer patients considering immediate reconstruction: Results of a randomized controlled trial. Plast Reconstr Surg. 2023;154(4):706-722. doi:https:\/\/doi.org\/10.1097\/PRS.0000000000011100.","journal-title":"Plast Reconstr Surg"},{"key":"e_1_3_2_24_2","doi-asserted-by":"publisher","DOI":"10.1136\/wjps-2022-000466"},{"key":"e_1_3_2_25_2","doi-asserted-by":"publisher","DOI":"10.2196\/10463"},{"key":"e_1_3_2_26_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-019-1898-4"},{"key":"e_1_3_2_27_2","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph16101776"},{"key":"e_1_3_2_28_2","first-page":"189","volume-title":"Usability evaluation in industry","author":"Brooke J","year":"1996","unstructured":"Brooke J, Weerdmeester A. SUS \u2013 a quick and dirty usability scale. In: Jordan P, Thomas B, eds. Usability evaluation in industry. Taylor & Francis; 1996:189-194."},{"key":"e_1_3_2_29_2","unstructured":"O\u2019Connor A Cranney A. User manual - acceptability [document on the internet]. Published online 1996 [modified 2002]. http:\/\/decisionaid.ohri.ca\/docs\/develop\/User_Manuals\/UM_Acceptability.pdf."},{"key":"e_1_3_2_30_2","doi-asserted-by":"publisher","DOI":"10.1177\/2381468316656850"},{"issue":"2","key":"e_1_3_2_31_2","article-title":"\u201cMany miles to go \u2026\u201d: A systematic review of the implementation of patient decision support interventions into routine clinical practice","volume":"13","author":"Elwyn G","year":"2013","unstructured":"Elwyn G, Scholl I, Tietbohl C, et al. \u201cMany miles to go \u2026\u201d: A systematic review of the implementation of patient decision support interventions into routine clinical practice. BMC Med Inform Decis Mak. 2013;13(Suppl 2(Suppl 2)):S14. doi:https:\/\/doi.org\/10.1186\/1472-6947-13-S2-S14.","journal-title":"BMC Med Inform Decis Mak"},{"key":"e_1_3_2_32_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2009.06.013"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656241310205","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/10556656241310205","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/10556656241310205","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:22:18Z","timestamp":1777393338000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/10556656241310205"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1,17]]},"references-count":31,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,4]]}},"alternative-id":["10.1177\/10556656241310205"],"URL":"https:\/\/doi.org\/10.1177\/10556656241310205","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,1,17]]}}}